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Date Joined Mar 2006
Total Posts : 2146
Posted 7/21/2007 7:49 PM (GMT -6)
Just wanted to chime in with my 2 cents worth - maybe it will help others. I'm 39 and I was diagnosed in Feb. 07. I've been on meds for 3 months now - Copaxone and Avonex in the CombiRX clinical trial. I take both medications at "regular" doses - once a day for Copaxone and once a week for Avonex. At first I had no problems with the Copaxone shots using the auto injector, but over time, the welts started to become more of a problem and were itchy and more red. I called Shared Solutions - they recommended heat before and heat afterward to help alleviate the symptoms and also keeping a log of my depth of injection with respect to body part to help determine optimal depth. I started out using 6 mm all over regardless of area, but now have switched it up a bit, particularly on those thighs (thought I had fat thighs, but I guess there is some muscle in there, eh?
After 1.5 months of trial and error, I've determined for me that heat is worse than nothing - so I eliminated that. I also realized that deeper can actually be better - I use a 7 on my abs (yeah, I've got a little extra there), a 6 on my hips, and I rotate between those areas exclusively, since my thighs were not handling the shots well. I feel around the areas and make sure there's no lumpy spot from a prior injection closer than 2 inches from the site I'm going to inject at. That might seem obvious, but when the Shared Solutions nurse mentioned it, I took note and it sure makes sense.
I haven't tried icing the area before or after, mainly because I have the bee sting pain for about
5-10 minutes and then I forget about
it. The welt stays warm to the touch for about
2-3 days, and may or may not get itchy, but not severely so.
So glad I found this forum - it seems like a great resource for me. Hope everyone is having a super Saturday night - I just took my Avonex shot about
2 hours ago with my Ibuprofen, and hoping for a calm aftermath. Between the two medications, Avonex is the one that kicked my butt. Pretty much what you've read from others - not as severe as some, certainly. I find that if I stick religiously to the every 7 day schedule (not 8 or 9 to accomodate a summer trip (bad idea)) then I really have very minimal symptoms that are easily handled with Ibuprofen. I'm going to post and see if others have the Avonex schedule issue as well (bad things when they deviate from the 7).
Welcome to the board! I started this new thread for u so everyone could see that ur here. We all want to get to know u better! We have several here on Avonex and many should be able to chime in and answer any questions u may have or post comments. I'm sure u'll have lots of helpful info for them too...like here! I"m glad u'v found us and hope u'll find this is a supportive and helpful site. We have more of a family here in so many ways and everyone is so willing to help where they can. I hope u find it's that as well. Also, we have live chats on Mondays at 6:00pm (cst) each week. Please feel free to join us. It's a great way to get some real time answers to u'r questions or just to offer support to others. Take care and, again, welcome to the board!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
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Date Joined Jul 2007
Total Posts : 5
Posted 7/21/2007 8:06 PM (GMT -6)
Thanks for the warm welcome. I like the fact that it's a moderated board, which I'm sure keeps things on track.
I just posted a little survey on my Avonex shot side effects - great to have this here.
CombiRX participant starting 05/07
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Date Joined Jun 2005
Total Posts : 1852
Posted 7/22/2007 8:57 AM (GMT -6)
Welcome to the forum! I see you are making yourself at home here and please feel free to chime in on any discussion. I hope you find us to be a supportive group, the members here are all terrific! We look forward to getting to know you better. Thanks for sharing the information about
the copaxone, leaving it out for up to 30 days! I just got this in the mail yesterday and haven't had a chance to share. Take care and keep posting
Co-moderator for Multiple Sclerosis
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