Transverse Myelitis - scared

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photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 5/17/2007 12:57 AM (GMT -6)   
Hi Guys,
 
I had a bout of this a year ago when I was first diagnosed, and hoped that would be it.  A few days ago my left foot went numb, then my leg... the next day my right leg went numb, now I'm pretty much numb and tingly from the waist down. 
 
I'm scared I will wake up and not be able to walk.  I called the nurse at my MS clinic, she said call back if I can't walk and we'll do the steroids, unless that happens they are just too toxic and are a last resort.  She said the first line of defense is rest, which I am, but it gives me lots of time to worry.... argh.  This combined with the dizziness and spasticity aren't making me feel very good about my prognosis at all.  I'm hoping for an MRI to see what the Betaseron is doing, if anything.
 
sorry to be a bummer
 
Shar 
 
 
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 5/17/2007 6:50 AM (GMT -6)   
Sorry to hear about what's going on with you Shar! It is very hard to 'rest', because to me... resting is w/o worry. You can sit or lay down all day, but if you are worrying that whole time, you're even more exhausted. Please try not to worry, try to take your mind off it (hobby, good book, good tv marathon going on?) I know it's easy for me to give this advice, I'm not the one going through it right now. But hang in there and maybe find some good vacation sites on the Interent and start learning about where you want to take your next dream vacation... Get all the details, fun stuff like that. I seem to get lost when I start on that type of fun work.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/17/2007 7:01 AM (GMT -6)   
Shar,
I's sorry you are going thru such a rough patch...hUGS!  Does your doc have you on Baclofen for the spasticity or any thing for the dizziness?  They should be able to keep you fairly comfortable.  If you're not on any other drugs ask them about them!
 
I hope you begin to reocver soon.
 
Take care. :-)
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/17/2007 8:04 AM (GMT -6)   
Sounds pretty typically a small MS flare. I hope it passes soon. I've been numb and tingly from midchest to torso since my diagnosis, 24 years ago. I've gotten used to it, over time.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 5/17/2007 4:00 PM (GMT -6)   

Thanks Denda, you are right... I need some fun distractions.  I think I'll research some more on getting married in Vegas, then shop on eBay :-)

HUGS to you too Michelle, thanks.  I have an appt with my neuro finally on the 25th and am going to ask about the Baclofen and find out about the dizziness.

uppitycats said...
Sounds pretty typically a small MS flare. I hope it passes soon. I've been numb and tingly from midchest to torso since my diagnosis, 24 years ago. I've gotten used to it, over time.

Wow, Uppity... 24 years of numbness.  You were the first person I thought about as this new bout started.  Not having had MS for long, this felt like a major relapse, but you calling it a small flare made me feel better!!  Is it really minor?  Do you have any idea whether it typically worsens to temporary paralysis, or if it is sensory to start with, does it pretty much stay that way?
 
Thanks!!
 
Shar
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/17/2007 4:14 PM (GMT -6)   
The sensory stuff usually is just that -- sensory. It doesn't "progress" into inability to walk, for example. That's caused by a more serious flare of the nerve signals from brain to legs...not brain to skin, the sensory stuff.

That's not to say, of course, that you could not be in the beginnings of a major flare....that the sensory stuff is a sort of precursor to other things coming. But more often it just is an annoying and sometimes painful "reminder" that your nervous system isn't working right.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 5/17/2007 9:43 PM (GMT -6)   

Uppity- thank you, thank you, thank you!

It's been about 4 days of numbness so I'm hopeful that is all it will be...yay! 

So far bowels and bladder seem to be fine, even though I can't feel those areas.  I must say it's a weird feeling! 

I think I'll take a day or two off of work.

Shar

 


Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/18/2007 10:38 AM (GMT -6)   
Hey Shar!

I'm sorry, jumping in here a bit late. How are u feeling lately?? Is any of this any better?? I know how tough this can be...i know it's scary too. Hang in there tho...and we'll all pray it's just a small reminder of the ms and doesn't go into a full blown flare. Good idea too..take some time off and spend it on ...ummm..let me think...U!!!! Enjoy u'rself for awhile and just be a girl! Take good care and let us know how u are friend.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

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