Starting Steroids

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zanmonkey
New Member


Date Joined May 2007
Total Posts : 9
   Posted 6/12/2007 8:56 AM (GMT -6)   
I am so nervous a nurse is coming to my house today to start me on Solu-Medrol. Anyone else had this steroid tx? I just don't like not knowing what to expect. Any info would be great!
 
Thanks,
D

lubylu
Regular Member


Date Joined Jan 2006
Total Posts : 34
   Posted 6/12/2007 4:18 PM (GMT -6)   
i had sol-medrol 2 wks ago i had the 3 day it was really helpful for my relapse now in the recovery stage , i had alot of swelling but that is about it just drink alot of water the dr said it stays in the system for about 7 days ask the nurse when she comes she should have the info for it hope this was some help how many days are you having it for ? with me they left the iv shunt in for the three days so i didnt have to go over it again it wasnt that bd for me this is my 2nd time hope all goes well let us know how you make out  ? good luck ,,,take care  :-)

Post Edited (lubylu) : 6/12/2007 4:24:07 PM (GMT-6)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/12/2007 8:20 PM (GMT -6)   
Hey D

How'd the first treatment go??? Many here have tried the same treatment and should be along soon to give u their input, but as i understand...and i've never had the treatment...i usually will work very well. Maybe u'll see some affects right away, but if i remember correctly, there is a bit of a delay for some. I think others have said u may experience a metal taste. Hang in there friend...u'll get thru this and do well. Please let us know how this goes for u.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


snowdog
Regular Member


Date Joined May 2006
Total Posts : 137
   Posted 6/13/2007 11:46 AM (GMT -6)   

 

Steriods.....

I have had a few of these treatments. The only after effect for me was the awful, rusty metal taste in my mouth. Nothing would take it away and everything you eat or drink tastes the same for days.

However, these are steriods. You want to be very aware of the pros and cons and the possibility of
of dangerous problems. Ask questions, lots of them. Make sure the medical people know about any
problems you have besides MS. (Kidney, liver, hypertension etc) and exactly what other meds you are taking.

The main use of this kind of treatment is for the outset of Optical Neuritis and Relapses. It, for some people,
can be almost instant and that is its magic. Stopping a major Relapse or ON in its tracks, saves weeks or months of discomort. However, some people have said he didn't work for them, others not for weeks, and still others have had complications.

In my case I noticed a major improvement the next day. In fact it worked so well, that I have an open prescription of Predisone(same steriod) in a pill form that I carry when traveling. It does not work anywhere near has fast, but has helped (as directed by my doctor) when a IV was not available.

Now I have SPMS and probably won't have another IV unless I have another attack of ON. Yet I still have the prescription...just in case. (I have lost the vision in my left eye to the last ON attack, because they didn't give me the IV until over a month after the ON attack and if I have another ON attack, at least I can
try to do something quickly)

But this is just me. And again.....steroids can be very dangerous. It's great that they can reduce the inflamation and symptoms in an MS relapse......but they can do some pretty bad damage to other parts of your body.

Be knowledgeable, don't be scarred (it is just an IV and really doesn't hurt much. If you have one IV or had
blood drawn and didn't pass out, your will be just fine) and understand the cons as well as the pros of this treatment.

I hope it works well for you.

Just my opinion, Just my thoughts.............

Dog


snowdog
Regular Member


Date Joined May 2006
Total Posts : 137
   Posted 6/13/2007 12:16 PM (GMT -6)   
Back again !

Hey I have MS......I forget things.....snicker'

There are two other after effects that any steriod treatment can cause that I know about:
One is headaches the other sleep problems.

I have always had sleep problems since I got MS, so I didn't notice
any difference there. (I have taken Ambien for over a year) But I did get headaches.

Now I will get off the board.

Dog sad

zanmonkey
New Member


Date Joined May 2007
Total Posts : 9
   Posted 6/13/2007 2:44 PM (GMT -6)   
Thanks for all the input! I am on day two of three. I had a rough night I did'nt sleep until 3am and had horibble Dia****** all night!! FUN! I feel alittle out of it during the day but not to bad. I am praying that this helps my fatigue, back and eye pain. I guess as you guys said I may have to wait alittle while to see the results but just the thought of relief is overwhelming. You guys are great, having people to talk to makes all the difference.
 
Thanks,
D :-)

jim-s
New Member


Date Joined May 2007
Total Posts : 13
   Posted 6/18/2007 7:49 AM (GMT -6)   

Also my neurologist stated that the side effects from repeated use of steroids (solumedrol) could cause bone density loss which of course could lead to hip replacements, etc.  He recommends taking solumedrol as little as possible.  He will prescribe it for an acute MS attack. Snowdog's advice is good.

Good luck,

Jim 

snowdog said...

 

Steriods.....

I have had a few of these treatments. The only after effect for me was the awful, rusty metal taste in my mouth. Nothing would take it away and everything you eat or drink tastes the same for days.

However, these are steriods. You want to be very aware of the pros and cons and the possibility of
of dangerous problems. Ask questions, lots of them. Make sure the medical people know about any
problems you have besides MS. (Kidney, liver, hypertension etc) and exactly what other meds you are taking.

The main use of this kind of treatment is for the outset of Optical Neuritis and Relapses. It, for some people,
can be almost instant and that is its magic. Stopping a major Relapse or ON in its tracks, saves weeks or months of discomort. However, some people have said he didn't work for them, others not for weeks, and still others have had complications.

In my case I noticed a major improvement the next day. In fact it worked so well, that I have an open prescription of Predisone(same steriod) in a pill form that I carry when traveling. It does not work anywhere near has fast, but has helped (as directed by my doctor) when a IV was not available.

Now I have SPMS and probably won't have another IV unless I have another attack of ON. Yet I still have the prescription...just in case. (I have lost the vision in my left eye to the last ON attack, because they didn't give me the IV until over a month after the ON attack and if I have another ON attack, at least I can
try to do something quickly)

But this is just me. And again.....steroids can be very dangerous. It's great that they can reduce the inflamation and symptoms in an MS relapse......but they can do some pretty bad damage to other parts of your body.

Be knowledgeable, don't be scarred (it is just an IV and really doesn't hurt much. If you have one IV or had
blood drawn and didn't pass out, your will be just fine) and understand the cons as well as the pros of this treatment.

I hope it works well for you.

Just my opinion, Just my thoughts.............

Dog



marmie
New Member


Date Joined Jun 2007
Total Posts : 12
   Posted 6/25/2007 7:12 PM (GMT -6)   
zanmonkey, i have had the solumedrol treatment several times, and it works , I usually chew gum while having the IV.....the taste is not great(metallic).It does cause insomnia for me and loose stools, but it helps to stop the exacerbation . I wish you all the best.
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