Don't sell my seat on the limboland boat yet kids... Still don't know what the heck is going on...

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Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 6/1/2007 7:28 PM (GMT -6)   
Hi all -
 
Saw my neuro yesterday, we spent another 1/2 hour talking about what is going on and where to go from here.  The C-spine came back with a slipped disk and a spur on the left side of a vertebre.  The T-spine came back with 'slight narrowing' but no compromise on the spinal cord.  Also no lesions on either.  I am relieved, however we are still confused as ever since the way the disk is slipped and where the spur is, my LEFT side should be greatly affected by pain.  I have no real pain on the left side, just the heaviness and aching. 
 
So now the flavor of the month of tests will be for lupus and anticardiolipin antibody syndrome.  I guess I tested positive for the ANA Antinuclear Antibody.  MS is on the back of the burner until I have a major episode (exacerbation) or more serious new symptoms that stick around and not just come and go and a repeat MRI will not be done until something like that happens.  So I asked about the lesions.  I guess I have lesions all over my brain, not just in the specific places for MS, I have them everywhere, so I've got the doctors stumped. There is something going on with my autoimmune system since I had 2 active lesions on the last brain MRI, but again all other tests are coming back normal.  My dr stated that all my thyroid tests came back fine again too.  She mentioned referring me to a rheumotologist, but wanted to check with the MS specialist on something else.
 
She put me on a new prescription vitamin of metanx (lots of b vitamins and folic acid) in addition to my neurontin (bumping it up from 200mgs 3X's day to 300mgs 3X's a day) and is basically going to continue to treat the neuropathy until something more pops up. :o( 
 
I haven't had time to check all the test 'normal results' with the ranges yet, since I've been swamped with my son's graduation party.  As soon as I get a breather, I'll check them all out and see if I find anything different.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/1/2007 7:36 PM (GMT -6)   
Hey Denda!

Geez...no answers yet so many questions. I"m sorry...i know u'r relieved over the normal test results, but also would like some answers!! I"m holding u'r seat friend, but hoping to hear of some finality soon. Hang in there...this is so frustrating and maddening too, but u can get tru it and get to those answers. Take some time to rest along the way too friend...don't overdo things too much with the party. Take good care!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 6/1/2007 9:12 PM (GMT -6)   
Hi Denda,
I have had Lupus prior to my MS diagnosis and one of the things they addressed before the ms diagnosis was lupus cns.  It can cause lesions on the brain.  Since you do have a positive ANA then it is good for them to follow up with further antibody tests etc...  Have they checked your antiphospholipid antibodies?
 
I hope you have answers very soon.  Take good care and keep us posted!
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 6/2/2007 4:41 AM (GMT -6)   
Wow, Michelle -

You have had it all, haven't you? I'm so sorry for that. I don't see the antiphosphohlipid antibodies on the lab results unless it could be called something else. I see they did a Lupen screen, which came back negative. Maybe it was in that? I don't know, I guess we'll see on down the road. Thanks for letting me know that though, I haven't had the time to research anything yet.

Rhonda -
Thank you so much for the words of encouragement! Resting is for mere mortals! Right now I have my wonder woman cape on and trying to get my legs moving for the final round. It's been physically very hard to get out of bed for the last 4 days, but I'm sure it will get better after today! Thanks again!
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 6/2/2007 7:06 AM (GMT -6)   

Denda,

 

I have read your last few posts, and just wanted to express my support. It sounds like you are going through a really hard time, not only with you health and diagnosis frustrations, but also with all of the transitions in your life right now. I really hope that things start to get better soon! While MS has been put on the back burner, the positive ANA is definitely…well, I don’t want to say encouraging, because it is potentially not good either…but what I mean is that hopefully it will lead you to some answers and then the proper treatment. Here is a little bit of general information on a positive ANA result to start out your research (I went down this path too….went to a Rheumy several months). http://www.labtestsonline.org/understanding/analytes/ana/test.html

 

Sunny


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 6/2/2007 8:17 AM (GMT -6)   

Hey Denda,

I am sorry that there are no real answers for you yet.  I think of you often and pray for you.  You are having a real rough go right now.  Hang tough girl.  Things will get better.  I think you know that I have tried to e-mail but you have one picky computer that won't let me in.  Rhonda and some others would say that is a good thing.  Hahahahaha.  I wish there was something more I could do for you.  I am so worried for you and I just want you to get some relief so you can enjoy this amazing time with your famliy. 

Love and prayers,


Gretchen
 
diagnosed: MS  July 2006
rx: copaxone


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 6/3/2007 7:47 PM (GMT -6)   
Thanks to all of you for your support. Yesterday is done and I'm pretty sure everyone had a good time.. Thunderstorms and all. I haven't moved too far from the couch all day, even took an afternoon nap I've been so exhausted. Aching all over, hoping I'll be able to get out of bed tomorrow. We'll see. ;o)

Things can only get better from here on, right? Boy I hope so!

Sunny - thanks for the link, I learned alot. I did take a look at my test results today and noticed that my T4 came back @ .9 and from what I'm seeing on the Internet, the lowest it's suppose to be is 4.5. On the results page it has an 'N' beside it, which my neuro and I both guessed meant 'normal', but the positive ANA test had an 'N' beside it too.

I'll give a call and see what everyone says tomorrow, if I can get my butt out of bed. Thank you all again.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

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