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momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 4/25/2007 1:56 PM (GMT -6)   
Hi everyone, well I am still in flare.  Actually went to my internist because of a pain in my shoulder blade and heart palpitations to find out the Solumedrol will cause the heart palpitations, and the pain in my shoulder is from my muscles being in total spasm.  I have 10 mg Baclofen to take as needed with permission to increase for relief.  Here is my question, if I take 2 at night it knocks me out.  I took one at 7am, can I take another around 2 or 3pm, then 2 at night?  My neuro said some of her patients take as much as 80mg for relief, I'd probably sleep until Tuesday, and I have an 11 and 15 year old, that wouldn't work.  I am in so much pain from the spasms, dizzy and nauseas from the Solumedrol and just plain crabby.  So to complain.  Any help would be appreciated.
 
Debbie confused

BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 4/25/2007 2:11 PM (GMT -6)   
Mom,

Complain all you want that is what we are here for!

I would recommend calling your doc and asking your question. I would hate to tell you that it is ok and then you find out something horrible happened!

I understand needing to be there for your kids, I have 3 little ones!

Take care and let us know what your doc says.

Lysha
Undiagnosed

Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06


When everything's coming your way, you're in the wrong lane.


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 4/25/2007 2:31 PM (GMT -6)   
I have a call out to my neuro, I'm just impatitent and in pain. I think because this flare started Saturday, and was my worse one yet, I am just fed up with this whole disease. Plus I got new symptoms such as a shivering sensation as a muscle spasm (hope that explains the feeling) and facial numbness, so I'm scared it is getting worse.

Thanks for being there.

Debbie

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/25/2007 3:20 PM (GMT -6)   
Hey Debbie!

Boy, i understand u'r situation...i have three young kids at home too...but u really have to be careful here. Please try to wait on the call back from u'r neuro or possibly call again. Maybe even call u'r pharmacist...but don't try rearranging u'r dosage without proper consult. That can be dangerous to u. Take care and let us know how u'r doing. I"m so sorry u'r in pain and i really hope it'll ease up very soon.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 4/25/2007 3:24 PM (GMT -6)   
I am so sorry to hear about this flare!! How long has it been since you had an exacerbation?

I imagine it is scary and frustrating!! I know I always feel frustrated when I can look back and know that just a couple of weeks ago I had more energy.

Do you have the energy to do anything to keep your mind off of the symptoms? I have taught myself how to play the piano and I quilt. I also will play monopoly with the kids because it doesn't take much energy to sit there!

I hope you start to feel better soon!

Lysha
Undiagnosed

Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06


When everything's coming your way, you're in the wrong lane.


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 4/25/2007 3:46 PM (GMT -6)   
Certainly call your neuro before taking the meds. And ask if the combination of baclofen and Solumedrol is adding to the nausea. There might be something else he could prescribe that would be more helpful, with less drug interaction. Your kids, at 11 and 15, should be relatively self-sufficient. Maybe it's time for them to step up and understand that "mom is sick, isn't going to get better, and they'd better learn a few survival skills for those times when Mom can't manage...and help Mom, too!" You're likely going to continue to have exacerbations, and there will be times when you really CAN'T manage..and they'll have to. May as well start now.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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