To Walk or Not to Walk

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photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 4/19/2007 9:05 PM (GMT -6)   
Hi guys,
 
For the past few weeks my legs have been aching off and on when I do more than usual in a day.  This was only happening at night.  Feels like a toothache in my knees or calves... seems to switch between the two.  The fact that Advil and Tylenol don't help suggests it is MS related to me, is it spascity?
 
Anyway, I signed up for the Supercities Walk for MS coming up this Sunday, I chose the 2km walk being the shortest one.  Because of this I thought I should get out there and try 1km and see how I do.  Good news is it was pretty easy, bad news was 2 days later my legs were killing me.  I thought, well, maybe I need to walk some more to stretch them out.... so that night I walked 1/2 km.  Well, yesterday the day after, they ached ALL DAY long at work, and my right arm which gets used a lot at work decided to join the club and ache too.
 
My question is, is exercise good or bad for this?  It's not like it was the first time I've walked in months or anything, I just seem to be reacting to it right now and am getting frustrated.  I am going to do the MS Walk and hope for the best, I can always just do 1km.  I asked the nurse at the MS clinic about taking something for this pain as needed, she said since you take Clonazepam occassionally, try that.  I did last night and it dulled the ache somewhat, but was still a restless sleep.  If I can avoid bringing on the pain I'd rather do that than commit to a new drug, but I'll see how it goes.
 
If it's spasicity, and it's new, is that a symptom of a new relapse?  Is this the kind of thing that is going to leave me needing assistance with walking eventually?  I hope this isn't the start of a bad turn....
 
Thanks guys,
 
Shar  
 
 
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/19/2007 9:14 PM (GMT -6)   
Hey Shar!

Well there is something funny going on with u'r legs now that's a direct result of ur ms....u'r nerves aren't able to keep up with u'r will. In other words, u nerves aren't able to send messages to the muscles in ways appropiate to keep them working as they should. As a result, ur muscles are having to work hard to keep up with the work out u'r giving them. That said, i wouldn't walk in the MS Walk. Here are a couple of other options. Use a wheelchair. It'll give u a way to keep u'r word...make the walk...and participate in something so valuable to us all. Or, u can have someone walk in u'r stead. An honorary "Shar" ;) I"m sorry, not able to answer the rest of u'r questions tonight, but i know others will be along soon to help. Please take good care of u'rself and reconsider the walk. U'r health is so important and putting stress on ur'self may lead u to a flare. Take good care friend!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 4/20/2007 1:04 AM (GMT -6)   
Hi Shar,

I found your post really interesting....thanks for writing it! I also get his aching that you're talking about. I find it hard to explain to others...except to say it feels like "tooth ache". Like yours, mine seems to switch areas, and comes off and on in an instant.....initially this was the only way I new it wasn't a bone or muscle type injury. For me I haven't ever thought of it as spasticity....but having said that I have recently started getting that "squeezing" feeling in the same leg?????

I admire you for wanting to get out and do this walk....I guess it's just a weigh up of how strongly you feel about doing it, and how the consequences of the walk will affect you (pain wise). I'm sure that no-one will think any less of you if you pull out!

your question about excercise being good or bad is one I keep asking myself too......I'm looking forward to reading others ideas on your questions!

Let us know what you end up doing.

Take care
KAS
Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 4/20/2007 7:54 AM (GMT -6)   

There shouldn't be any long-term effects to your walking the distance, if you choose. But you will likely feel the pain afterwards, and maybe for several days.

As Rhonda said, it's not a matter of your muscles being weak -- it's the nerve signals not getting through properly, so they're having to overcompensate -- overwork --to achieve the same goal, the distance you want to walk.

Generally at those MS walk things, if you tell them before you start that you have MS, there's somebody willing to sort of keep watch, and if you do find yourself unable to continue, they'll come "rescue" you, with either a wheelchair so you can continue, or drop out.

It does sound like spasticity, and yes, that and an overall worsening of MS, progression, is what leads at least some of us into a wheelchair full time.  My leg muscles haven't atrophied (shrunk) -- they just don't get signals from my brain anymore, sufficient to hold me up for more than a few seconds (I stand in front of my chair), or a step or two to transfer to another chair.

Good luck with the walk, and thanks for doing it!

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 4/20/2007 10:57 AM (GMT -6)   
Friday noon
 
Very good afternoon:
 
Aside from marrying my beyond X 100 wonderful wife, getting involved with The Heuga Center, headquartered in Colorado-, was the greatest.
 
http://www.Heuga.org was the best thing I have done.
 
It is a 4 &1/2 day program which stresses mild exercise, nutrition and all else trhat is MS.
 
It is no special location (in fact they bring the program to cities across the US) it is more of a philosopy of dealing with our MS.
 
I think ecveryone would REALLY like it.  John

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 4/20/2007 11:44 AM (GMT -6)   
Hi Shar,
I am doing the local 3 mile MS walk tomorrow with my family.  I was told they have folks watching and if you can't make it they will take you back. 
 
I have spasms/spasticity in my right foot and into the leg sometimes.  I used to take Baclofen 3x a day but with all my constipation problems I quit taking it.  I now take klonopin at night, it helps me sleep and it relieves the pain enough to sleep.
 
I really hope to make it thru the whole walk...I will feel much accomplishment! 
Take care, I hope you find relief soon. :-)
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 4/20/2007 12:44 PM (GMT -6)   
Thank you Rhonda and Uppity, what you said makes sense.  Because it's a nerve thing, does this mean physiotherapy wouldn't help?  Should I keep going for walks, just shorter?
 
Kas you're right, no one will think less of me if I don't do the walk.  I think I just don't want to admit that maybe I can't/shouldn't.  If 2km is a problem, where does that leave me kinda thing....
 
John, I'm glad you found that program worthwhile... maybe they have something similar up here in Canada...
 
Michelle.... good for you for getting out there!  Please let us know how it goes and I hope it's a good time.
 
Apparently they have lots of rest stops during the walk with fruit and water, so I'll be sure to take advantage of those.  I have never been in a wheelchair and am so not ready for one.  I figured it would be years away, if ever, and I hope it still is.  eyes   It could be, right?  Maybe this is just a flare?
 
Shar
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 4/20/2007 1:20 PM (GMT -6)   
Shar,
I forgot to say that exercise is important with MS.  You just have to find the right one for you and don't overdue.  A recumbant bike is great, that is what I use at home.
 
If you are having balance/gait issues ask your neuro about going to a physical therapist, they can help very much.  Spasms/spasticity can sometimes be a sign of a bladder infection, you might check that.  Also, they can just come on for no apparent reason.  Mine started ubruptly and never left!  If you can tolerate the baclofen it is a great chioce.
 
Take care.  If you are not up to the ms walk then don't feel bad, maybe next year! :-)
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???


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