Oh yea, I am still here and still have MS... Like a few people, in posts that I have been reading, it has been awhile since I have posted. I just dont want to think about this ugly beast that is in my head (no pun), and I have a few VERY GOOD months. No injections, no medications, and I have been doing better then I have since I was diagnosed in 2003.
However, this ugly beast is not gonna sleep for too long for me. I have had NO NEW symptoms in almost 8 months, and have become well adjusted to the balance and knowing what to expect when I wake up in the am. I have been able to go to work without issue or problems for the last 8 months, I have gone through many of lifes ups and downs without having to worry about MS in addition to. I got a promotion at work that I never expected, planned for, or even thought I was capable of because of how MS has effected my work life. Life was good...
Now, I wake up and have to wonder if today is gonna be a good day, or bad day. Will I be able to pee, poop, see with both eyes, walk without limp or PAIN, will I be able to think and reason at my full capacity? I have been told that a new MS syptom is one that lasts for 24 hours or more. For me, I can have many symptoms in one day that come and go, or stay. ALL symptoms come back at random times and progressively get worse over a period of weeks. From past experience, when a relapse has run it course, I feel like I have adjusted to a new baseline, and generally have less fatigue and pain overall.
My right side is always weaker then my left, and I have no fine motor skills in my hands. I have fatigue. Period. It's just worse when I am in periods of relapse.
Having said this, I think I am heading for a relapse at this moment, but I am hoping it is just and exacerbation related to the heat. My neuro is on vacation, and my PMD is not active with my MS at all. I am going to call him again on Monday and tell him I NEED the IV steroids (I refuse the oral kind because of the terrible side effects = not worth it), and Norco for pain. This is the first time I am feeling the need for narcotics for the pain... =( Weither I am headed to a relapse or not, IV steroids was suggested to be used more aggressively anyways. I also will have close to 3 weeks off work starting Monday, and would not have to miss any work. I have used all my Medical leave for the year and will have no insurance if I call in three days in a row. I know I can't plan things when it comes to MS, but to do everything I can to prevent, or lessen, the effects of MS in my life, I will do!
Now I need reassurance, my mommy... my biggest support... is in Europe and at sea. No phone calls in or out and I dont want to send her an email either.
What do you all think of my plan??? I hate this stupid disease, I hate it, I hate it, I hate it...
Diagnosed with Multiple Sclerosis September 2003 currently taking Rebif, Cymbalta 60mg PO QD, and Provigil 200mg PO BID.