I'm sorry your neuro brushed you off like that! Maybe if you talked about the MS hug as a girdling sensation, and talked about the esophageal spasms, that language would be more what she might accept, as "MS hug" is really an informal way of talking about the girdling.
It's very good that you did get checked for heart problems, as we don't want to overlook something else that might be going on, but if indeed your heart checked out fine, then it is likely the spasms that the ER doctor talked about.
When you see your general practioner, you might want to ask him if he's willing to deal with whatever MS symptoms you have, bypassing the neuro altogether. I've had MS for 24 years now, and haven't seen a neuro for the last 11 or so. My family practitioner takes care of all my health needs, including anything relating to the MS. If she has questions, SHE calls a neuro and consults, then gets back to me, so I don't have to deal with a second doctor visit.
I've found that specialists (and a neuro is a specialist) really aren't all that interested, sometimes, in the day-to-day treatment of patients. Once they've made a diagnosis, they tend to dismiss patients and don't want to be bothered with routine stuff. Maybe this is where your gp can step up to the plate and not "bother" the neuro anymore?
Thank you so much for your input. It helps to know that. My GP isn't really up on MS but he is a lot easier to talk to that my neuro and I think when I have symptoms I will just deal with them myself or talk to the GP. I will keep my visits to the neuro to a yearly basis or less often.
I am at this point not impressed as you can imagine but to give her credit, maybe she doesn't know that term but girdling she would know. But when even the MS society of Canada in their newsletter uses the term MS hug, you would think that neuros working in Canada would be familiar with the term also.
Well, I don't feel too bad today, but very tight right under my rib cage like I have been doing situps for hours yesterday. Very sore and tight feeling right up my chest and into my throat a bit so I think it is either the esophageal spasm or MS hug.
Thanks again so much for your input. Appreciate it.
Thanks for your help anyway, it is nice to hear that someone else is going through this and it is not just in my head. ha ha. I hope the doctor can figure it out also. At least now I have an idea of what it could be and what it isn't.
I do find drinking water at meals does help a little but it seems evenings are the worst times of all where the tightness in my chest and the sharp pain is the worst.