vitamins and supplements?

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mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 7/1/2007 11:52 AM (GMT -6)   
What vitamins and or supplements do you take?  If any?  And why?  I'm confused because it seems as if there are conflicting opinions out there regarding this issue. Right now all I am taking is calcuim with vitamin D.  I was taking a multi vitamin but stopped. My PCP had told me to take a multi vitamin.  I was thinking about adding an opega 3 capsule.  Any advice (not sale pitches) would be appreciated.  Thanks!
Barb/mystery reader
Diagnosed April 2007


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/1/2007 7:47 PM (GMT -6)   
Hey Barb

As a good rule of thumb, most vitamins are fine for use by anyone with ms, except, of course, those that boost the immune system. Those would be vitamins A, C and E as far as i can remember. I"m not sure of any particuliars other than those, but just do some investigation as to whether or not the vitamins u'r considering will impact u'r immune system or not. Generally, vitamin supplements are a good idea for most anyone, but again, individual health considerations are necessary. Best wishes to u on this!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/2/2007 12:45 PM (GMT -6)   

If in fact you have a vitamin deficiency -- as in, your blood has been tested and it shows that you have a B12 deficiency -- then injections are in order.  Blood tests for B12 (and other deficiencies) should have been part of the testing done to determine whether you have MS (a long-term B12 deficiency can lead to some neurological deficiencies).  But it would be very unlikely that your doctor wouldn't have told you that, and ordered the shots, if indeed you have a deficiency, so demanding B12 shots from him won't get you very far. They're expensive, obviously intrusive, and not helpful unless you are lacking B12.

I've not heard that vitamins A, C and E are detrimental, but of course I'm not "up" on all the latest medical literature  :(  But taking a multivitamin certainly would not harm you, and may be helpful, particularly if you don't eat a balanced diet.

We Americans are "blessed" with food that has been fortified -- read the labels, and you'll find that things like milk, juices, breakfast cereals, breads -- all sorts of things have  been fortified. Some will claim to provide "100% of your daily nutritional needs". So if you eat a variety of those things, you'll generally get MORE than enough of the basic vitamins to meet your health needs.  There is some evidence that people in general lack vitamin D -- that vitamin that you can get from sun exposure (among other sources), so 15 minutes in the sun, in teh cooler parts of the day (like early morning, late afternoon) could be helpful.

I take a multivitamin..when I remember it, and lutein (a vitamin supplement for my eyes).  That's pretty much it.

Please do this, though: if you start taking ANY supplements...even vitamins, even "natural supplements", over-the-counter stuff -- anything added like that to your daily routine, please make sure you tell your doctor what you're doing.  You may choose to continue to take those things even if he advises against it..but at least he'll know what else you're taking, should there be any health problems down the road.

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 7/2/2007 2:36 PM (GMT -6)   
Hi Barb,
 
    This is a very good question and personally I believe the best route is a well balanced diet to get what you need.  Vitamin D does have some benefits especially with women where bone density is an issue and some folks with MS are deficient in it.   Just remember whatever supplement you decide on that more is not better and may be harmful so just make sure you ask the doc how much is safe for you :-)
 
    Here's a good article that might interest you.
 
Co-moderator for Multiple Sclerosis
 
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CTC
New Member


Date Joined Jul 2007
Total Posts : 2
   Posted 7/3/2007 2:35 PM (GMT -6)   
I've MS for 12 years with various symptoms and exacerbations. For the last 18 months, I've been taking "Udo's 3-6-9 blend" oil and USANA vitamins. I haven't had any problems while I've been taking them. I've also changed my diet. I eat very little meat except fish, which I have eaten more of, and eat more veggies and whole grains. I try to cut out as much saturated fat as I can because Udo's oil gives som much "good" fat. The oil helps replace omega fatty acids that people with MS are deficient in. The USANA vitamins were created by Dr. Wentz who worked with living cells and had to find a way to keep them alive. He developed these vitamins specifically to keep cells healthy. If you are interested in getting started on the oil or the vitamins, send an email. I'd be happy to help.

Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/10/2007 10:37 AM (GMT -6)   

Lorna--

are you taking any of the immune drugs like copaxone, tysabri or the interferons?  when you do have an attack do you get steroids? 


Zoe Butterfly3
MS-- Diagnosed August 2006
 
 


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 7/12/2007 10:04 AM (GMT -6)   

Hi Barb -

Well, what I can suggest is have your dr do a mineral test on you to find out exactly what you are deficient in..  One of my docs did that and found out all kinds of stuff.  I always thought that my multivitamin was enough, since it was for the 'essential' vitamins and minerals, but I was wrong.  My tests came back very low in several minerals that would cause many symptoms of MS (I was being evaluated for MS as well, I did test positive for Lyme, but I'm not going to go down that road on this forum ;o) ).  When they do a mineral eval, they cut a snippit of hair for analysis as well.  I'm at work now and can't remember exactly everything w/o the paperwork of the results, but to say the least, I'm now taking a ton of minerals on top of antibiotics for the Lyme. 

Fair warning!! This is not cheap by all means if you have a bunch of deficiencies like I do.  I was hoping some of the stuff could be prescribed, but of course no!  I'm now on COQ10, Iodoral, Lithate, Vanadium, Throid, Germanium, Copper, B12, plus about 5 others specifically to help w/my Lyme and the yeast infection in my blood.  The most expensive of these is the COQ10, with the Germanium coming in second ($54, $43).  Oh yes, I will be shopping around for this stuff before my 30 day supply is up.  Basically if your not financially prepared to fight this stuff, it can be pretty overwhelming.  I'm hoping I can find all my stuff cheaper online.

Boy this is getting long... ;o) I previously was on a multivitamin, omega 3 and b12 (over the counter).  My neurologist added a diabetic b12 + other b's (prescription) pill to the regimine on top of my neurontin (900 mg/day).  My Lyme dr added 11 more mineral supplements after my mineral tests (this includes ANOTHER b12 but in liquid form) AND 2 different antibiotics! UGH!  I'm currently taking 29 freakin' pills a day. 

So again, I do think everyone here should get a mineral analysis done on them especially if you are in Limboland like I was for the last 9 1/2 mos.  But that's just my opinion, I try to use them sparingly! ;o)  I hope this helped you some.

 



I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/12/2007 10:38 AM (GMT -6)   
do you not have MS or they still don't know?

Zoe Butterfly3
MS-- Diagnosed August 2006
 
 


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 7/12/2007 10:58 AM (GMT -6)   
Hi Zoe -

Neuro still has not ruled it out, however since I have some type of DX, I'll worry about that one and go with the flow until if or when something more comes up in the future.

“There are those who look at things the way they are, and ask why... I dream of things that never were, and ask why not?”

—Robert Francis Kennedy

Drugs, minerals and vitamins. Oh My! - Neurontin, Metanx, Omega3, Ultra Flora, Nystatin, VitB12+ (liquid and pill), Cat's Claw(Samento), CoQ10, Iodoral, Lithate, Vanadium, Nature-Throid, Germanium, Copper, Zyth and Amox.


Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/14/2007 4:00 PM (GMT -6)   
well for me whether it is lyme or ms-- i would love to hear the "regimen" you are on-- my new husband and i both are trying to live a healthier lifestyle anyways and i am so sensitive to drugs--please help you can email me --

Zoe Butterfly3
MS-- Diagnosed August 2006
 
 

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