Help me out..I'm a little confused. What are your symptoms *now*..not something that you experienced 10 years ago, but are not now experiencing? Or are all those things still going on?
It sounds to me like your symptoms now are the dizzyness, concentration problems and memory problems that occur when you're experiencing the dizziness? And an occasional sensation of numbness in an inner thigh and a toe?
The brain MRI you had recently has shown nothing. You have a diagnosis of fibromyalgia, and you are a smoker -- both conditions can lead to all sorts of neurological problems, of course.
As for your MRI -- I've never been an advocate of folks attempting to interpret their own MRI. The folks who do that have had YEARS of medical training and experience. If you really want a copy of your MRI for your medical records, you can request it from your own physician, and when he gets it, he should give it to you. The MRI center works for the doctor -- not for you -- and so are not obligated to give it to you. The doctor, on the other hand, works for you, and so IS obligated to give you a copy, if you request it (or get a copy of it for you, from the center.)
While indeed folks can have MS and have a negative MRI, you are right when you say that if it were MS, it would be unlilkely that it would not show up after 10 years. But then here is where the confusion sets in for me: if you're no longer experiencing those same symptoms that drove you to a doctor 10 years ago, it's possible that whatever was ailing you then cleared up..went away..and in fact wasn't MS, so no lesions where there then, nor now.
Anyway -- tell us more about what your current symptoms are now, and why you doubt the fibromyalgia diagnosis, and maybe we can help you figure out where to go next, if there are other steps you should be taking.
Post Edited (Hope68) : 7/28/2007 2:31:08 PM (GMT-6)
Uppitycats was giving you sound information. I will say that I don't think she was telling you that you have been misdiagnosed. However both Fibro and MS diagnoses can be a long process. They do have many similarities, at least in the beginning. I am sorry that the neuro doctor you went to see was so callous as to say that there is no such thing as Fibro. I know many people who were diagnosed with MS and turned out to have Fibro and vice versa...many that have be diagnosed with Fibro and it later turned out to be benign MS. Doctors are not Gods and they may or may not get a correct diagnosis on the first bounce. However that doesn't give them to be disrespectful to you for any previous diagnosis that has been made. This disrespect can cause a patient to get angry and confused. One thing I will say to you is that if you are comfortable with your fibro diagnosis then go with that as each particular disease will manifest itself eventually. However this is where Uppity and I disagree as she believes in early diagnosis in the case of MS and disease modifying therapy and I do not, and therefore early diagnosis of MS is not as large an issue to me. However that is a personal decision and whatever you decide be your own advocate where your medical treatment is concerned but do not totally dismiss your doctor's input. Take what advice that makes you comfortable because I will tell you many on this MS site want a diagnosis as it gives them some measure of comfort that they can now embark on a course of medical action, as at last, we do not feel like we are losing our minds or imagining all of our symptoms.
I think that if you are comfortable with the Fibro diagnosis, and it seems like you are, perhaps the fibro board is your best place to post. I do not think that it is the intention of any of these boards to compete with each other. I think we are just trying to help and I know that Uppity is very knowledgable and was just trying to be helpful as we all try to be. No one questions your ability to grasp or know all the symptoms of Fibro but rather we were trying to help you. For what it is worth I am the queen of being defensive...and take it from me it serves very little positive purpose. I am, after 55 years, just beginning to grasp that concept. Good luck and I hope things turn out well. Dale
Post Edited (DFC) : 7/28/2007 9:40:55 PM (GMT-6)
I'm very sorry you found my post offensive. It did sound to me like you were questioning your diagnosis of fibro, though, when you talked about fibro symptoms and were questioning whether in fact they were symptoms of MS. If your current doctor is telling you he dosen't believe in fibro as a legitimate illness, seems like you need to be finding a different doctor.
I was truly trying to be helpful, finding legitimate sites that described fibro symptoms that you could print out and share with your doctor, if he still has doubts, that's all.