I’m sorry to hear that you are having such problems getting a diagnosis, and even any symptom meds. What does your neuro say caused your lesions? Have you seen what is says on the MRI report? Have you gotten a second, or even third opinion? I experienced quite a bit of the “hmmm…..come back in 3 months” phenomenon as well, and I had pretty much given up and decided to stay away from docs in general. My last ditch run was a trip to the Mayo Clinic, and this where I finally got some answers (i.e. what is that thing in my head, lol) and also found a doctor willing to prescribe some symptom meds for me. I don’t know what your situation is with insurance, finances, geographic location etc, but maybe this could be a route you could take? Ten plus lesions would probably give them something concrete to work with. Not only are their docs and radiologists excellent and very friendly, they also test for pretty much everything under the sun (they initially took 11 vials of blood, and then I had to go back for more…what vampires), so if you have some rare disease they are more likely to find it.
Best of luck to you, and feel free to email me if you want any additional information on the Mayo Clinic (there are actually 3 of them).
Hang in there Angie! It really does seem like dealing with doctors is often a hurry up and wait experience. It sounds like you do have good docs who are pursuing a diagnosis though….it is just such a drag that that the testing process has to take so long, huh, especially when you are not feeling well. And of course the thing with the Mayo Clinic is that it takes months to get an appointment there too…lol…..Anyway, just hang tough, it will happen.