No test results....very frustrating!

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KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 5/2/2007 4:49 AM (GMT -6)   
Hi everyone,
 
I am so frustrated, and feel like I need to vent to people who "get it"! 
 
 I have waited for over four months to have an VEP test done....finally I got it on the 4th of this month.  Before I had it done I was told that the results would be back within the week.  Then at the test I was told to expect a two to three week wait.  After almost a month I called to hurry the process along.....and was laughed at....the woman said that I could not realistically expect my results now...she said they would take "months".  She explained that they had only one person who can report on the results, and they only worked part time!
 
I understand that finances and resources are limited.....but surely this is unreasonable?????  I felt that at least the woman I spoke to could have been a wee bit understanding....instead of making me out to be an idiot!!!
 
I'm not expecting any of you to be able to help me with this....but kinda needed to get the frustration out!!!
 
Thanks for "listening"!
 
KAS
Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 5/2/2007 6:32 AM (GMT -6)   
Sorry to hear about that Kas! I understand your frustration on the anxiety of finding out what it going on.

Months seems a tad long, hopefully it's not months and only a few more weeks. I wouldn't give up calling though, give them a week or two and try again. I hope everything comes out OK.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/2/2007 7:38 AM (GMT -6)   
Try calling your neuro directly, and ask him to call. Doctors can usually get other doctors to move faster than patients can!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3529
   Posted 5/2/2007 7:47 AM (GMT -6)   

Oh KAS,

How disappointing!!!!  You want for me to come down there and kick some a**???  I will!!!!  And it would only hurt them as my leg is still numb. I think I could convince Rhindi to go with me a take a couple of swings as well.  We have so got your back, girl. 

Seriously, don't let some nut make you feel bad because you want results.  They don't understand this disease and the anxiety it can cause.  We all care very much for you and are happy to support you, so vent away!  We all love you and want you to get the answers you need.  Hang in there and fight for yourself!  You are worth it.

Love and prayers,

 


Gretchen
 
diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/2/2007 9:21 AM (GMT -6)   
Awwww Kas!!! That stinks!! I agree, the lady on the phone could've been nicer and more understanding. I think we assume that since they work in a doc's office SURELY they understand someone being ill and needing answers...but seems we give them too much credit sometimes. :( Like the gritch says, don't let someone like her make u feel bad. Push on to get those answers. The squeaky wheel and all! Keep calling and make it an appt for u...each day. ;) This has gone on way too long. I'm not sure of the 'norms' there in NZ, but even if it is normal for things to take a long time, this seems to be just a little drastic. Follow Uppity's advice too..call the neuro. Surely they have recieved a report of some sort or can get those results faster for u. It's all worth the effort and time to get the answers u need..and they need to spend the time and get them! YES!!!!! We all do understand u'r frustrations and welcome u'r venting..we all have to do it as we go thru this whole affair. Vent as u want and we'll be right here to prop u up friend. If all else fails...the gritch and i will come beat 'em up for u boss. ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/2/2007 9:31 AM (GMT -6)   

KAS~I'm so sorry they were so rude!  I think Uppity is right, call your neuro directly, he should be getting the results for you anyway.

Hang in there!  Take care.


Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/2/2007 3:26 PM (GMT -6)   
Hi Kas,
 
    I don't blame you at all for being upset about this.  I do hope you hear something soon, months is entirely unreasonable.  Maybe your doc, as others have said, can help speed things along.  Let us know when you find out anything.
 
 
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 5/2/2007 4:36 PM (GMT -6)   
Hi guys,

thank you all so much for your thouhgts and advice.......much appreciated!

Will let you know how I get on!

KAS
Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 6/25/2007 10:20 PM (GMT -6)   
Hi all,

thought i'd let you know that i finally got my results today. Turns out that my right eye is fine, but there is a significant delay in the left....."suggestive of demylination".

To be honest I'm really glad that it's a bad result......I knew there was an issue, I'm just glad that it's now visable to the doctors.

Back to the neuro, still probably not enough evidence for a diagnosis, but at least it's another piece to the puzzle!

thanks for your support while I waited!

KAS
Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3529
   Posted 6/26/2007 8:08 AM (GMT -6)   

Hey KAS,

Have I told you lately that I love you?  You are so great.  You wait somewhat patiently for your test results and then you are happy when the tests show a problem.  God bless you girl.  You see the good in everything.  You even see the good in having friends like Rhonda and that takes real vision.  No pun intended.  Thanks for your great posts and all the fun you bring to chat.  Hang in there girl.  You are right, it is another piece to the puzzle and now go get after those doctors. 

love and prayers,

 


Gretchen
diagnosed: MS  July 2006
 
Life shrinks or expands in proportion to one's courage. 
Anais Nin
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/26/2007 9:34 AM (GMT -6)   
Hey Kas!!

Gosh...u have proof! That feels so good. U already knew something was going on and now u can prove it to u'r neuro. That will be so helpful. Maybe not a dx now as u said, but at least more to the pic and closer to that dx. I'm so happy for u! As for Gretchet, i wouldn't keep company with the likes of her...u know she has this thing for people with worms...she'll only bring u down. Just say thank u to her and walk away. hahaha I am so glad u've come this much closer to a dx and u know i'm here in u'r corner friend. Hang tough and get that neuro on this soon! Let us know how that appt goes!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 6/26/2007 11:10 AM (GMT -6)   

Kas,

 

I’m so glad you finally got your results back! Wow, what a long wait. I can totally understand your relief at having additional clinical evidence so the docs can see what’s going on.  I hope you are able to get an appointment with your neuro soon (this isn’t another of those 3-4 month waiting periods, is it?) and hopefully get some answers.

 

Take care, and let us know how your neuro visit goes.

Sunny

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/26/2007 3:26 PM (GMT -6)   
Hi Kas,
 
    You have such a good way of looking at things, and although your exam was not such good news at least you have some verification that the doctors are heading in the right direction with your dx.  I hope you get into the neuro soon, and please keep letting us know how you are!
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 6/28/2007 5:26 AM (GMT -6)   
Hi Kas!

I too am glad that YOU are OK with the results. Hang in there, answers will come. Is your neuro an MS spec? I can't remember. Could you ask to be referred to an MS spec now that you have this result and see what he/she says about possible MS dx? Then you could possibly be put on some type of treatment...
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 6/28/2007 3:37 PM (GMT -6)   

Hi all,

 

thnks heaps for your replies.....nice to have people who understand the results, and what they mean.

 

Denda: wish it was an MS specialist.  We only have about 10 neuros in the country.....so they pretty much deal with everything.  He seems pretty up with the play though....he's involved in a few trials, so hope to talk to him about that.

 

Cheers

KAS

 

 


Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!

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