Post Edited (calicorosie) : 8/24/2007 2:49:13 AM (GMT-6)
Well, clearly something is going on with your body. And as you noted, we can't diagnose you. While you are waiting for your doctor to return, you should do what you did here -- document when various symptoms started, as best you can, and form a sort of "diary" for the doctor.
Generally your symptoms sound like they could be related to having MS, but there could be other things too, like thyroid problems, diabetes, other stuff that is treatable.
When is your doctor due back?
You do have a lot going on there. I would get to the doctors as soon as you can. I am sorry you are going through all this and I am especially sorry that you are having such problems with your anxiety. That has to be rough. Your symptoms sound a lot like mine. But again, there are a lot of things that can give you these symptoms. Good luck at the doctors and keep us posted. This is a great place and you will find great support here.
love and prayers,
Thanks again everybody for taking the time to reply to me. I am a bag of nerves today, knowing that tomorrow is the appointment but I only have 24 hrs to go and hopefully after that, I will feel just a little better after having discussed it with my doctor.
I tend to read too much into things and have researched this thing probably too much. Now I am imagining I have a tumour on my spinal cord but a good friend pointed out to me that if that was the case,the symptoms probably wouldn't have gone away completely a year ago and then recurred a whole year later. She felt that symptoms would have continued from 2006. She is trying hard to keep me calm :)
Well I made it to the Doctor today. She was so sweet and concerned for me that I had been living the nightmare for a few weeks without seeing her. She knows how anxious I am and felt really bad that I had been dealing with it.
She is referring me to a neuro but of course it may be a while before I can get an appt. Meanwhile I have to go for bloodwork tomorrow and an x-ray of my lower back plus she is ordering a CT scan for me. She talked about how she herself cannot order an MRI so the Neuro would do that if he thinks its necessary.
I told her outright that I was concerned about a brain tumour but we talked about it and she said she is not concerned about that as my major symptoms have only come once a year (so far) She performed quite a few tests on me , I believe standard tests to check for certain things that she was able to rule out. She said, as some of you have, that it could be something else but because of the history of my symptoms. she herself would certainly consider that it could be MS.
I gave her my list that I had taken in (thanks so much for that suggestion) Of course, this evening I thought of another thing that had happened to me a few months ago when my feet and ankles went stiff on me for several days after I had been on a long walk one evening. Anyway, I will mention that when I see the neuro. I asked her to please give me something for the burning pain on the skin around me waist where I have the 'hug' going on and she prescribed Neurontin.
Thanks everyone for your support. I have to admit, even though I am no further along towards knowing what is going on, I feel so much better just having spoken to my wonderful family doctor.
Thanks for replying to my post. All of you have been so kind.
I got my neuro appt yesterday....Dec 6th! Its gonna be quite a wait. I feel 'somewhat' better these last couple of days but its a very, very small amount. My legs are less stiff and less heavy mostly.
Well thanks again
Take care everyone
Just a quick update
Fingers crossed I have been feeling a little bit better lately but still numb down my legs and in my feet as well as my right thumb and forefinger. Both of my big toes are very numb and feel like blocks of ice and I feel like I am wearing really tight socks on my feet. I still have the band around my waist most days as well but the nerve pain I was experiencing there is much, much better. Not sure if that is because of the Neurontin or if I am just slowly, slowly coming out of a flare. It was really strange because on my stomach where I had the soreness, I had a spotty rash which was so uncomfortable to touch as well as really itchy. It felt like my skin was burning there. It looked like chickenpox and I had to wonder if it was a shingles-type rash as it was definitely at my nerve endings but just on one small area of my stomach. Anyway, it has cleared up now , apart from a few tiny scabs.
I haven't been able to see my PCP since the bloodwork as she extended her vacation and can't see me until Oct 1st. I did speak to her office though and they assured me that she woud have been in touch before her vacation if something significant had shown up. For that I was quite relieved. It has been 4 weeks since I went in.
Tomorrow (or today actually) I have an appt for an ultrasound. This is just one of the tests she has ordered in order to give me a complete check-up and on Oct 10th I have a CT scan scheduled. I am a little nervous because as I said, I've always been that way when it comes to medical stuff but I know I have to do it. I made it in for the bloodwork so I can do this too
That's all from me. Thanks so much everyone for all of your support. I will be checking in much more.
Post Edited (HighlandWolf) : 9/25/2007 10:03:28 PM (GMT-6)
Hi as you can see I am new here, but I am currently in the research mode of what is happening to me and your original post struck some chords with me. I am 43 by the way tho at times lately I have felt closer to 84.
Early April of this year I noticed that my vision would blur over, lasting sometimes a few minutes sometimes half an hour then come right, this would happen numerous times in a day. I was also getting pins and needles and numbness in my legs and feet which i would think...odd I'm not sitting funny and a feeling of total exhaustion would suddenly hit me, it was either lay down and sleep now or you will fall asleep where you stand. I was also tripping over my own feet, it got to be a bit of a joke with my friends......but there is NOTHING THERE!!!!
This all went away after a few weeks and I thought no more about it, until July of this year when I was suddenly struck with dizziness and a feeling of vertigo, my face would go numb in a manner I described as like someone had painted triangle clowns eyes down my face. My right eye twitched non stop for 6 weeks one time spasming so hard I couldnt open it for ten minutes. At this point I was sent to a specialist who told me as my symptoms came and went (other than that darned twitch) it was not MS. She did send me for an MRI tho which came back 'mostly normal' (uhuh and what does that mean????) She suggested I went home and breathed into a paper bag as I was probably just hyperventilating.
Since then I have got worse (I think I must be hyperventaliting pretty bad by this point) my arms ache particularly my right arm and I cannot squeeze the conditioner/shampoo and body wash out of the bottle. My hand go numb or just odd feeling. My right eye is sore and feels sometimes like it has grit in it, sometimes a wet moist lump and sometimes like someone is drilling into it. I cannot form sentences at times, I know in my head what i want to say but different words come out. I zone out when people talk to me....my daughter is sick to death of hearing....did you answer me and what was the answer? I cant remember which toothbrush is mine until I am half way thru brushing my teeth and realise buggar I have my husbands toothbrush AGAIN! thats the days I lose the argument with myself as to whether i have already brushed my teeth or not. i have someone poking pins in my body in all sorts of interesting places, lots of body parts go numb some for hours some for minutes, the band round my throat fortunately only lasted for half an hour because i really didnt like that AT ALL. I am so tired from about 11am on...fortunately I work for a family business so when my lunch time lay down turns into a three hour 'nap' its not too much of a problem.
As I am getting no joy from the medical profession I am currently in the elimination process, I recently had my eyes tested the optometrist said when I described my symptoms...are you sure its not MS....my reply ....apparently I am just hyperventilating. She could find no causes in my vision to be causing my eye problems tho I did have a small blind spot in my right eye and she is asking my dr to refer me to an optomologist..we shall see. Next week I am going to an Oestopath to see if they can find anything causing these probs. From there I am stumped other than doing my own research....which is how I ended up here ....from all i have read my symptoms seem to fit here more than anywhere else...and with the lack of alternative diagnosis I am running short of options and patience.
sorry to bleat so long but as you can tell I am frustrated, confused and pretty much feed up and just needed to get all that off my chest and I figure you can stop reading anytime your sick of me lol.