They are bringing out the big guns! Help me out

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Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 8/1/2007 2:51 PM (GMT -6)   
First of all I appolizes if this do not make sense as my cognitive function have been geatly affected. Can't follow recipes stuff like that whcih makes me feel very unconfident etc.
Anyway just saw my neuro. and had an MRI and it light up like a Christmas Tree.nearly half of my brain. I've been on Avvonex, Copaxone and they did not work....i've had 4 relapses this year alone. My use of the solumedral is so frequent its not nearly as effetice as before.

I have a hard time walking I have alot of wearkness and balance problems. Its gone too far they believe and so big guns means Tysabri.
Just waiting on my insurance to approve.

kind of freaked out yet kind of excited to feel like myself again, very active etc.
ANybondy know how long before its gets working? I'm not finding a lot on line. So ANY information would be helpful.
I've heard great things. It been back out now for a year and no PML reports.

Its just a hard time right now, my husband being my support though through this will not be too bad.
I'm not in too bad condition right?

If it doesn't work they have one more...chemo.

thank you
sorry if it doesn't make sense
Dana

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/1/2007 3:14 PM (GMT -6)   
Hi Dana,
 
    I'm sorry you are having such a rough time!  We had a thread last month about tysabri and Ldn, hopefully you will find some useful information in it.  I added the link below so you can get to it easily.  I do hope you find something that works for you.
 
Co-moderator for Multiple Sclerosis
 
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Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 8/1/2007 6:32 PM (GMT -6)   
Kimber, thank you for forwarding that thread of questions and answers. It was great. Sooo many links. I can't look at them all today is there a way to save this some how?

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/1/2007 6:43 PM (GMT -6)   
Hi Dana,
 
     Threads tend to get buried over time and can be hard to find, so I see what you mean. Probably the easiest way would be to click on the thread again and save it to your favorites in your webbrower. That way you'd have access to that particular thread along with all the links whenever you want to look at it.  I'm glad it helped.  :-)
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 8/1/2007 8:52 PM (GMT -6)   

Hey Dana,

Wow, I am sorry!! You have had a really bad time!  Hang in there.  I don't have any advice I just wanted to offer my support.  I am really hoping the tysabri works for you.  I too, have heard great things about it.  It is supposed to be very effective.  You're remaining quite positive despite your tough year.  You are very inspiring.

Good luck and please keep posting.  I would like to know how you are doing.

Love and prayers,

 


Gretchen
diagnosed: MS  July 2006
 
Life shrinks or expands in proportion to one's courage. 
Anais Nin
 


malachy72
Regular Member


Date Joined Oct 2005
Total Posts : 99
   Posted 8/2/2007 7:48 PM (GMT -6)   
My wife has MS and is taking Tysabri. Although you can't go by her, 3 infusions seems to be the minimum.

My wife felt better after stopping the Betaseron.

Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 8/3/2007 9:32 AM (GMT -6)   
have you asked about ldn?

Zoe Butterfly3
MS-- Diagnosed August 2006
 
 


Zoe Butterfly
Regular Member


Date Joined Jun 2007
Total Posts : 134
   Posted 8/3/2007 10:31 AM (GMT -6)   
oh silly me the thread kimber was talking about was when i was inquiring about tysabri-- there is some great info and links there also some on ldn--
Zoe Butterfly3
MS-- Diagnosed August 2006
 
 

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