Just Got Out of The Hospital.....Less an Organ..LOL

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LadyEMT
Regular Member


Date Joined Feb 2006
Total Posts : 109
   Posted 4/8/2007 8:58 AM (GMT -6)   
Hello to all,
 
     Well it all started on the 3rd.  Terrible pains in my upper chest area.  Laid around most of the day hoping it would go away.  That night couldn't get comfy...  Even took Vicodin without ease.  Told my hubby we had to go to ER.  When we got there, blood tests and IV started, and some pain killer to help.  I was there a long time, so im gonna cut this short..........LOL...   Went for a hida-scan  (spelling)..It showed that my Gallbladder, stopped working.   It had to come out.  so the next day it came out.  In the middle of all this, I also couldn't pee...had to be catherized.  It didn't hurt, I couldn't feel it.  It took me so long to get out because I had to pee on my own.  I literally force it out now just to pee....I can feel the urge, but i just can't go.....unless i push hard.... 
 
     Anyhow, im now home jhust an hour ago, with 4 small incisions on my torso.  It was an act of god to get it through their head that I was on a study drug and needed to bring my own in.  Then they had no clue as too what Provigil was.   Had to use my own on that too.  I have had 5 different iv's cause they all got inflamed, and painful.  I  think im going into a flare.....but we shall see. 
 
   Looks as though ive got lots of reading to do....  Need to catch up.  Missed you guys
 
Hugs
Bonnie
Life Can Be A Challenge.... 
 Expect The Un-expected....
Live Everyday As If It Were Your Last.


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 4/8/2007 9:52 AM (GMT -6)   

I hope you heal up uneventfully!  I had gall bladder surgery some years ago -- the full incision across the belly kind -- and it took a couple of weeks to heal, but I was VERY glad to be rid of the thing! I felt much better afterwards.

Be prepared for your bladder and bowels to be weird for awhile, though -- surgery can do that sometimes.  I hope everything settles down for you soon.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 4/8/2007 10:17 AM (GMT -6)   
Hi Bonnie,
 
    Missed you too!  Glad you are home and your surgery went well.  I can understand their not knowing about the study drug but Provigil?  That's kinda weird.  Anyway, glad they let you bring your own and continue with your meds!  I hope you heal quickly and don't have too much trouble.  Sometimes the stress of a surgery, or if you have fever or some kind of infection it can trigger a flare.  I hope you feel better soon!  Let us know how you are doing. 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/8/2007 2:54 PM (GMT -6)   
BONNIE!!!!!

MY GOSH!!! I'm sorry!! How shocked u must've been to have pain one day and surg the next! I hope u'r going to be feeling well and 'healing well' very soon. I agree with Kimber...i can understand them not knowing about the study med, but the Provigil?? Odd. Good u cold use u'r own and continue u'r meds as needed. U take really good care of u'rself and try to take it easy. I'm keeping u in my thoughts and prayers and hoping for ur quick recovery. Thanks for letting us know how u are and so soon after getting home....now go to bed! ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 4/8/2007 3:44 PM (GMT -6)   

Bonnie,

Think positive.  Don't flare, don't flare, be healthy, be healthy.  There, I did it for you.  Isn't that weird about the peeing.  I have been there, done that.  I remember sitting on the toilet with the nurse standing there (giving me pee feeze) and saying,"I am pretty sure I have never done this before - how do you pee?"  I couldn't even begin to remember how that felt.  Well, anyway, feel better soon.  You have run the gauntlet and you deserve a rest. 

Love and prayers,

 


Gretchen
 
diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 4/8/2007 7:58 PM (GMT -6)   
Hi Bonnie,
hope you feel better. I too have the "not being able to pee" syndrome, lol. Just a little tip i learned in PT school for you and it does work for me, and you very well might already be aware of it but I'll tell you just incase you don't or someone else out there isn't We teach patient's with bladder issues
to softly massage your lower belly and it stimulates your bladder to contract . It works for me, just be gentle. You are probably sore right now after surgery, but when you heal, try it. I too feel the need like i need to push hard to get it out, but if you do the massage it does work.Just an FYI. Feel better!
Lynn

LadyEMT
Regular Member


Date Joined Feb 2006
Total Posts : 109
   Posted 4/9/2007 6:44 AM (GMT -6)   
TY all for your kind words and support. Things are getting better slowly. But I believe I'm about to throw a kink in the system. I can't do these shots anymore....... It's not just the shot, I have an issue with lumps it is leaving, the pain it causes each time I do it. The fear of what is this drug doing to my body. How Ironic my gallbladder just ups and fails...... No more... I'll take my chance with the disease....

Again ty all for welcoming me back..... I'll feel better soon.....

Hugs
Bonnie
Life Can Be A Challenge.... 
 Expect The Un-expected....
Live Everyday As If It Were Your Last.


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/9/2007 10:00 AM (GMT -6)   
Hey Bonnie

Awww...i'm sorry. I'm not on any of the CRABs, so i can't speak from experience, but i'm really concerned about u stopping the meds. Maybe talk to u'r doc and even try another of the meds before getting out of it altogether? I can certainly understand u'r feelings on this, but it worries me for u too.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 4/9/2007 10:54 AM (GMT -6)   
Hey Bonnie! :o)
I'm sorry all of this is happening to you, but don't give up on the drug. I'm w/Rhonda on this one. Did your Dr say the gallbladder attack/removal was due to the new drug? If not, give him/her a call and ask. Well, that may be kind of hard since you don't know if you are on a placebo or not, maybe call the testing facility and see what they say. Then maybe ask about all the drugs that you are on now in conjunction with this test drug? Would anything counteract the other or cause this type of side effect?

Have you ever had stomach issues before that maybe you shuffled off as the MS or a food in particular would set you off? I would just hate to see you give up on this drug not knowing exactly what it is doing in your body, hopefully good stuff. You're an EMT, you know how all these drugs can effect one person differently, please don't assume and make sure that is what is happening and try something else or give this drug a little more time. I know you're thinking... What other organ can I donate to this cause? I do understand, but I just want to make sure you look at everything logically and not by emotion.

about the bumps, yes, it's easy for me to give advice... I don't have to take anything yet! I'm really sorry that you do, there must be something you can do to help the swelling, ice/hot packs, advil? Have you tried the stuff that the Avonex people do to help with their bumps and side effects? Please think this through before you go completely off the CRABS.

Get better soon so we all can hear about your adventures! ;o)
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 4/9/2007 11:39 AM (GMT -6)   
Dear Bonnie,

As I am not on any of the CRABS I can't give info. I don't know what I would do if I were in your shoes. It is easy to give advice but I won't this time. I will tell you a story.

A few weeks ago I went to a self help group for people who have MS. I was welcomed in even though I don't have a dx. Many of the people had been where I am, struggling to be heard and fighting to be dx. I met a wonderful man in his 60's. He is so full of life, funny and good natured. This man has had MS for over 20 years. He uses a cane and is still able to function at a pretty normal pace. This man is allergic to all of the CRABS. He tried all of them only to find out that he gets every single one of the side effects and more. He can't even take prednisone. So he lives his life taking his chance with the disease. I think he has done well. I also believe that he is probably an exception to the rule.

What ever decision you make we will be here for you! If you decide to get off your meds for now I think you can always try again at a later date, if you choose too. I wish you lots of luck in your decision and let us know!

Lysha
Undiagnosed

Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06


When everything's coming your way, you're in the wrong lane.


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 4/9/2007 12:28 PM (GMT -6)   
I, too, know a lady that has had MS for over 30 years. Has never taken any type of drug, didn't even try them. She's doing OK. I posted a tad more info on her issues and how she is today on a post a couple weeks ago. She is R/R, I don't know if that has anything to do with how she is doing. Possibly if you have R/R, you may be OK Bonnie w/o being on something. Only the Lord knows. ;o)
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 4/9/2007 4:17 PM (GMT -6)   
Hi Bonnie,
 
    Aww I'm sorry.  You gotta do whatever you think is best for yourself, but please consult with your doctors before you make a final decision.  There are ways to help with the lumps and pain upon injection and you can ask them about your fears of what it might be doing to your body too.  Good luck and we'll be here for you always. 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details
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