Looking for a referal in Chicago

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Cappy
Regular Member


Date Joined Apr 2007
Total Posts : 20
   Posted 4/13/2007 5:57 PM (GMT -6)   
Hi,
 I am a 26 year old female and have been having Ms-type symptoms. I am having a hard time finding a decent neurologist...does anyone happen you live in the chicago area have a good recommendation? Thanks

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/13/2007 6:37 PM (GMT -6)   
Hey Cappy!

Welcome to the board! I'm not sure we have anyone here from Chicgo, but u can visit the MS Society's site and see if they have one listd. This is a great site and full of wonderful people who're more than willing to answer any questions u may have. Please feel free to ask anything u'd like. We also have MS Chat on Monday's at 6:00pm (cst) and would love to have u join us. It's a great chance to get to know the others and get some real time answers to u'r questions. Hope to see u there! Again, welcome to the board!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Cappy
Regular Member


Date Joined Apr 2007
Total Posts : 20
   Posted 4/13/2007 7:02 PM (GMT -6)   
Thanks for your reply...about 3 weeks ago i started getting this tingling feeling like electrical sensations that woluld happen at various times in different areas of my body only lasting for a few secs to a few minutes usually i wouls just shake it off...but a few days later i was at home and it felt like my brain fell asleep so i went to er and then sent me home w xanax, then i got MRI from GP and it showed lesion in white matter but did not mention MS as a possible diagnoses, my dr says its probably nothing. since then i get these feelings like muscle quivering or fluttering in my calf and most recently at night when i am relaxed i get this feeling like i ma shivering inside, i get goosebumps and feel like i am vibrating or something. the tingling is still there but has gotten a little better. I went to a neoro and after he checked relfexes, strenth and shined a light in my eye he said i am okay...the lesion was probably artifact..and i asked him what r odds of artifact showing up on all my MRI's (2 w ans w.o contrast) and a CT? and he ignored me, said my symptoms are stress... i have good strength and no blurry vision...so i am so confused...any adivice...does this sound like ms?

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/13/2007 7:22 PM (GMT -6)   
Hey Cappy

Well u do seem to have some ms type symptoms, but the prob is that those same symptoms can be many other things as well. Since the doc didn't think it was ms, i'd prob relax a bit, but go forward with the second neuro. I forgot to put the link to the ms society's site in my last post, but i'll include it here. The thing with these symptoms is even if they can't dx u, they can usually give u help in bearing or controlling them as needed. Most often if they're not painful or don't disrupt u'r ability to function in daily life, they won't want to prescribe anything. But, if they are bothersome or painful u should definitely talk with u'r doc about it. Also, many times u don't need to wait to see u'r neuro for things like that. U"r reg doc can usually help u there. The best advice i could give u is to start a journal and keep up with u'r symptoms from the beginning up to now and add to it as things appear. U'll want to (as briefly as u can) note all the symptoms u experience and how they feel to u. How long they last and how severe they are. U'r doc will find this an excellent aid in knowing how u'r progressing. I do hope u'll do well and can find a good doc soon. Please keep asking questions and let us know how u progress.

www.nmss.org
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Cappy
Regular Member


Date Joined Apr 2007
Total Posts : 20
   Posted 4/13/2007 7:49 PM (GMT -6)   
Does anyone know how non-ms lesions are differentiated from ms lesions? Multiple white matter lesions were found but the report mentions nothing about demyleinating disease.?????

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 4/13/2007 8:40 PM (GMT -6)   
Hi Cappy -
Welcome to the board! Lesions are not always MS, lesions can be caused by any of the following.. migraine headaches, a head trauma, an old infection and of course, MS. There is something else too, but I can't remember it exactly right now. There are specific locations on your brain that the neuro looks for lesions in direct connection to MS, sometimes if you have a lesion that is not in that specific area neuro's don't think that much of it.

I have all of the symptoms you have, plus more and I have several lesions all over my brain in the white matter and deep white matter and somewhere else, again I apologize I can't remember exactly. I put it in one of these posts a couple months ago. My MRI dx's are possible demylenting (sp?) disease, with the numbness and tremor dx beside it. No MS dx as of yet, but I've got most of the symptoms, most of the sensory issues and lesions galore, going on 7 mos since my initial neuro visit, almost 2 years since the goofiness started. Good Luck on your journey. I hope it is NOT MS, but I also hope you get some type of answer and not just 'it's in your mind'. Keep on looking for that dx and hopefully the link that Rhonda gave you will get you into a neuro that will take you more seriously.

AH! I remembered what the other thing was!!  Stroke... ugh, it's time for me to go to bed. ;o)


I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 4/15/2007 9:45 PM (GMT -6)   
cappy- I am from Chicago... I have a great neurologist and I would be happy to give you his info. I don't want to post it (well I don't mind but I don't know if it is ok to?) can you email you? or you can email me, maybe admin would tell me hoe to give you my info privately..... that is if you want to see a neuro. I can tell you that he is with Northwest Neurology in Hoffman Estates.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/15/2007 10:17 PM (GMT -6)   
Hey Theresa!

If u want to, u can put u'r email in u'r profile. U just look at the top of this page on the thin, blue bar and find "Control Panel". Click it. Go into "edit profile" and scroll down to where it allows u to add in u'r email address. Once u've done that look just below there and click 'show my email address'. That allows the little envelope icon just below ur name (as it's shown here) to be active. Once u've done that any member can click on the envelope icon and get u'r address. If u'd like, u can remove this info once the exchange is made. I hope this is clear and it helps. Please feel free to email any of the mods if u need any help!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Cappy
Regular Member


Date Joined Apr 2007
Total Posts : 20
   Posted 4/16/2007 6:29 AM (GMT -6)   
Hi,
I changed the info in my profile... you get email me from there. Thank you so much for the help as i seem to be getting nowhere w these docs lately!
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