I’m not sure about the ms hug around the neck, so I will leave that for more experienced people to answer. However, I was wondering if you have ever been tested for esophageal spasms? This condition is common with acid reflux, and is also apparently sometimes misdiagnosed as reflux. As I recall you have problems with reflux?
I went through a period of about a week with a really bad migraine, and at the same time I felt like there was something stuck in my throat that I couldn’t swallow, and that someone was strangling me. When I went to the doctor for the migraine and described my strangling sensation, he said that it sounded like I was having esophageal spasms. Luckily, they did go away for me after my migraine was controlled, so I didn’t require testing or treatment. Anyway, I don’t know if that’s what’s going on with you, but I just wanted to bring up my experience due to the similar “strangling” feeling. Below is some info on this condition:
Hope you find some relief really soon!
For you that are having problems with esophageal spasms you may try a speech therapist or a speech language pathologist specially trained in problems for MS patients. It has done wonders for me. It has helped me with swallowing and the lumps in the throat (which may also be a symptom associated with clinical depression which many of us deal with on a daily basis). I know that feeling of strangulation and tightness was driving me crazy and causing that "MS voice" that many of us are so prone to. Blah!!!
Good night all and I hope the problems resolve sooner than later.
By the way... Happy 4th of July for all my American friends here at Healing Well!!
Ok here is one for the books. I have been in and out of the hospital emergency room twice now for chest pain, tightness in my chest, pain in my back so bad I was thinking I was having a heart attack, my throat was tight. After several EKG's, blood tests, chest exrays, thumping and all the questions, they turned up nothing. I have had a nucleur stress test, a MIBI I believe they call it and found minor heart wall changes and am now scheduled for a cardiac ultrasound to see if that turns up anything.
Today I spoke to my neurologist and mentioned to her this MS hug and she had no idea what I was talking about. She has been practicing for over 10 years and NOT heard about it. I was in shock when I tried to explain the girdling thing to her she got snippy with me and it was like I was coming from mars or something. She talked to me like I was so stupid and was faking the whole thing to get attention. I cried as I am in so much pain and have been since April and can't find out what is wrong with me. Last night at the emergency room the doctor mentioned the possibility of esophogeal spasms and I will talk to my doctor on July 31 about that but I live in Canada and as someone wrote earlier we have to be referred to specialists everytime and so I will have to wait again. So I have a few Demerol pills to tide me over for a few days until then. But it helps to know that I am not crazy here and that someone else is having the same symptoms and it can be MS related. I thought I must be losing my mind and imagining this pain as I have been back and forth to so many different doctors since April and nothing is found. Why won't they listen and understand? It is so frustrating when the doctor or neurologist doesn't believe you.
Thanks for listening
Hi, Dale, yes I was diagnosed in 1999 after a nine year battle of trying to get the doctors to believe that something was wrong. Finally after 2 MRI, one in February of 1999 and one in October of 1999, both in Winnipeg, I was called in on a Saturday morning in December and told that I had MS. That was it. Thank you Maam.
Then I moved here to New Brunswick in 2000 and was so fatigued and was basically told that I couldn't continue to work as my legs were giving out and having terrible spasms, seizures. Some other not so nice symptoms as well. All the usual fun stuff of MS. I was seeing a neurologist here but I can't remember his name right now but he left to go to Halifax to the MS Clinic there and then the new neurologist came here. She is really, what I thought was a good doctor, but the last few times I have needed her, I have found her to be very dismissive and short with me. Almost as though I am faking the symptoms. Like I said yesterday, she has no idea about the MS hug, like I made up the term and yet I go on line and find all kinds of info on it including the term on the MS Canada web site itself, so it gets me wondering about her capabilities.
And no, we don't have an MS clinic near here. The nearest one is in Halifax and I can't afford to go there all the time. That is a 4 hour drive and I would have to be referred there and I doubt she would do that. I just don't know what else to do as there are only 2 neuros in Fredericton that I know of and they both work out of the same very small office. I guess I just have to grin and bear it. Just go to her as little as possible and put up with the symptoms and handle them as I see fit. It's a shame but that is our health care that the rich get the best care and the ones that can't afford to fly to the best care have to accept whatever they can get. Oh, well.
Hi, Dale, yes, the neuro I had before this one was Dr. McKelvey. He was fantastic and I hated to see him go to Halifax but I understood why. But he really knows his stuff and we need him where he can do the most good. How did you get referred to the clinic etc? How did you go about it? Maybe I can wangle something? It does seem like MS isn't my Dr.'s specialty.
I just live in Burton, NB, just outside of Oromocto. Not too far from you actually. Boy I sure notice a difference in the medical system from here to Winnipeg. I was seen by 2 different neuros in Winnipeg and one was at the MS clinic and you can really tell the difference between them. When you have a symptom that isn't so common or textbook MS and the neuro isn't used to it, it is like, NO that is not MS, that is something else. You are dismissed right away and yet all the reading I am doing says there are so many people that are having the same symptoms.
Are you on any of the therapies? I am not on any of them. I was on Betaseron for 7 months and got quite ill on it and then Copaxone for 2 1/2 years and started having awful side effects from it also so we (neuro and me) decided not to go on anything else. So I am just on symptom relief at the moment.
Please keep in touch. And thanks for your help.
Now that is funny. My sister also lives in Geary. Just down from the Race track actually. And I live on the main road of Burton about 7 kms from the bridge. Those people in Geary really do like to differentiate the areas between French Lake and Geary and all the other little areas but to me it is all Geary, ha ha. I grew up on the Waterville Road in that area so to me it has always been Geary.
No, the humidity so far is not getting to me, the air conditioner is doing its job so far. I don't go outside to often when it is hot. I love being warm as I mind the cold so much so so far not too bad.
I agree with you about the disease modifying drugs, I don't like them either, I was uneducated about them when I first went on them and was scared. Once I started researching things it was like Holy crap, what am I doing to myself. And then the side effects started happening and I paniced and that was it. Now after the copaxone I have big gouges in my upper thighes that are called lipoatrophy from the breakdown of the fat in my legs that the injections have caused that will never come back. So wearing shorts is horrible. Its like a really back case of cottage cheese thighs. Really pretty. I found out that Betaseron is made with the same thing as Ecoli bacteria, so that is really nice. No wonder I had the flu for the whole seven months.
I will just treat the symptoms I have with as little medication as I can handle and that is it. I am being seen at the Stan Cassidy Centre here in Fredericton as well so that is a good thing too. I see a doctor there as well so maybe with his help and my GP every thing will be fine. I don't see my neuro until December so I guess I am not doing too bad all told. Take care and stay cool. Keep in touch