I swear it's not the rum!

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littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 6/4/2007 10:31 PM (GMT -6)   
I'm walking around like a drunk lately. I'll be walking along and suddenly walking a straight line just doesn't work. My feet cross over each other, trying to correct my walking, and I just end up tripping. Sometimes I'll just be standing there and I'll stumble.

This was really pronounced the other night as we were walking to our car just after seeing Pirates of the Caribbean. We all had some good rum jokes. I was grateful we could have some fun with this, as it helps keep me from feeling embarrassed or anything.

Still, I have noticed the last couple of months new symptoms developing and becoming more apparent (the drunken walking, mild shakes, more mild numbness). I don't really know what to make of it. As many of you know, I am in a current debate about whether or not to stay on my treatment and with the onset of new symptoms it would seem a reasonable move to see my neurologist.

My neuro just moved to Minnesota, however, so I am on the hunt for someone new. It took me a year to find her and she was great. I'm soooo not looking forward to going to another idiot.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/5/2007 6:51 AM (GMT -6)   
If your neuro moved, did she refer you (or her patients in general) to a different neuro?  Where are your records?  You need to find out about all of that before you start a new neuro hunt.  Your symptoms sound pretty typical of MS, and mirror how I started out, 25 years ago...

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 6/5/2007 9:38 PM (GMT -6)   
She worked for a neurological group of doctors, and just referred me to "anyone else" in the group. Not specific at all. I don't know where she transfered my records to, but I have a copy of my records from her and my MRI.

I know I probably should expect all of this...the new symptoms and all. I guess I just hoped that I wouldn't be seeing new symptoms after starting a treatment, although I know that was never guaranteed. It scares me, though. I am really managing okay right now, it just makes me wonder how much worse it's going to get and how fast and all that. I know it's futile to think about that stuff, but it does creep to the forefront of the brain now and again.

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 6/6/2007 6:06 AM (GMT -6)   
Hi Nikki -
Stay strong and positive, hopefully this is just a flare and you will be back to your normal sexy stride soon! ;o)
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/6/2007 7:08 AM (GMT -6)   
littlechina said...
She worked for a neurological group of doctors, and just referred me to "anyone else" in the group. Not specific at all. I don't know where she transfered my records to, but I have a copy of my records from her and my MRI.

I know I probably should expect all of this...the new symptoms and all. I guess I just hoped that I wouldn't be seeing new symptoms after starting a treatment, although I know that was never guaranteed. It scares me, though. I am really managing okay right now, it just makes me wonder how much worse it's going to get and how fast and all that. I know it's futile to think about that stuff, but it does creep to the forefront of the brain now and again.
Well then your records are probably still there within the group.  Have you simply called the office, reminded the staff that you were a patient of "Dr X who left" and could they set up an appointment with "anyone else" there?
 
Yes, we all wonder "how much worse it's going to get" and "how fast" and all that.  MS is so variable, and unpredicatable.  I'm sorry!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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