Need Some Advice plese...

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TurtleGirl68
New Member


Date Joined May 2007
Total Posts : 15
   Posted 5/22/2007 11:42 AM (GMT -6)   
I am a 24 year old female and have been experiencing some weird symptoms lately.  The first thing that happened was my face wnet numb along with this weird feeling that I was outside of my own body.  It went away in about three hours so I just shrugged it off.
 
about a week and a half later, my face went numb again, so I went to the ER.  WHile I was there I started having that tingling, pins and needles feeling in my right arm.  They did a CT scan and blood work, said everything was fine and it was probably just Bells Palsy coming on...it wasn't...I have had Bells Palsy twice and it didn't make my face numb...I just couldn't move it.
 
After a couple of days with the pins and needles and my face going numb off and on I decided to see the neuro they suggested if my problmes persisted.  He order an MRI of the brain (with and w/out contrast), head and c-spine to check for a stroke or pinched nerve.  The only thing found on the MRI was a non specific lesion on my c-spine.  So I asked about MS, he said absoultely no!
 
In between this appointment and my follow up, I started having twitching.  This really has started to scare me.  At the follow up he suggested that we do an EMG.  It isn't until this Friday (the 25th).
 
Some of the other things I have experience are:
 
*Constant urge to urinate
*headache behind right eye
*stabbing pains in muscles
*an awful pain from my jaw down to my neck (happened twice...first one lasted only a couple of seonds, the second time a little longer)
*itching when I take a hot bath
*about a year ago...I got so dizzy while I was driving I had to pull over...barely made it to work...lasted about a weeke and a half and was really bad if I was riding in a car.
*about two years ago I went numb from arm to knee on the right side...I could feel pressure but reduced sensation to skin
*had times where the left side of my face would get really hot...while I was sitting at work in an air conditioned office..had to put ice to relieve
 
I also notice that when I drink any type of alcohol, not only does it make the urge to go greater (well obviously) but when I tried to lay down to go to sleep, I couldn't stay still, had the constant urge to move.
 
I haven't told my neuro all of this...I know I should have but every time I go to see him I go completely blank and can't think of what I needed to tell him.
 
Any input would be greatly appreciated. Thanks!
 
 

jim-s
New Member


Date Joined May 2007
Total Posts : 13
   Posted 5/22/2007 1:09 PM (GMT -6)   
I would get a second opinion on that MRI you have. Good luck....Jim

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/22/2007 1:12 PM (GMT -6)   
I think you need to write down everything you have here...and if your neuro scares you so much that you can't tell him, hand him the list of symptoms. He's not going to be able to begin to diagnose you if he doesn't know about all those things.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/22/2007 2:07 PM (GMT -6)   
Hey TurtleGirl!!

Welcome to the board!! I'm so glad u'v found us and hope u'll find this as comforting and supportive as we all have. I"m so sorry to hear of u'r symptoms and pains. I too have many of the same symptoms and am undiagnosed. Seems finding an answer...whether it's ms or any other thing...can take long time. Hang in there.

I agree with Uppity, write u'r symptoms down...past and present..and either use them as a guide in talking to u'r doc or just hand them over to the doc. He needs to know EVERYTHING. Many here find it helpful to start a symptoms journal. It's fantastic for use when visiting u'r doc as well as opening u'rs and u'r docs eyes to any sort of pattern that may be there. Another thing, many here get copies of their tests results/reports as well as any mri films or cd's. That can be helpful if u'r trying to compare from one mri to the next or if u find need to see a second doc.

We have MS Live Chats on Mondays at 6:00pm (cst) each week. It's a great oppertunity to get to know the other members as well as gets some real time answers to u'r questions. I hope we'll see u there. Take good care and let us know how u'r doing and how u'r test goes on the 25th. Again, welcome to the board.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


TurtleGirl68
New Member


Date Joined May 2007
Total Posts : 15
   Posted 5/22/2007 2:19 PM (GMT -6)   
Thank you for your advice. It's not that I am scared of the neuro, it's just that he and everyone else think that I am nuts and these things are all in my head. Trust me I wish they were all in my head but they aren't. I am just really nervous and scared and I feel totally alone in this. My husband goes to all my appointments with me but when the doc says that it's anxiety or in my head...that's all my husband needs to hear, I think he just wants to believe that I'm fine and nothing is wrong more than not wanting to support me.

Anyways thanks again for the advice, I appreciate it!

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 5/22/2007 2:38 PM (GMT -6)   

Hi TurtleGirl -

I know exactly what you mean about not being able to voice things to the drs.  The symptom sheet is excellent, although when I sent my symptom sheet to the MS spec I saw a couple weeks ago, I don't think he looked at it at all.  They went by the few symptoms I put on the evaluation form, and I also told them on the sheet to please review my symptom sheet.  I asked if it was looked at and they nodded, but I wasn't too convinced. :o(  On my MRI sheet it reads paresthesias, tremors and headaches..  UGH!! I wish I could get that darn headache off my chart, I have one migraine a year MAYBE and normal headaches that everyone else has.  BUT back to my post.. :o)  It's not that I'm afraid of these docs either, but I get really confused with the tests and symptoms and the questions.  I never used to be like this, but it is hard.  I don't have someone go with me, which I probably should since my congnitive process is failing quite a bit.  Maybe sit down with your hubby with your symptom list and just tell him you just want to make sure you don't miss a thing, so you can stop wasting money on dr bills and get feelin' better ;o)  That usually works on my end. I hope you do get feeling better.  Keep us posted and good luck


I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/22/2007 4:55 PM (GMT -6)   
Hi Turtlegirl,
 
    Cute name, do you have a fondness for turtles?  Just curious :-) I know how you feel as many here do too about it being in your head.  You know how you feel though, even if no one else can see.  It's interesting that people come here and can be really descriptive in how they feel but get them in front of a doctor and you just can't think of anything to say!  Do what you have to do to let your doc know of all these other issues, write them down or copy and print what you wrote here if that will help. 
 
    Hang in there, a lot of things look similar symptom wise.  Let us know how your emg goes.
 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
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TurtleGirl68
New Member


Date Joined May 2007
Total Posts : 15
   Posted 5/22/2007 5:05 PM (GMT -6)   
The name actually comes from my husband, he calls me "turtle" because I am so slow...well in his opinion at least.  The "68" is my husbands college football number, it just fit.  Thanks again everyone for the advice, I really appreciate it, I don't feel so alone now! 

dRaMa~
New Member


Date Joined May 2007
Total Posts : 19
   Posted 5/24/2007 6:47 AM (GMT -6)   
I don't really know what it could be because I don't know if all of those symptoms can be MS related but... I can say that it definetly cannot be MS if you only have 1 lesion. Maybe it is something similar to MS but MS stands for Multiple Sclerosis, many scares. 1 lesion means it can't be MS. I have a friend who's father has 1 lesion and his symptoms are very similar to mine but the doctors will not classify it as MS due to the 1 lesion only.

I hope you can figure out what it is soon. I know how it feels to not know what the heck you have!

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 5/24/2007 5:54 PM (GMT -6)   
Thursday evening

Good evening, Turtlegirl: If I may ask, where did your husband play college football, and how long ago?

I'm hoping it was University of Michigan..or Michigan State...or maybe Notre Dame? USC?

just curious...John

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/24/2007 8:59 PM (GMT -6)   
Hi turtlegirl,
 
    Thanks for the explanation of your name, too cute!!  Best of luck with your emg tomorrow, and I hope it helps get you a little closer to what's going on. 
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details
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