Hi Nikffie, and welcome!
I was a lurker on here for a few months as well, before I finally took the plunge and posted. I am so glad I did, as I find this site to be an excellent source of support and information. I hope that you have the same experience.
Congrats on your pregnancy! (wow, you sure went to great lengths to get out of that MRI, huh ). I truly hope that all goes smoothly for you. Please do take care of yourself, and make sure not to overdo. There appears to be a fair amount of info out there about pregnancy and MS, and hopefully people can come along and share some first-hand experiences. Here is a link to the National MS Society website which has general pregnancy info, tips (you might check out the section called "ms and pregnancy: the main event), first-hand stories, etc:
Post Edited (Sunnycitrus) : 7/9/2007 1:36:25 PM (GMT-6)
wow...thanks for the responses!
I realized I had mistyped my name and have now corrected it. Crazy fingers that don't always work (I'm sure it didn't help that I had the AC on high as it is a bit of a heat wave day here - Toronto, Canada).
I took a quick peek at the link Sunny provided and there is so much more useful information than on the Canadian MS Society website. I'll have a chance later to absorb the info and see where my head is at then.
We (the husband and I) are excited about this pregnancy as we were planning on another child until my dx. He will be the greatest weapon I have against anything that comes my way.
I think my earlier panic was 50% shock and 50% fear. Hopefully after some of the reading I have to do and meeting with my doctors that ratio will change for the better.
Wish I saw this before the chat instead of after. Congrats. Both my bigbrat and ltlbrat were oops because I have been sick for over 17 years, first dx as sero negative lupus, because everything else was ruled out, and sometimes you have lupus without the positive ana. I was so scared with the first pregnancy because of being on meds, I stopped them against doctor's advice, felt the best I had felt in a few years. Had a great pregnancy, easy delivery, and easy baby. After six weeks I flared and had trouble holding her for three days. Thank God, for giving me my second "brat", and we were prepared for a flare, I chose not to nurse, and took a six week course of prednison, avoided the flare and was able to get back on my meds. You can feel free to share this with both of your doctors for their feedback. I don't know if you even mentioned flaring after your first. My doc said that is common during the recovery 6 weeks, so we erred on the side of caution.
Since my second, I had changed rhemy's, he never had seen a case of sero negative lupus, dx me with fibro. I was only dx about a year ago with ms, have lesions on the brain, with a negative lumbar puncture, some abnormality on VEP testing, and started copaxone last fall. Had a bad flare in April and haven't ever had a symptom free week since then, and have to admit I am nervous about neuro visit next week, my neuro is watching me for the first year because she feels this could have been ms all along. Don't quite understand what that means, and I'll deal when I have to.
Like I said in the chat, my girls are the greatest thing in my life and God provided them because I might not have chose to because of being ill. HE knew what I needed. I hope you can try to put the fears aside, enjoy your pregnancy, and stay well.
This is a cool and exciting thread. I cannot offer any advice but I am really excited for you. I can imagine that you are worried but you will get through this and then you are going to have the best prize of all - a new baby!!!!!!! And just because you flared before doesn't mean you will this time. Think positive and we all will think positive with you. Keep us posted. This is so great. I loved reading this.
Oh and welcome to the board. Most of us are really nice. Well Kimber is really nice. Sunny is nice but she will get you gardening until it is a compulsion and Rhonda is just scary. Stay way clear of Rhonda . Debbie and Tkelly are cool though. I like them just fine. So welcome and let me know if anyone is mean to you ( like rhonda ).
Love and prayers,