feel like I'm being squeezed

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momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 5/17/2007 10:38 AM (GMT -6)   
Hi everyone.  I am so glad I joined this board I have gotten so much helpful information, and compassion from everyone.
 
New problem for me.  Let me start by saying my dx has gone from lupus, to fibro, and now MS.  docs think it may have been MS all along (started with joint pain, low grade fever, covered with large raised welts in Dec '88), but I also have fibro.  sometimes I don't know which dx my symptoms go with.  Last night after I finally got to sit down, by legs, then arms, then body just ached and ached.  Today I hurt all over and standing, even doing my hair made it hurt all the more.  I feel sore and compressed like an ace bandage is wrapped around me a little too tight.  Anybody ever experience this?  Any advice other than the typical warm bath and ibuprofin?
 
Thanks,
Debbie

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/17/2007 10:44 AM (GMT -6)   
Hi Debbie,
The squeeze you refer to sounds like what some call an "MS hug". It can be quite uncomfortable.  You are probably having spasms.  You probably should call your neuro and let them know.  Ask about a medication for the spasms...maybe baclofen.
 
Having more than one illness is hard, it does complicate things...I have lupus and ms.  I have to weed thru my symptoms and nkow which ones usually go with what.
 
Hang in there.  Let us know how you are.  Take care.
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/17/2007 11:36 AM (GMT -6)   
Shelly is right on....and if it IS the "MS hug"...a warm bath will cause you more discomfort, not less. Heat, humidity and MS don't go together very well.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 5/17/2007 3:07 PM (GMT -6)   
Thanks for the responses. I don't like the "MS hug" very much, but now I know what it is and to stay out of the bathtub. That was always my answer for the fibro pain, but I'm learning MS reacts differently. Tough to stay cool where I live the temp is in the high 90's, thank goodness for air conditioning. would a dip in the pool help?

Debbie

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/17/2007 4:38 PM (GMT -6)   
momofltlbrat said...
Thanks for the responses. I don't like the "MS hug" very much, but now I know what it is and to stay out of the bathtub. That was always my answer for the fibro pain, but I'm learning MS reacts differently. Tough to stay cool where I live the temp is in the high 90's, thank goodness for air conditioning. would a dip in the pool help?

Debbie
Dip in the pool...if the water is cool, and you get in out of the heat....
 
Yes, air conditioning is a wonderful thing.  I don't know what I'd do without it. Sounds like you live in a really hot climate?  I moved away from Georgia precisely because of the heat/humidity issues.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/17/2007 7:10 PM (GMT -6)   
Hi Debbie,
 
    Have you ever tried any of the muscle relaxants for fibro?  Some of the meds for MS spasticity are also prescribed for fibro pain.  Just thought I'd mention it because just maybe you could get relief in both areas.   
 
Co-moderator for Multiple Sclerosis
 
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Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 5/17/2007 8:04 PM (GMT -6)   
hi Debbie,
I have to tell you, my body feels the same exact way. Before i was dx'd, and i was going to doctor after doctor, one of my main complaints was that my left foot felt like someone is squeezing it, and weakness. Some times i feel the squeeze around my stomach area too. It is the weirdest feeling . I completely understand. I take Baclophen and it really seems to work for me. At first my neuro gave me i think xanaflex or something like that, however it gave me real bad headaches. He then gave me the baclofen, and it works like a charm. You should really ask for something, why suffer, thats for the birds. I dont like to put any more meds in my body thaan i have to, but i got sick of suffering, you know? No need for it. We have enough on our minds, dont you think!
I hope you find a solution, good luck and take care
Lynn
Dx Dec 06, Rebif,44mcgs 3 x wk, Baclofen


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 5/17/2007 10:16 PM (GMT -6)   
Thanks everybody for your advice. I do have baclofen and take 20mg before bed and sleep really well, so during the day I will take 10mg on a really bad day, but it doesn't seem enough, and I have two kids I need to be driving to and from school and activities so I am afraid to take more.

It's great to share this with people that understand. I say this to friends and family and look at me like they are ready to get me a straight jacket.

debbie

littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 5/18/2007 12:32 AM (GMT -6)   
Ya know, I have never heard this referred to as an "MS Hug" before. The word 'hug' makes me laugh, it makes it sound so gentle. Hahaha, some hug!

I'd get this around my chest and torso area and it felt like my bra was on waaaaaay too tight, even if I wasn't wearing one. I'd also get it around my upper arms, like you say Debbie, feels like an ace bandage.

I never found anything that helped with this, although admittedly I didn't try much. This happened back when I was a novice at this whole MS thing. I feel like an old hat at this now, and it's only been 6 months. Although when push comes to shove, one can learn a whole lot in just 6 months!

I sincerely hope you can find something that works for you.
Good thoughts comin' your way!
~Niki
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