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Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 4/9/2007 11:01 AM (GMT -6)   

Hello All,

 

Okay, first off I have to admit that I’ve been poking around on this forum for months, but have been too shy to join until now. This place looks really great, and I look forward to participating.

 

 I was diagnosed with MS last November, after bouncing around to multiple doctors and undergoing tons of tests for over a year. I’ve been on Copaxone since late November. My most consistent symptoms are vertigo and fatigue, and I often feel like I’m living life in some sort of dizzy spacey fog. For me, there is a lot more to “fatigue” than being tired and sleepy, and I am very interested to know what others experience. I noticed that tonight’s chat topic is MS fatigue, and I’d love to join in, if possible, and learn more about this subject.

 

Sunny


BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 4/9/2007 11:25 AM (GMT -6)   
Welcome Sunny,

Fatigue is a HUGE problem for me. My neuro sent me for a sleep study test because he thought I might have Narcolepsy. I am undx, so still going through all the hoops.

I am sorry to hear of your dx! You've found a great forum. Everyone here is very nice and loaded with info!

I hope you can join us for chat tonight.

Lysha
Undiagnosed

Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06


When everything's coming your way, you're in the wrong lane.


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/9/2007 11:29 AM (GMT -6)   
Hey Sunny!!

Welcome to the board!!! I'm really glad u decided to take part and let us all get to know u!! Please do join in on chat tonight...it's sure to be informative. Seems the MS fatigue is much more than being tired and sleepy. As i've described it before to others...it's so bad u must just stop. My husband says i collapse into my chair. Well he's right...it's just a matter of not being able to do any other thing. U sit there and 'rest' and for a min it helps...then just the sitting is tiresome. No energy or life in u until it passes. I can relate to the dizzy and spacey feeling too...as i'm sure many here will say. Residual symptoms are a bit annoying, but thankfully that's all! I'm glad to see u'r using Copaxone and hope that's going well for u. I"m sure being dx'd can be very scary, but it sounds like u'r doing ok. GOOD!! Welcome again to the board and i look forward to getting to know u better soon!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 4/9/2007 2:17 PM (GMT -6)   
Monday p.m.
 
Hello Sunny:  For me, fatigue trumps all other MS symtoms.
 
And no one can appreciate the depth of your fatige unless it is another MS patient.
 
Right everyone?  I have to go lay down now.
 
John

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 4/9/2007 3:59 PM (GMT -6)   
Hi Sunny!
 
   Pleased to meet you and welcome!  I'm so happy you decided to introduce yourself.  Fatigue is a big issue for many, and for some it can be very debilitating all its own.  I do look forward to getting to know you better and if you can make it to chat tonight that'd be wonderful!  Please feel free to join in on the forum conversations anytime! 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 4/10/2007 6:16 AM (GMT -6)   
Thanks for the warm welcome! It was really great chatting with some of you yesterday, and I hope to get to know more of you in the future.
Sunny

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 4/10/2007 8:04 PM (GMT -6)   

Thanks for the response Lorna. Do you take the B12 shots for fatigue? I think I had my B12 level tested somewhere in the diagnostic process and it was normal, so I've never had a B12 shot before. I'm so glad to hear that you've found some ways to successfully manage your symptoms!

Sunny

 
 

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 4/11/2007 4:39 AM (GMT -6)   
I'm sorry I'm late in greeting you. I have a houseful of company and have only dropped in quickly the last couple of days. As the others said, MS related fatigue is a huge problem for many of us. I don't "do chat" so missed you there, but hope you find help and support here.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 4/12/2007 9:56 AM (GMT -6)   

Thanks Uppitycats! And again thanks to you all for the warm welcome. These past few weeks the physical aspects of my fatigue (heaviness, weakness, tremors) have hit me really hard, and I’ve been pretty much stuck at home and feeling kinda blue. Finding such nice people to interact with from home has really helped.

 

Sunny


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 4/12/2007 3:55 PM (GMT -6)   
Hi Sunny!
 
    I really do love your forum name!  Sorry you're feeling a little blue and not feeling so well.  A lot of the folks here have hobbies to take their minds off things.  I'm not the creative type what so ever but I've found when I'm having a bad day playing a game or doing one of my puzzles really is a great distraction.  Hope you start feeling better soon and keep posting!
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

LadyEMT
Regular Member


Date Joined Feb 2006
Total Posts : 109
   Posted 4/12/2007 5:10 PM (GMT -6)   
Um ok....... Sunny........ How did you get your print bigger.... Finally a message I can read without a problem. BTW...Welcome to the site..

It has to be a html code or somrthing....LOL

Hugs
Bonnie
Life Can Be A Challenge.... 
 Expect The Un-expected....
Live Everyday As If It Were Your Last.


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 4/13/2007 9:55 AM (GMT -6)   

Kimber, you are absolutely right about hobbies helping to pass the down time, thank you for mentioning this! I am in the process of discovering some new interests. At some points my fatigue interferes with memory, concentration and word recall, and when I can’t follow a plot in a book or communicate clearly with the people around me (I sound drunk or drugged) I start to feel a bit down. Does this happen to anyone else? I’ve had several people suggest listening to audiobooks, and I think I will try this next time….ahhh….just close my eyes, and let someone else do the work. Thankfully, I am feeling better day by day, and have restored my “sunny” outlook on life  :-)  

 

Bonnie, thanks for the welcome. I’d love to share the secret of how I get my font bigger, but I had absolutely no idea that I was doing it, LOL. I hope I’m not shouting at everyone. When I look at my posts, the font looks the same as in every other post. Does the font in all my posts look bigger, or just the first one? Do other people see my font as extra large? The only thing I can think of, is maybe it is because I write my posts in Microsoft Word and then paste them in? I know Word has a lot of hidden formatting….You’ve got the former semi computer nerd in me curious now. If you are interested, let me know if all my posts are in big font, and if so, I’ll try just typing directly the reply field and see if that makes any difference.

 

Sunny


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/13/2007 1:04 PM (GMT -6)   
Sunny

Tha'ts what i was going to suggest to Bonnie...if u type u'r post up in Word first u can control the font and post as such. Most of the font/size selections u chose in Word will transfer here. Maybe try that Bonnie? If u need any help with this let me know as well and i'll see what i can figure out.

Sunny, don't be lonely. We're all here and can help pull u through the toughest of times if u want to lean on us. YES!! I can tell u for sure i have days where communication is at least a bit interrupted and i can imagine many here will say that at least. It can be challenging to try to talk thru the word recall probs and word train wreck probs, but just laugh and go with it. Don't let it get to u...after all..some of the things we say during those times are pretty funny ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 4/13/2007 1:23 PM (GMT -6)   

Hey Sunny,

I am sorry I didn't say "hi" sooner.  I have been out of town.  Welcome to the HW club.  We have loads of fun here.  I heard it through the grapevine that you also found chat.  Fun stuff huh!  I hope to see you there soon.  Stay away from Rhonda - she has worms.  Heheheheheeh ;)

Love and prayers,

 


Gretchen
 
diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 4/13/2007 2:23 PM (GMT -6)   
Yay,

you're back Crotchen!!!
We missed you.

Kas
Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/13/2007 2:28 PM (GMT -6)   
U GO KAS!!!!!! I"m so glad u said that!!!!   ...yes, we're glad u'r back CROTCHEN 'even if u do suffer from all sorts of issues'. ;)


rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Post Edited (rhondab) : 4/13/2007 2:45:23 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 4/13/2007 3:45 PM (GMT -6)   

Where is a moderator when you need one.  This is supposed to be a post to welcome Sunny.  You two (KAS and Rhonda) are up to no good.  Sunny, please stay and enjoy yourself - don't let a couple of knuckleheads keep you from enjoying your welcome messages.  Some of us are nice and can be very helpful. 

Love and prayers,

 


Gretchen
 
diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/13/2007 3:50 PM (GMT -6)   
CHOKING!!!...COUGHING!!!...GAGGING ON U"R KISS UP...nice try CROTCHEN!!!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 4/13/2007 4:03 PM (GMT -6)   
Sunny, books on tape is a fabulous idea!  I hope you find some interest you can enjoy and is fun! 
 
Welcome back Gretchen, I hope you had a good time with your trip!
 
Bonnie, if you use the latest version of IE, just go to tools, internet options, accessibility, and check "ignore font sizes specified on webpages and hit ok, that should make everything bigger for you.  If you use another browser shoot me an email and we'll try to figure out how to makes things bigger, there usually is a way!
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 4/17/2007 9:01 AM (GMT -6)   
thanks for your help Lorna. I'll have to check it out.
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