Does anyone experience this type of pain?

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CeceliaSky
New Member


Date Joined May 2007
Total Posts : 12
   Posted 6/3/2007 8:23 PM (GMT -6)   
I describe it as feeling almost like an "indian burn" when we were kids we would give them to eachother at times. Right now more so in the back of my upper legs. A burnng sensation.I kept checking to see if I had a rash or a burn. It's nerve pain of some sort I think. Very disconcerting. I feel it on my upper right arm at times as well.

KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 6/3/2007 11:15 PM (GMT -6)   
Hi Cecilia,

I know exactly what you mean. I get this too....like my other symptoms it is pretty sporradic...it comes and goes for no apparent reason, and occurs in all different places on my body.

Not sure whether it has a name, or a cure unfortunately. Mine is uncomfortable but not severe....yours?

Kas
Not diagnosed
 
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BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 6/4/2007 1:47 AM (GMT -6)   
Cecilia,

Is the pain in your muscle or on your skin? I get a burning pain in my muscles. It is like I have ran a marathon but all I did was walk down the hall or bend down to my knees. I also get the burn in my arm when I brush my hair or shampoo it.

I have no idea what it is called and nothing helps it. I take walks to try to help my legs but that doesn't work either.

Lysha
Undiagnosed

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Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 6/4/2007 6:44 AM (GMT -6)   
Hi Cecilia -

I get this alot on the back of my left thigh/butt cheek, as well as on the back of my neck. It does feel like a sunburn or 'indian burn' as you describe it.

Lysha -

I get this type of burning also, like you have run a couple miles or the 'wall squats' that you had to do in gym or sport conditioning in school, but all you did was just walk up the stairs.

My neurontin takes care of both of those, I'm up to 300mg 3X's day.
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rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/4/2007 3:27 PM (GMT -6)   
Hey Cece

I too get some burning senstations. I've not had any real trouble with it tho...just small patches that're annoying at most. Just enuf to lt me know it's there! I hope this clears up for u soon...please let us know how u are.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Kimber
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Date Joined Jun 2005
Total Posts : 1852
   Posted 6/4/2007 3:41 PM (GMT -6)   
Hi Cece,
 
   Yes it is a type of neuropathic pain, and the technical term is called dysesthesias if you want to look up more about it.  It's probably one of my husbands worst symptoms and he has in the arms and legs mostly.  We haven't found anything helpful medication wise, but some people do.  I see Denda finds neurontin helpful yay!  The only thing that helps at all is using a massager.  The vibration changes the burning to a numbness feeling which is more tolerable to him.  I hope you find something that works and get some relief.
 
 
Kimber
 
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madlou
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 6/8/2007 6:24 PM (GMT -6)   
I use lyrica. It works to keep the "buzzing"/pain down. But I still get the hyper sensitive skin. It does feel like a sun burn on the back of my knees. sometimes my face feels like I have a facial mask on, the skin is too tight. I'd rather have the electrified spider webs or the pinwheels I used to experience!
Rebif 44 mcg x 3; lyrica; ambien


sylvie74
Regular Member


Date Joined Mar 2007
Total Posts : 443
   Posted 6/9/2007 12:19 PM (GMT -6)   
I tried to respond to this days ago, however some problem with the board kept me from logging in. redface

I've been experiencing all of the above- pain in my legs just from walking up stairs; pain in arms (and racing heart) just from brushing my hair; extremely sensitive skin- on my scalp, left shoulder, left buttock/thigh area; and this pain in my arm that I've always described as a "pulsing, pinching" kind of feeling, for lack of a better way to describe it. I guess it's nerve pain, but I don't know. The arm was the first thing that really hit me, that I can remember.. the rest followed sooner or later. Neurontin did nothing for me. Topamax did actually help me a lot, for a while.. then I switched to Elavil when the Topamax didn't set well with my body. The Elavil only made me really sleepy.

I've been suffering with all sorts of problems- the above, chest pains, frequent headaches, sensitivity to light, body parts going numb, and a slew of other "crud". Been seeing several different doctors since 1999- off and on, as I would eventually get frustrated and not bother with them. My neuro did two MRI's on me recently, the last one after the left side of my body went numb. However since I never showed any lesions, she would not dx me with MS. Not that I want to have it, but it would have made some sense to me, as my mom was diagnosed with it in her early-mid 20's. I'm really frustrated with my current neuro, so I've pretty much given up on her. I'm not a big fan of my regular dr, either. I did find another doctor (a Lyme specialist), so I could at least rule out Lyme. However, I was just told this last Thursday that I do in fact have it. (something I never even suspected til this March). The LLMD doesn't know if this diagnosis covers all of my health issues, but it probably does explain some. It remains to be seen where life will take me.. Just hoping to get well, ya know?
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