pain management

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angielov
Regular Member


Date Joined Feb 2007
Total Posts : 58
   Posted 5/5/2007 9:29 PM (GMT -6)   
Question for you all:

I am still undergoing the diagnosis process. Actual aching pain has never been a big issue for me. It will happen for a day or two every couple of months. This week it's been going on about 4 or 5 days and I feel like my body has been worked over like tenderized meat. Mostly my legs. I've been taking ibuprofen and it's helping a little.

What kind of experience with pain do you all have and what have you used to treat it? Especially you who have not been diagnosed?

also, does the timing of pain correspond with anything else, like: doing too much, exhaustion, the beginning or end of a flare, certain foods?? etc...

BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 5/5/2007 11:30 PM (GMT -6)   
angielov,

My muscles ache quiet a bit. Anything extra I do makes it worse. When I brush my hair my arms burn, if I stand too long or walk any distance my legs will itch and this is along with the constant achy muscles. On the days that it's REALLY bad I take a lot of aleeve, ibuprofen, and anything else I might have. I have even taken 3-5 benadryl because it makes me so sleepy that I will sleep through it.

I don't recommend doing any of these things!! I am just being honest about what I have done. I don't have really bad days all that often any more. I just figure this is my normal now, I better deal with it.

It was so bad one day that I called my nurse to find out how much aleeve, ibuprofen and darvoset I could take. I was surprised at how much I really could take! It was a large amount but at least I was able to make it through the day. I normally HATE taking meds! I have only ever asked my neuro for provigil, everything else I try to deal with. I only take the provigil when I really really need it. I am on an IBS med right now, when I remember to take it.

I have noticed that some of my symptoms are worse around my period. My fatigue gets worse when I am in the heat and my personality goes grumpy. Other than that I haven't noticed any other corresponding times.

I wish you luck and I will interested in what others have to say.

Lysha
Undiagnosed

Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06


When everything's coming your way, you're in the wrong lane.


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/6/2007 5:42 AM (GMT -6)   
angielov said...
Question for you all:

I am still undergoing the diagnosis process. Actual aching pain has never been a big issue for me. It will happen for a day or two every couple of months. This week it's been going on about 4 or 5 days and I feel like my body has been worked over like tenderized meat. Mostly my legs. I've been taking ibuprofen and it's helping a little.

What kind of experience with pain do you all have and what have you used to treat it? Especially you who have not been diagnosed?

also, does the timing of pain correspond with anything else, like: doing too much, exhaustion, the beginning or end of a flare, certain foods?? etc...
Maybe you're experiencing spasticity? That feels like a cramping "tight" feeling in your legs, particularly in your calf muscles?  The meds used to treat that aren't specific to MS...meaning, if you tell your doctor about it, he can prescribe something to help with it. Many folks here use baclofen, but there are other meds too.
 
Many MS symptoms (and symptoms of other chronic illnesses) can worsen or at least seem worse when you're also exhausted, overtired, stressed. Many women with MS experience increased MS related symptoms right before their period.
 
If your pain is in association with some food, you might think about an allergy -- allergies are also autoimmune in nature, and there might be some link there to consider, especially since you're not diagnosed.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 5/6/2007 6:39 AM (GMT -6)   
Hi Angielov -

I'm not dx'd yet and for the last 2 months I have had the achiness w/instantaneously (sp?) sharp pains. My arms burn when doing my hair just like bgd2me and my legs burn when I'm walking too much which seems from the kitchen to the couch will set it off. ;o) My Neuro put me on neurontin. That has helped a ton! She started me out on 100 mg 3X day and told me I could bump it up to 300 mg 3X day if the 100 doesn't get it. (Comes in 100mg capsules). I started a little over a week ago and within about 3 days knew the 100mg wasn't going to help, so I've bumped up to 200mg 3X day and that seems to take the edge off and not make me sleepy. I still have a little bit of the achiness, but I feel worse when I have been sitting for too long or done too much (interesting combo, aye?), I need to find that perfect medium... As for now everything is much better with the neurontin. Ask your doc for it, I honestly don't know the cost, my script coverage paid for most of it and I only paid $4.00. So it must not be too much... Hope this helps.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 5/6/2007 10:20 PM (GMT -6)   
Hi there,

I too am not dx.

I get a lot of aching pain.....I can only really describe it by comparing it to tooth ache. It is mainly in my right leg and left arm, but randomly in ohter areas too.

I only really use panadol for mine.....someimtes it helps, and other times not.

I hope you find some help for your pain.

KAS
Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!


angielov
Regular Member


Date Joined Feb 2007
Total Posts : 58
   Posted 5/7/2007 9:25 PM (GMT -6)   
thank you to all who replied. I don't know why I am anxious about contacting my doctors about it. I think I feel like they will not prescribe me anything because I don't have a diagnosis yet. That must sound strange, but it is frustrating to keep hearing "let's see how it goes" and "we'll see you in a month."

I understand them needing the "tangibles" so that's it's not just something that I am reporting - but in the mean time - my mri shows lesions all over my brain. Isn't that enough?

Maybe I'm not being agressive enough.

and to respond to something Uppity CAts said in a previous post:
"If you have a disorder and don't treat it, you're denying that you have a problem, suggesting that perhaps it's a "personal weakness" and somehow you'll get through it, or will "get over your laziness", or somehow "work through it"."

I think I may be getting caught up in a little of that thinking - but it doesn't help when the doctors don't seem to have an identifiable diagnosis to treat. I went off of the medication for my narcolepsy-like sleep disorder that I've been on for almost ten years becasue the neuro said that it could be part of the problem with the "brain fog" that I am experiencing. WEll, I've been off of it now for over a month and the only change is that now I am only functional about 6 hours out of the day and am too tired and in too much pain for more.

Sorry to be a whiner - really don't want to be. I will start a new topic asking what is the best way to deal with docs. until a diagnosis is given.

Thanks to all who replied, very helpful and I appreciate knowing that I am not alone - although I wish you all didn't have to experience it either!!
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