Carnitine seems to be helping my fatigue

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photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 6/18/2007 7:51 PM (GMT -6)   

Hi everyone (and John!),

I promised I'd report back on how this drug/supplement is working out.  It took a few weeks, but I think it is indeed helping now.  It was kind of hard to tell at first as I've had a couple flares during this time, but I do notice some more energy.. yay!  My fiance noticed first, he'd say "look at you vaccuming, you should be on a commercial for Carnitine" lol.  It's not a miracle drug, but I'll take any help I can get.  Provigil and Amantadine unfortunately didn't work out for me with my chronic anxiety.

Here's some info from their website (the brand my pharmacy gave me):

CLINICAL PHARMACOLOGY

CARNITOR® (Levocarnitine) is a naturally occurring substance required in mammalian energy metabolism. It has been shown to facilitate long-chain fatty acid entry into cellular mitochondria, therefore delivering substrate for oxidation and subsequent energy production. Fatty acids are utilized as an energy substrate in all tissues except the brain. In skeletal and cardiac muscle they serve as major fuel.

As with most things that are helpful, it is expensive.  I picked up a month supply at Wal-Mart where the cashier said "that will be $247 please".  Luckily my prescription coverage through work covered it, where the government plan would not, so I got it for the dispensing fee of $7.   :-)

Hope everyone is keeping well,

Shar

 


Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/19/2007 1:51 PM (GMT -6)   
Hey Shar!!

WOW...i'm really glad u'r ins covered it!!! $240 off is a good deal!!! I"m so glad this seems to be helping u and i hope and pray it continues to. Boy, what an improvment, huh? Good for u!! Please do let us know of u'r progression with this. Does the improvment increase?? How long do u use it?? Congrats on finding something that seems to be improving u'r life friend!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/19/2007 8:32 PM (GMT -6)   
Excellent Shar!!  That's terrific news, thanks for sharing tongue $7 great deal, can't beat that!
 
Co-moderator for Multiple Sclerosis
 
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tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 6/19/2007 8:44 PM (GMT -6)   

I was looking up this med and it seems there is an over the counter version, do you know the difference? I would love to try something other than provogil....


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 6/19/2007 11:15 PM (GMT -6)   
rhondab said...
Hey Shar!!

WOW...i'm really glad u'r ins covered it!!! $240 off is a good deal!!! I"m so glad this seems to be helping u and i hope and pray it continues to. Boy, what an improvment, huh? Good for u!! Please do let us know of u'r progression with this. Does the improvment increase?? How long do u use it?? Congrats on finding something that seems to be improving u'r life friend!

Thanks Rhonda.  I'm not sure if the improvement will increase, that would sure be nice if it did.  I'm guessing I use it from now on like any other drug for energy. 
 
It is a good deal!  I am so fortunate and thankful for my coverage :-)
 
Tkelly I'm really not sure about the differences with the over the counter ones, or why this one needs a prescription, sorry.  Maybe check with your pharmacist?  I think this one may not be prescription in the US...
 
I had energy yesterday and had a great day out shopping.  I walked around for an hour straight downtown, then a little later walked at the mall for about 20 mins.  I'm sure the Carnitine helped me do that.  However, it is not helping me today... sooooooo tired, had to leave work early and my legs are killing me with spasticity.  A little energy can be a dangerous thing.. I'm still learning my limits.  Sometimes one great day is worth it though tongue
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/20/2007 1:13 PM (GMT -6)   
Hey Shar!

GOOD FOR U!!! I"m so glad u got the time out and enjoyed some shopping. Ahhhh...how nice! Take it easy tho...like u said..a little energy can be dangerous. Keep in mind that even if u'r body feels more energetic, it's not used to the work out. Go easy friend. I'm so glad u'r doing better!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

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