THE TESTS ARE IN???

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/21/2007 5:50 AM (GMT -6)   
Well my lumbar puncture showed the "stuff" for ms but my blood and spinal fluid were negative for lyme-- he wants to redraw for lyme and send the sample to cali still because he didi the dna test one a pcr or something and thinks the western blot from that lab will rule it out-- i have visited both forums now and truthfully i dont' think one is much more fun than the other-- i now lyme is potentially curable with long term antibiotics but once in fected you can have tons of co-infections and relapses in your disease-- sounds so similar it's crazy-- anyhow i still feel better now than i did on copaxone and monthly steroids but my weight keeps dropping no matter how much i eat-- i have been scared -- i just want it figured out so when the time comes i can go on treatments for whatever it may be and the right treatment-- do antibotics have a negative affect on ms?  can mser's take antibiotics-- i am still so lost with all this-- my face is breaking out like i am a 14 year old-- they want to rule out lupus (it's in my family) and als-- please help-- feel quite alone-- thought we knew for sure what was ailing me and now it's like i am a research project
Zoe Butterfly3
MS-- Diagnosed August 2006
 
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 7/21/2007 8:56 AM (GMT -6)   

hey Zoe,

Hang in there.  I know you are scared but it sounds like you are on your way to some answers.  I do believe antibiotics are just fine if you have MS.  People with MS get infections and have them treated just like anyone else.  Your doctor seems good and es looking into every possibility.  This is scary but hang in there.  I don't have any real advice or experience here with the lyme disease but I thought I would post and show my support.  Kiss that cute dog for me. 

Love and prayers,

 


Gretchen
diagnosed: MS  July 2006
 
Life shrinks or expands in proportion to one's courage. 
Anais Nin
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/21/2007 10:44 AM (GMT -6)   
Zoe Butterfly said...
Well my lumbar puncture showed the "stuff" for ms but my blood and spinal fluid were negative for lyme-- he wants to redraw for lyme and send the sample to cali still because he didi the dna test one a pcr or something and thinks the western blot from that lab will rule it out-- i have visited both forums now and truthfully i dont' think one is much more fun than the other-- i now lyme is potentially curable with long term antibiotics but once in fected you can have tons of co-infections and relapses in your disease-- sounds so similar it's crazy-- anyhow i still feel better now than i did on copaxone and monthly steroids but my weight keeps dropping no matter how much i eat-- i have been scared -- i just want it figured out so when the time comes i can go on treatments for whatever it may be and the right treatment-- do antibotics have a negative affect on ms?  can mser's take antibiotics-- i am still so lost with all this-- my face is breaking out like i am a 14 year old-- they want to rule out lupus (it's in my family) and als-- please help-- feel quite alone-- thought we knew for sure what was ailing me and now it's like i am a research project

I can well understand why the doctor wants to be SURE it's not something else causing your symptoms, so it really is a good thing that he's re-testing for lyme, and for other autoimmune diseases (like lupus).  Given your symptoms that are not typical for MS, it will be important to be sure there isn't something else wrong, and not blame MS for something that is indeed treatable -- like lyme -- and curable -- like lyme.
 
Steroids can cause acne, which might be what is causing your face to break out.  They have lots of really negative long-term side effects.
 
As you've already been told by another poster, antibiotics are fine for people with MS, assuming you have an infection that they're designed to treat.  They certainly won't create any problems with your MS, if that indeed is what you have.  They're less damaging certainly than long-term steroids!
 
Does your doctor know of your significant weight loss?  If not, you should be sure to tell him about that.
 
 
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/21/2007 1:02 PM (GMT -6)   

gretchen-- i just gave luna a big smooch for you--we are having a puppy party for my husband b-day tonight--how fun-- 2 boston terriers, one bulldog retiever mix adn luna-- and thank you for your support-- i feel better knowing that antibotics can't hurt ms--- so i will continute on my discovery mission and just live in the mean time--

thank you


Zoe Butterfly3
MS-- Diagnosed August 2006
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/21/2007 7:41 PM (GMT -6)   
Hey Zoe!!

WOHOOO...way to go!! Just live and enjoy life as much as u can as u go...things will happen and u will have things to deal with...but don't forget to live along the way. Health probs can really get in the way of life at times....but bravo to u for moving WITH life. Happy Birthday to u'r hubby!! Have a fun puppy party friend!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/22/2007 7:49 AM (GMT -6)   

Thank you Rhonda -- the puppy party was a blast-- i wish i took video to post of the crazy pouches running around while we were toasting up some smores and camper pies-- great fun-- luna is more tired than i am today--

ok ms question-- since i am in a bit of a limbo and researching blah blah blah-- has anyone heard of mser's treated with antibiotics??? 


Zoe Butterfly3
MS-- Diagnosed August 2006
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/22/2007 8:49 AM (GMT -6)   
Zoe Butterfly said...

Thank you Rhonda -- the puppy party was a blast-- i wish i took video to post of the crazy pouches running around while we were toasting up some smores and camper pies-- great fun-- luna is more tired than i am today--

ok ms question-- since i am in a bit of a limbo and researching blah blah blah-- has anyone heard of mser's treated with antibiotics??? 


Do you mean having their MS treated with antibiotics... or having MS, and being given antibiotics for some other infection?

I do know one person who has been diagnosed with MS and who is on a regimen of antibiotics. He says they have greatly reduced his MS symptoms. Not cured, but greatly reduced.  But he's the only one I know of (I don't know him...only read his threads on another forum).


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/22/2007 9:42 AM (GMT -6)   
i meant treating the ms with antibiotics--- thank syou for answering-- so he has had good results with that -- i would like to hear from him--

Zoe Butterfly3
MS-- Diagnosed August 2006
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/22/2007 3:10 PM (GMT -6)   
Zoe Butterfly said...
i meant treating the ms with antibiotics--- thank syou for answering-- so he has had good results with that -- i would like to hear from him--

I will try to contact him and see if he's willing to correspond with you.  No promises, but I'll try.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 7/23/2007 5:10 AM (GMT -6)   
thank you i am hoping to hear from him-- i know no promises-- but again thank you

Zoe Butterfly3
MS-- Diagnosed August 2006
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 22, 2017 12:58 PM (GMT -6)
There are a total of 2,858,489 posts in 313,644 threads.
View Active Threads


Who's Online
This forum has 155244 registered members. Please welcome our newest member, pandapopk.
684 Guest(s), 12 Registered Member(s) are currently online.  Details
mikeb2308, dafight, Hope4Happiness, Doire, Scaredy Cat, cakegirl, VLou*, Mel B, NiceCupOfTea, Aimzee, dbwilco, Old Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer