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odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 8/23/2007 9:42 AM (GMT -6)   
saw my neuro last week. told him i was having a lot of trouble finding an injection site that didn't hurt a lot. for the moment, i'm on intravenous gammaglobulin (ivig} and i do feel some relief after a drip. also got a port installed in my chest so the ivig could be easier to connect. prior to this, veins kept collapsing. glad my neuro decided to try this approach... of course, i told him i kept forgetting the injections because it hurt. wish me luck out here in this less painful new territory! linda

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/23/2007 4:32 PM (GMT -6)   
Hi Linda!
 
    I hope this treatment works well for you, will you let us know please?  The IVIG isn't something that has been discussed here that much before and I'm sure others would be most interested in hearing more about it.   It's expensive from what I've heard, is your insurance covering the cost for you? 
 
    Here's a link for anyone who might not know about this treatment http://www.msadvances.com/faq.php3#othermeds
 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 8/23/2007 5:33 PM (GMT -6)   
been on ivig for a year now. up until now i was on copaxone or rebif in addition to the drip. never had any side effects from ivig. always take an advil and benedryl an hour before drip is to take place.

had the first treatment at doctor's office. since then, i get the solution sent to me via messenger a day or so before the drip date. nurse comes on scheduled day and i take solution out of refrig. a hour or so ahead of time. as i said, had to get a port because of collapsing veins. vein gets flushed out and i get connected. the nurse uses a pump which keeps the solution dripping at a steady rate and speeds up the time needed. it still takes three to four hours. i call it my boring time. have to stay put with drip connected. connection tubing is left in overnight and removed after the second day's drip.

know it's doing something, as feel more symptoms when it's getting close. doctor was nice enough to allow me to try going with the ivig. my regular aetna medicare doesn't cover any, as it's not exactly accepted treatment. however, do have paad which is a prescription plan put out by the state of nj and that does cover it.

ivig not as scary as i thought. have become quite good friends with the nurses that usually come. i'd be glad to answer any other questions about ivig. linda
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