I tried to respond to this days ago, however some problem with the board kept me from logging in.
I've been experiencing all of the above- pain in my legs just from walking up stairs; pain in arms (and racing heart) just from brushing my hair; extremely sensitive skin- on my scalp, left shoulder, left buttock/thigh area; and this pain in my arm that I've always described as a "pulsing, pinching" kind of feeling, for lack of a better way to describe it. I guess it's nerve pain, but I don't know. The arm was the first thing that really hit me, that I can remember.. the rest followed sooner or later. Neurontin did nothing for me. Topamax did actually help me a lot, for a while.. then I switched to Elavil when the Topamax didn't set well with my body. The Elavil only made me really sleepy.
I've been suffering with all sorts of problems- the above, chest pains, frequent headaches, sensitivity to light, body parts going numb, and a slew of other "crud". Been seeing several different doctors since 1999- off and on, as I would eventually get frustrated and not bother with them. My neuro did two MRI's on me recently, the last one after the left side of my body went numb. However since I never showed any lesions, she would not dx me with MS. Not that I want to have it, but it would have made some
sense to me, as my mom was diagnosed with it in her early-mid 20's. I'm really frustrated with my current neuro, so I've pretty much given up on her. I'm not a big fan of my regular dr, either. I did find another doctor (a Lyme specialist), so I could at least rule out Lyme. However, I was just told this last Thursday that I do in fact have it. (something I never even suspected til this March). The LLMD doesn't know if this diagnosis covers all of my health issues, but it probably does explain some. It remains to be seen where life will take me.. Just hoping to get well, ya know?