Yesterday at a routine follow-up appointment, my neuro decided that he doesn’t think I have ms after all and took me off all of my meds, including Copaxone and symptom meds. This is the guy that originally put me on Copaxone, and strongly agreed with the findings at the Mayo Clinic, namely that a demylinating lesion in my left cerebellar region was causing my vertigo, gait probs, and weakness and incoordination on the left side of my body. By the time I saw this neuro the first time, he felt that this (CIS) had turned into ms, and after another “flare” (or something) which produced new abnormalities in my clinical exam, put me on Copaxone.
He didn’t examine me at all yesterday. He thought I might be a bit depressed and that is causing all these issues, although did admit that a lot of the symptoms and abnormal clinical exam responses I experience can’t be explained away by depression. I asked him if taking me off wellbutrin (originally prescribed for “energy) was a good idea if I am as depressed as he claims. He said that he’s not sure I am even depressed at all, so he is fine with it, and then sent me on my merry way. He does want me to go get some further testing, but I think at this point I’ve pretty much had it. This caught me totally off-guard and I am still reeling from it. I think it’s time for me to try and forget about this stuff as much as possible, so I don’t know how much I will be around. I feel really bad that I gave you all the impression that I had ms…I just thought that I did. I just want thank everyone! You have all been so supportive and caring, and I appreciate that so so much!
I wish you all the very best,
Happy Moments, Praise God.Difficult Moments, Seek God.Quiet Moments, Worship God.Painful Moments, Trust God.Every Moment, Thank God.
“There are those who look at things the way they are, and ask why... I dream of things that never were, and ask why not?”
—Robert Francis Kennedy
Drugs, minerals and vitamins. Oh My! - Neurontin, Metanx, Omega3, Ultra Flora, Nystatin, VitB12+ (liquid and pill), Cat's Claw(Samento), CoQ10, Iodoral, Lithate, Vanadium, Nature-Throid, Germanium, Copper, Zyth and Amox.
I know you are so frustrated and discouraged. Hang in there girl. You cannot leave. I simply won't let you. Not only are you so incredibly loved here, you have been a huge support to us too. I cannot imagine HW without you. So, selfishly I am not going to let you go. Take a break if you want but I need you here. We love you and want you to stay. I will come up there and help with this or the big pond project, just let me know.
I will leave the worms at home. I actually don't have worms, rhonda does. But I can bring some for your garden. I love you, sunny. Take really good care and know that we all need you here at HW.
love and prayers
Thank you all for such kind words of support and encouragement. They really mean a lot to me.
Hi there, did any one ever have contact with Sunny - I see the last contact on this thread was in August 2007, other than Kiera which was today.
I was wondering how this person is doing, and if they (the professionals) were able to come up with another dx, seeing that they decided that MS was not the culprit. This really seems to be to the extreme, dx MS, start the Copaxone medication, and then say no and stop it???? Wow.
Yeah we all hear from Sunny from time to time. She is hanging in there. I am sure she will be along soon to elaborate. She does not go back to her Neuro until February. She is a pillar. She is very strong and copes really well despite being plagued by squirrels and pestered by Rhonda and myself. Shar is actually nice to her and that is probably a good thing. Hehe.
You are so kind to ask.
Love and prayers,