MS is my family's plague! Desperate for advice =(

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Kathl019
New Member


Date Joined Jun 2007
Total Posts : 4
   Posted 6/12/2007 1:04 PM (GMT -6)   

Hi Everyone!

I am new to this forum desperately searching for some advice. I became familiar with MS when my uncle was diagnosed years ago. Throughout the years, his brothers and sisters have been seeing many doctors complaining of the same symptoms. Since his diagnoses, there have been three more diagnoses amongst the nine children, including my father, totaling four siblings. However, there are two more that we confidently believe are on their way to a diagnoses as well. confused   

For years I have seen doctors with bizarre problems and complaints that have gone unanswered. The more my family learns about MS from one other, the more we see a startling similarity between what they have experienced and what I have been going through.

Lately, my 15 min walk to work in the morning has become very difficult on certain days. When I reach the flight of stairs going down into the train station, I find myself searching the crowd of people for the eldest looking person so I can walk down the flight behind them because sometimes my legs are so shaky its hard to make smooth steps.

I have grown so frustrated trying to ignore my symptoms I don’t know what to do. I saw a neurologist a few years ago, and my MRI returned normal. It scares me to think that I have driven myself to become a hypochondriac, as my symptoms can be explained with other problems. My aunt was tested three times for MS, all which were negative, before the positive fourth test. I think because of my family history, it has become all mind over matter. Doctors think i am nuts. eyes Below I’ve described as many things as I can think of… if anyone has time to look at them (I apologize this is so long!) and share any thoughts or advice I would really appreciate anyone’s two cents! I am so sick of complaining and constantly thinking, “Could this be MS?” I'm ready to just suck it up and plan on revisiting the doc. when i really cant walk. Thank you again for taking the time to read this, it is much apprecated.

------------------------------------------------------------Symptoms------------------------------------------------------------------------------
LEGS (my most prominent complaint)-

On a daily basis it feels almost as if my brain has forgotten how to tell my legs to walk. I am still
able to walk, but my gait is "choppy".  I have trouble maneuvering in crowds or on uneven ground.  I often "limp" not due to pain; I am just unable to make my legs move smoothly. I also experience other symptoms which have been diagnosed as "restless leg syndrome". Occasionally, I have pain in my shins: Pain often varies from very subtle to (only on 1 or 2 occasions in the past 3 years) to severe- it feels like someone is drilling through the bones
in my legs".

FACIAL

Rare shooting pain lasts for just seconds. Cramping sensation through tongue
Numbness experienced in sections of face.
Tingling around nose experienced


Freezing Cold sensations experienced in Right hand, while left remains warm/normal temperature. 

Dizzy Spells. Has become severe, went to Health Services at while I was at my college.

Muscle Weakness in my legs, especially walking down stairs. Legs become weak and shaky.
*Suggested see a Rheumatologist.
Rare periods of speech symptoms- periods of slurring, stuttering, trouble
articulating.
Buzzing in limbs, down my side- often thought cell phone was vibrating in purse.


Kathl019
New Member


Date Joined Jun 2007
Total Posts : 4
   Posted 6/12/2007 1:09 PM (GMT -6)   
Also, I've had weird eye problems such as when i look at my computer screen sometimes it seems as though it is blinking very fast. Others do not see it. Sometimes when i am driving, specifically around dusk i will see things out of the corner of my eye.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/13/2007 11:35 AM (GMT -6)   
Hey Kath

Wow...u have a lot going on. I"m so sorry u've had to deal with so much for so long. Do u have anyone nearby who u can call on if needed?? Of course i'm not a doc nor do i feel certain about u'r situation, but u seem to be on the right path in investigating MS. I see many members of u'r family have been dx'd with ms, but after much time. Maybe given more time u'll find u'r dx as well. There are many ms mimics, so be sure to investigate those possibilities. U might want to try googling "ms mimics" or "differential diagnosis" and see what u find. Please let us know how u are and ask as many questions as u'd like.

I'm so glad u've found us. This is a wonderful site with many great people. I hope u find it as supportive and informative as i and many others have. We have live chats on Mondays at 6:00 pm each week. It'd be great if u could join us! Welcome to the board!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 6/14/2007 1:50 AM (GMT -6)   
Hi there,
 
If your MRI was years ago, maybe it's time for another?  It would give you some piece of mind at least.
 
Shar
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


jim-s
New Member


Date Joined May 2007
Total Posts : 13
   Posted 6/14/2007 6:54 AM (GMT -6)   

I hate to say it but, sounds like MS to me.  Before I was diagnosed in 2001, I could remember having this slight sensation around the corner of my right eye.  It was there for about 30 years and never worried over it because it was so insignificant.  I didn't know how to describe it except it fealt like my eyelashes were tangled up, but looking in the mirror proved that wasn't the case.  It turns out that it was numbness in my face.  In 2001, several indications of MS, including numbness, began to show up.  Shooting pains down my right leg, "electric shocks" down my body, tiredness, weakness, inability to run.

Fortunately, I'm used to it now.  It took quite awhile to get used to it though. 

Good luck to you- Jim


tory2457
Regular Member


Date Joined Jan 2007
Total Posts : 380
   Posted 6/14/2007 7:43 AM (GMT -6)   
Kathl019,

You have a right to wonder why you're feeling lousy...."it's in your head" is really becoming tiring from our health care professionals.

Consider posting this very story on the Lyme forum. You have so many symptoms that we with Lyme have.

I personally get the electric shocks along with other MS symptoms as you. I actually have a MS diagnosis but now treat my disease with antibiotics.( and I'm recovering). Lyme runs in families.....ticks are everywhere.

Unfortunately, if you've been tested for Lyme disease it more than likely was a negative test result,,,,testing is flawed. There are only a few labs in the US that test for all the lyme bands.

again, we welcome you on our forum. Lots of folks there getting better who like me have MS.

the best,
tory

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/14/2007 4:15 PM (GMT -6)   
Hi Kathl019,
 
   Welcome to Healing Well!  Unlike other autoimmune diseases, they say MS is not an inherited illness.  With so many in your family having MS, the risk of having it yourself does go up but slightly.  Your symptoms do seem to fit MS, but there are so many other possibilities that share symptoms it is at times difficult to determine what the cause is.  Please don't wait until you get to the point of not being able to walk to continue your search for answers.  It can be a frustrating process for sure, but please don't give up on it even if you feel that doctors think your nuts.  I've been in your place, and many here are right along with you at the point of limboland.  When was your last MRI?  Do you keep a journal of any kind to see if there is a pattern to your symptoms? 
 
    There is a wonderful website posted by one of our members that I placed in the resources section on MS mimicers.  Please check that out when you get the chance, it might give you some direction on things to check into that might have been overlooked.  Please keep posting and I wish you well on your search.
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details
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