Well, let me tell you i was misdiagnosed three months ago: the neuro said it was MS, and finally, another neuroinmonologist tested me for Lyme and i came back possitive! I don't live in the US (i'm in Mexico City), but i've read (and a lot) in the Lyme forum, that lots of people tested for Lyme in the US, came back negative in the Elisa test. And they recomend to send your blood tests to a Lab called Igenex (i believe it is in California), that is the best to diagnose Lyme... Search a person in the Lyme forum nicknamed "ticker" or "deejavu": i'm sure they can really help you!
I understand how scared you are, bur i think you have to ask for a FULL diagnose, before tanking decisions...
Wish you good luck!