Hello - New here and questions

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anniebooboo
Regular Member


Date Joined Jun 2007
Total Posts : 53
   Posted 6/26/2007 6:16 AM (GMT -6)   
G'day to you all. Am not yet diagnosed with MS but am due to see neurologist within a month or so. I have many bizarre symptoms and my doc wants further investigations done, hence neuro visit soon. I have two queries for now - how many of you suffer from reflux? Can this be a symptom of MS? This problem is driving me crazy (2 years of BAD reflux) as is this awful throat sensation I have which feels as though my esophagus is partially paralysed and also at times really tight. How much of this can be attributed to MS, or might this be a completely separate condition? Second question - I have had L'Hermittes sign (apparantly) whereby if I bend my head forward my left lower leg and foot "buzz" (it feels like a cat is purring inside). Or rather, this unusual sensation WAS happening, until about the last 2 weeks when it has stopped. What's going on? Somedays I am all tingly or burning or pins and needles, next day all is fine. Is this just me being a hypochondriac???? Does L'Hermittes come and go? I am very fatigued on my right side. How weird is this? Just one side of my body tires when I climb stairs, brush my teeth, eat, etc. By the way, my right "flank" has been completely numb for 12 years. It initially burned and tingled but the doctor fairly dismissed me when I made an initial visit all those years ago and no testing was done. I worked very hard to ignore the trouble it caused me. Does this mean that in fact I may have had this condition for 12 years and am only now having my first flare up?? I think I have maybe asked three or more questions. I hope someone can shed some light on what is happening to my poor body. confused

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 6/26/2007 8:14 AM (GMT -6)   

Hey Anniebooboo,

I can only tell you of my experiences.  I am diagnosed and to a certain degree my L'Hermittes comes and goes.  I have it when I am too hot or really tired or stressed.  If indeed you end up being diagnosed with MS there is the possibility that you have had it for many years.  It is not unusual for people to have it for a long time before getting a diagnosis.  Good luck and keep us posted.  And welcome to the forum.  You will enjoy meeting lots of wonderful people here.

Love and prayers,

 


Gretchen
diagnosed: MS  July 2006
 
Life shrinks or expands in proportion to one's courage. 
Anais Nin
 


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 6/27/2007 3:55 AM (GMT -6)   
Hi there,

I'm not responding to offer any advice.....but just to say that I believe you are not being a hyperchondriac! The best thing that my neuro ever said to me was that....." even though we can't diagnose you, I know 100% that you don't have imaginitis!" The best thing is to have a diagnosis and treatment.....but the second best thing is to know that you aren't going nuts, and to know that people believe you!

I sincerely hope that you get answers soon!!

Let us know how y0ou get one!

Kas
Not diagnosed
 
Neuro says he'd "bet on me having MS"
 
IF YOU CAN'T SEE THE LIGHT AT THE END OF THE TUNNEL...
GO DOWN AND LIGHT THE BLOODY THING!!!


anniebooboo
Regular Member


Date Joined Jun 2007
Total Posts : 53
   Posted 6/27/2007 6:31 AM (GMT -6)   
Thanks guys,
"imaginitis" - I like that one. thank you for your responses. I will certainly keep in touch via this forum with regards to queries and concerns. Already I feel as though by sharing with you people (albeit anonymously) that my burden has been lessened. I haven't discussed my medical problems with anybody except my husband as I have a demanding job, 3 young children and friends and family who ar very preoccupied with their own lives. I certainly don't want to burden anyone unnecessarily, particularly seeing as though what is happening has no outward visibility or signs. How do you tell people that you have the "worlds most tired arm" or that my throat feels paralysed?
Thanks again for listening.

tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 6/27/2007 1:07 PM (GMT -6)   
the l'hermittes sign has come and gone with me for years! I know that is a very big symptom of MS  b/c that is what led to my diagnosis.  MS symptoms often come and go, I don't know if that helps or not!

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/27/2007 1:55 PM (GMT -6)   
Hi Annie,
 
    Welcome!  I'm glad you feel comfortable here and I look forward to getting to know you better.  It's great to just come here and read or ask questions, or just vent your frustrations with others who have gone or going through what you are.  Makes a world of difference for some so please don't be a stranger if anything is on your mind. 
 
    I see your question to the L'hermittes has been answered.  The reflux issue can indeed occur in MS if there is a lesion in a particular area of the brainstem and it can also be a totally seperate issue too.  Have you tried any medication?  My husband also has the issue and Prilosec really helps him.  Here's a link to some more information:  http://www.mult-sclerosis.org/gastroesophagealreflux.html
 
    As for the one-sided issue, that's pretty common with MS.  A lot of folks have issues only on one side of the body, or if it is on both sides typically one side is worse. 
 
    I do hope you get some answers at your neuro visit.  Please let us know how that goes and how you are doing.
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 6/27/2007 3:31 PM (GMT -6)   

Hi Annie,

 

Welcome, I hope that you find this board as informative and supportive as I do. I also have one sided weakness and incoordination, and the intensity of these and my other symptoms does vary a good deal. I have a baseline level of “weirdness,” that is normal for me, and also symptoms that flare up and die down all the time. I hope you have a good neuro appointment, and get some answers about what’s going on.

 

Sunny


anniebooboo
Regular Member


Date Joined Jun 2007
Total Posts : 53
   Posted 7/1/2007 5:44 AM (GMT -6)   
Thanks to you all for your replies. Yes, I have used Nexium (very high dose twice a day) but had little change in my symptoms and was then put on Motillium and had an awful side effect whereby I began to lactate again (my "baby" is 8 years old). I then chose to just battle out my symptoms. However I feel quite let down by my body after all of this. Thanks Kimber in particular about the MS/reflux. I never knew that the two could be connected
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