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momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 5/4/2007 1:36 PM (GMT -6)   
I hope I can find more advice.  You have all been helpful as I go through my latest flare.  After finishing the solumedrol pack, I still was nauseas and dizzy - guess its vertigo from the MS and I am trying to wait it out.
 
Today, instead of the electrical shocks in my spine that shoot out, I have a constant burning up and down my spinal column.  It is very uncomfortable and new to me.  Any advice other that applying heat?
 
Thanks in advance, I am so glad I found this site.
 
Debbie

webuser
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 5/5/2007 12:44 AM (GMT -6)   
hello momofltlbrat
I too suffered from really bad burning, mine was across the left side of my forehead and was one of the worse pains I have ever had. It was with me pretty much 24 hours a day for a few weeks. This was whilst I was waiting for my initial neuro appointment. When she said to me that she could give me something to ease it I could have kissed her. She prescribed Endep (1 per day for 2 weeks and then 2 per day). She wants me to continue them for six months. It was about three days before I gained any relief but when they kicked in I felt so much better. They made me really drowsy and this lasted for a couple of weeks but now that has lifted and I don't have the burning YEY !!!
Hope you gain some relief soon.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/5/2007 7:24 AM (GMT -6)   
Hey Mom

Hahaha...that sounded funny! I've considered posting here as per my experience with spine pain, but felt it was too unrelated sounding. Since then reconsidered and I think i'll just throw this out there and maybe it'll find it's way to somehow be beneficial to u or others.

The absolute first prob i had...that was obvious to me...was spine pain. I did tons of searching...scoliosis, etc...to find the cause of it. Finally decided that i needed to see a doc. My doc..internal med doc, not my neuro... didn't ever discover the cause of the pain, but it finally went away. It returns from time to time. It's not the burning u speak of. It's a very tender soreness. So tender that i cannot lean back on it. Can't touch it and can't lay down on my back in bed. THANK GOODNESS that went away! I can't find any correlation to it and ms or any other neurological issue. Seems pretty odd to me. My thinking is this...pain, burning and all those other funky sensations can certainly come from 'something neurological'...so maybe there is a connection. I'm sorry, i'm wasting u'r thread space, but just thought i'd throw this out there and at least let people know there may be the possibility in case they too have felt something like this. I do hope u'r pain gets better! U've been thru quite a lot and u need and deserve the break!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 5/5/2007 10:26 AM (GMT -6)   
Gosh, it's great to be able to speak of these odd things that happen to us without worrying about someone laughing. Thanks for allowing me to feel "normal". I gave up on the heat pad and applied ice packs which helped a little more and didn't make me sweat. It was 90 degrees here yesterday. I'll add this to my notebook to take to the next neuro appt. Thanks to all of you on this site.

Debbie

Gizzmoe
New Member


Date Joined Mar 2007
Total Posts : 15
   Posted 5/5/2007 12:03 PM (GMT -6)   
I have been having back and spinal pain.  That is one of the reasons I am getting a spinal mri on monday of my c-t spine area.  My general doc is checking for lesions in that area in hopes of finding MS.  If not its off to another neuro who will figure out what is wrong rather then just wanting to treat the symptoms.

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 5/5/2007 6:55 PM (GMT -6)   
Hi Mom!

That DOES sound funny! ;o) I have burning down the right back side of my neck, into my upper back and down my arm, I always thought it was 'something else' not related to the (MS?) aching I get normally, but since I've been on neurontin, the burning has almost subsided completely, I still notice it once in a while when I, like you, get the electrical shocks down my arms and back and into my butt, but I don't feel it hardly ever now. I guess it still could be something else, but the neurontin is taking care of it so we'll see how the spinals come out in the next couple of weeks, if something shows up either as lesions or something else going on in that area.

Hang in there!
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/5/2007 8:41 PM (GMT -6)   
Hi Debbie aka Mom tongue
 
    Ooooh the burning, I hope you get some relief soon!  You can ask about meds, some people find elavil, neurontin, or lyrica effective.  High temperatures and overexertion can sometimes make the burning worse. You mentioned it's hot where you live right now, that might be a factor.  I hope you are able to stay out of the heat as much as you can and take advantage of air conditioning as much as possible.  Glad you found the ice helpful!!  It's weird how it can change the sensation. 
 
Co-moderator for Multiple Sclerosis
 
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momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 5/6/2007 9:14 AM (GMT -6)   
Thanks for all the encouragement and advice. The ice packs are helping, just wish I had one long enough to go down the whole spine.
take care all.

Debbie
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