Newly diagnosed, now what?

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BlessedNStressed
New Member


Date Joined Aug 2007
Total Posts : 1
   Posted 8/13/2007 2:21 AM (GMT -6)   
sad  I just found out from a recent MRI w/contrast that I have MS. I went to see a neurologist but he treated me as if I'm stupid, said that my having it is absolutely absurd. I asked him to read the results of my MRI, & when he did, he had made some oh my's remarks, oh, oOOh, OOoh..then said: "Well, the MRI is fine, there's nothing wrong w/you..you don't have MS. Then he excused my recent (past 3-4 mos) as migraines, when I KNOW they're not, as they start in my upper spine/cervical area & penetrate all the way up to my eyes, & when  I move my neck around, especially bring my chin to my chest, I get a bolt of lightning pain down my spine that explodes into pins & needles at the base of my spine. So, to avoid that, I try not to move my neck as much. When I asked him for a copy of my MRI results, he was shocked that I asked, & good thing I did, as the Impression read: Solitary 6mm hyperintense focus in left pericallosal, periventricular white matter. My primary care dr, awesome bedside manners, after I gave her my full details of complaints said that it sounds a lot like MS, even though most people's symptoms are unlike others, mine were of some of the typical complaints, ie: face & hand numbness, right side, strange pain in different locations, stabbing intermittent pain, like some witch has a wax doll version of me, holding a needle in both hands, picking out 2 different areas to repeatedly stick me at. I thought I was going crazy! At the neurologists office, I had a stabbing pain in my left center shoulder that shot electrical pain down the inside of my arm, which changed the color of my skin from tannish/white to dark pinkish/purple, w/white blotches on the palm of my hand that travelled up my arm. I've had stabbing needles on my belly, my breast, my finger tip & the top of my head at the same time, or on the left side of my right fingertip & on the right side of my left leg, just above my ankle, at the same time. I really thought I was going crazy. Then oh goodness, I'm SO TIRED, except right now. I tossed/turned most of the evening from night sweats, as I get either too hot or too cold so quickly. I go to bed cold only to waken sweaty. I was told by my family dr/primary care, after she read my MRI results that its saying it confirmed our suspicions that I have MS. & that I need to get a 2nd opinion since this neurologist treated me as if I'm a neurotic hyperchondriac, which I'm not as I only go to the drs when I can't stand to deal w/pain any longer. Yest into today, I feel as tho I got run over by an 18wheeler, plus my skin seems supersensitive, as if I have a fever but actually don't. I also haven't told my husband.
 
(Mod. Note: I edited u'r post to exclude the information impertinent to the topic of MS and it's effects. Also, I removed u'r email address. For u'r safety, that information should be placed in u'r profile so other members can access it and email u should u request that. Thanks for u'r understanding.)

Post Edited By Moderator (rhondab) : 8/13/2007 9:56:24 AM (GMT-6)


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/13/2007 6:29 AM (GMT -6)   
Do you want Christian marriage counseling, or practical advice on how to deal with your health diagnosis? While a stressful marriage isn't good for you, a medical forum isn't the place to seek marriage counseling, Christian or otherwise.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/13/2007 10:19 AM (GMT -6)   
Hey BlessedNStressed

Wow, i'm so sorry so much is going on for u. U do seem to have a lot on u'r plate, but maybe just approach this health prob at hand for the moment. U have two sweet kids to try to be as well for as u can be. Focus on meds and trying to controll u'r symptoms. It would prob very greatly benificial to u to ask about an antidepressant as well as maybe some form of counseling. U can look into personal...one on one...counseling or even family or marriage. Whatever u do tho, u need to take care of U!! Forget the rest as much as u can and move forward with the steps needed to be well for u'r kids and u'rself.

U said u'r neurologist didn't dx u?? Well was it u'r pcp? Did u get a firm dx? Maybe it'd be a good idea to look into a second opinion. Get cppies of all the test result and mri reports as well as the mri films or cd's. Those will be helpful should u decide to seek that second opinion. What tests have been done other than the mri?? There are many tests that most docs will want to run in addition to mri's and that's to exclude any other possibility of the cause of u'r symptoms.

I'm glad u found this site and i hope u'll find it helpful and supportive and will feel comfortable asking any questions u may have. We will all do what we can to help u find answers. There are so many wonderful people here! Welcome to the board!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

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