New member....Does this sound like MS?

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calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 8/24/2007 2:34 AM (GMT -6)   
Hi
I am a new member here. Before I post my question, I just want to say that I have learned so much from reading on this forum.
 
I just wanted to post a brief history of my last two years. I am a 44 yr old mother of three wonderful kids. I haven't been to the doctor yet as she is away and I have a fear of going in and I really want to see my own one rather than somebody else. I suffer from panic disorder and she is a very calm person who won't send me into a panic attack with her words.
 
Two years ago in the summer of 2005, I started to suffer from dizzy spells or vertigo. I put it down to my anxiety and after a trip away for a few days when it was really bad, I went in to see my doctor and she put me back on the medication I take for anxiety and panic attacks (paxil)
 
All was well for a while until January 2006 when I woke up one day with a sore eye. My vision was blurred and it felt like I had something in it. Colors were faded for me, I did have peripheral vision but there was a huge blurr in the middle. I also had an aching behind the eyeball that was quite bad at times. I am a busy mother of three and for some reason, I just put it down to having got something in my eye and I didn't pursue it. It finally got better after a week or more and I went on with my life. Yes I know I should have gone to get it looked at but because I have a fear of doctor's offices (due to my panic disorder) I just adopted a 'wait and see' attitude.
 
Then in June 2006, the bottoms of my feet started to tingle and they then went numb after a few days. Also, it began to feel like I had a tight pair of socks on my feet and and up my legs to my knees. The numb feeling travelled up both of my legs and actually into my buttocks. It lasted for at least a couple of weeks, infact probably closer to a month. My fav doc was on mat leave and being the chicken that I am, I left it and once it went away, I forgot about it.
 
Jump to this July 2007. That same problem came back again only this time, it travelled up my legs and I now have what I can only describe as a tight feeling around my waist. As I am sitting here now, I could swear I have a belt around my waist only I don't. The feeling that I am wearing socks is back again.  My skin from my feet to my waist feels sunburned and I can hardly bear to even wear clothing. My legs feel incredibly heavy and walking up and down stairs is getting harder for me although some days it seems fine. I have been feeling this way for about 3 or 4 weeks now. Also, I have a sort of electrical shock feeling in my neck and shoulders when I sit in a certain position.
 
I have read and read these boards and many others and learned so much. I realise of course that nobody here can diagnose me :) I just wanted to ask if anybody else here can relate to what I am feeling.  Ever since I had my kids I have awful anxiety about being fatally ill and having to leave them :( A brain tumour is what I am worrying about although I have read symptoms and don't feel like I have any of them.
 
I know I have to see the doctor and I will do as soon as she is back next week. I guess I just felt I would post here to kind of vent.
 
Thanks
 
Just remembered to add about my feet and legs. Even though they are numb, it is almost like its the skin that is numb if that makes sense. For instance if someone kicked me I would feel it.However my feet alternate from feeling like blocks of ice to being on fire, the same with my legs from the knee down.

Post Edited (calicorosie) : 8/24/2007 2:49:13 AM (GMT-6)


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/24/2007 7:22 AM (GMT -6)   

Well, clearly something is going on with your body.  And as you noted, we can't diagnose you.  While you are waiting for your doctor to return, you should do what you did here -- document when various symptoms started, as best you can, and form a sort of "diary" for the doctor.

Generally your symptoms sound like they could be related to having MS, but there could be other things too, like thyroid problems, diabetes, other stuff that is treatable.

When is your doctor due back?

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 8/24/2007 4:19 PM (GMT -6)   
Hi Calicorosie, (love the name by the way)
How are you? You sound just like me. I had the same fears when i started having strange symptoms like this. I think that any good mother has the fear of getting sick and having to leave their children  alone. That was my biggest fear. I was to the point that i was asking my daughters god mother to make sure she takes her if anything happens, how silly,lol. It's funny you say the brain tumor too, b/c that is all i kept saying also, and guess what? there is no tumors in there, lol. Everyone thinks the worst when your body starts giving you problems. I too, had fear of doctors, never went to one, ever. I was scared to death, but i went b/c i have a daughter who needed me. And your babies need you. You have to go and find out, don't put it off, there is meds to treat the symptoms if it is MS and therapy to slow the progression. There are so many diseases that mimic MS too, don't jump the gun. Like Uppity said, write everything down and take it with you, cuz when your in there its seems as though you can't remember anything. You will be fine. Try and relax. You asked if anyone can relate to what you are saying? Oh my, i feel like your words are mine. I can relate totally. I hope everything works out for the best for you. If you would like to talk my email is on here. I would be happy to help in anyway. it makes a big difference talking to someone who knows how you feel. This is an awesome site. Tons of great people, with alot of advice. Love and Prayers,
Lynn
Dx Dec 06, Rebif,44mcgs 3 x wk, Baclofen, Lyrica, Celexa


calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 8/24/2007 6:05 PM (GMT -6)   
Hi again
 
Thanks for the replies. I went ahead and made an appt for Monday as the doctor will be back then. I am so, so nervous about it and probably will be in a panic mode all weekend.
I am going to write it all down, thanks for that tip. Today I feel so sunburned around my torso, it is driving me nuts.
 
Thanks again.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 8/24/2007 10:57 PM (GMT -6)   

hey Calicorosie,

You do have a lot going on there.  I would get to the doctors as soon as you can.  I am sorry you are going through all this and I am especially sorry that you are having such problems with your anxiety.  That has to be rough.  Your symptoms sound a lot like mine.  But again, there are a lot of things that can give you these symptoms.  Good luck at the doctors and keep us posted.  This is a great place and you will find great support here.

love and prayers,

 


Gretchen
diagnosed: MS  July 2006
 
A person without a sense of humor is like a wagon without springs.  It's jolted by every pebble on the road.
Henry Beecher
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/25/2007 2:59 PM (GMT -6)   
Hey Calicorose

Wow...a lot going on with u! I"m so sorry and so glad too that u'r seeing u'r doc soon! I can understand u'r not wanting to see other docs than u'r own and hope he will be able to bring u some relief. Most here have experienced these same symptoms and can certainly relate. If u find u have questions about them or meds to help control them, please ask. Everyone here is so supportive and helpful! This is a great community of people and all are willing to do what they can to help u. I"m so glad u'r here with us and hope u find this as helpful as we all have. We have live chats on Monday's at 6:00pm (cst) weekly. I hope u'll be able to join us! Welcome to the board and please do let us know how u'r doing and how the appt goes.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 8/26/2007 3:52 PM (GMT -6)   

Thanks again everybody for taking the time to reply to me. I am a bag of nerves today, knowing that tomorrow is the appointment but I only have 24 hrs to go and hopefully after that, I will feel just a little better after having discussed it with my doctor.

I tend to read too much into things and have researched this thing probably too much. Now I am imagining I have a tumour on my spinal cord but a good friend pointed out to me that if that was the case,the symptoms probably wouldn't have gone away completely a year ago and then recurred a whole year later. She felt that symptoms would have continued from 2006.  She is trying hard to keep me calm :)

I will post tomorrow to let you know what is discussed.
Thanks so much everybody
 
Take care
Mandy

calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 8/28/2007 12:47 AM (GMT -6)   

Well I made it to the Doctor today. She was so sweet and concerned for me that I had been living the nightmare for a few weeks without seeing her. She knows how anxious I am and felt really bad that I had been dealing with it.

She is referring me to a neuro but of course it may be a while before I can get an appt. Meanwhile I have to go for bloodwork tomorrow and an x-ray of my lower back plus she is ordering a CT scan for me. She talked about how she herself cannot order an MRI so the Neuro would do that if he thinks its necessary.

I told her outright that I was concerned about a brain tumour but we talked about it and she said she is not concerned about that as my major symptoms have only come once a year (so far) She performed quite a few tests on me , I believe standard tests to check for certain things that she was able to rule out. She said, as some of you have, that it could be something else but because of the history of my symptoms. she herself would certainly consider that it could be MS.

I gave her my list that I had taken in (thanks so much for that suggestion) Of course, this evening I thought of another thing that had happened to me a few months ago when my feet and ankles went stiff on me for several days after I had been on a long walk one evening. Anyway, I will mention that when I see the neuro. I asked her to please give me something for the burning pain on the skin around me waist where I have the 'hug' going on and she prescribed Neurontin.

Thanks everyone for your support. I have to admit, even though I am no further along towards knowing what is going on, I feel so much better just having spoken to my wonderful family doctor.

Take care

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/28/2007 5:07 AM (GMT -6)   
Sounds like your doctor visit went well, and she's being very thorough. As you surmised, it sounds like most of those tests are to rule in or rule out other causes for your symptoms, and then the neuro visit might focus more closely on MS. I hope she'll be able to get you in to a neuro soon. Keep us informed as you move through these tests, OK? Take care.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 8/29/2007 8:48 PM (GMT -6)   
Hi Calicorosie,
Keep at it , you did great, first step to getting to the bottom of this! Baby steps calico, LOL. Keep calm and do what you have to do, you'll be glad you did. What's to be will be, you will be fine! Relax, breathe and have faith.
We are all pullin for you, you are stronger than you think ! You are a woman for god sakes.
Thoughts and prayers,
Lynn
Dx Dec 06, Rebif,44mcgs 3 x wk, Baclofen, Lyrica, Celexa


dixiecup
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/6/2007 7:06 AM (GMT -6)   
Calicorosie - I came across your post and thought I was reading my own story. I was diagnosed at age 45, but looking back I am sure I had MS for years before the diagnosis. I went from one doctor to another for various symptoms, in particular the dizziness, which would be so quick that I would sometimes wonder if I had actually been off balance. Tests for inner ear problems, etc. all normal. The optic neuritis was the turning point. I must say that although the diagnosis was at first hard to take, it was actually a relief to know what was wrong and that I was not imagining all the weird symptoms I had been having for years. There were times the fatigue was so bad that I crawled under my desk at work and lay down on the floor. There were other times that I could barely walk to my car after work without straying all over the sidewalk. Anyone following me would have thought that I was drunk. That was 12 years ago, and I learned long ago to take one day at a time. From a personal standpoint, if your doctor ever prescribes any antipdepressants please please please do some research before taking any. Not much is ever said about it, but these drugs can cause debilitating withdrawal side effects. I urge you to think about this very strongly if it is suggested. Good luck to you and you will definitely be in my prayers. There are a lot of us out here -- I am so glad I found this site after all these years of going it alone, pretty much.

calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 9/7/2007 11:25 AM (GMT -6)   

Hi Dixiecup,

Thanks for replying to my post. All of you have been so kind.

I got my neuro appt yesterday....Dec 6th! Its gonna be quite a wait. I feel 'somewhat' better these last couple of days but its a very, very small amount. My legs are less stiff and less heavy mostly.

Well thanks again

Take care everyone :-)


HighlandWolf
Regular Member


Date Joined Jul 2007
Total Posts : 27
   Posted 9/7/2007 7:15 PM (GMT -6)   
can you explain optic neuritis and the symptoms?
Even a man who is pure of heart and says his prayers by night will become a wolf when the wolfsbane blooms and the autumn moon is bright.
 
 
 
Confirmed Diagnosises:
Rheumatoid Arthritis (27 years) Neuropathy (from RA 11 years) Genetic Nerve Deafness (10+ years) OsteoArthritis (12+ years) GERD (17+ years)Myalgia(15+ years) Mild HBP (less than one year) Complicated Migraines ( 15+ years) Vertigo( 3 years) Allergies and Chronic Bronchitis, (all my life)Chronic Diarrhea (16 years)Cervical Spondylosis..just diagnosed. Osteophyte Disc complex..just diagnosed..Cervical Stenosis..just diagnosed..4 bulging discs..just diagnosed.
 
Medications: Zantac,Vicodin,Lisinopril, 
Relpax,Arava,Nasorel, Singular,Meclizine,Lomotil,Ultram. 
 
 
Non-Prescription:
 
Chromium (to regulate hypoglycemia)
Biotin (also to regulate hypoglycemia)
B Vitamins
Vitamin C
Green Tea
Papaya ( for replacement of enzymes lost from gall bladder removal.)


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 9/7/2007 8:24 PM (GMT -6)   
Hi Highlandwolf,
 
    Optic neuritis (you'll see it referred to ON here too) is inflammation of the optic nerve in the eye.  While it's most commonly associated with MS there are other causes for it.  It typically effects just one eye and comes on suddenly rather than gradual.  Some people experience pain behind the eye or moving the eye, blurred vision, abnormal colors, or light not seeming as bright as it should. 
 
    Hope this helps, and here's a website with more detailed information should you need it.
 
 
Kimber
 
   
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 9/24/2007 1:41 AM (GMT -6)   

Just a quick update

Fingers crossed I have been feeling a little bit better lately but still numb down my legs and in my feet as well as my right thumb and forefinger. Both of my big toes are very numb and feel like blocks of ice and I feel like I am wearing really tight socks on my feet. I still have the band around my waist most days as well but the nerve pain I was experiencing there is much, much better. Not sure if that is because of the Neurontin or if I am just slowly, slowly coming out of a flare. It was really strange because on my stomach where I had the soreness, I had a spotty rash which was so uncomfortable to touch as well as really itchy. It felt like my skin was burning there. It looked like chickenpox and I had to wonder if it was a shingles-type rash as it was definitely at my nerve endings but just on one small area of my stomach. Anyway, it has cleared up now , apart from a few tiny scabs.

I haven't been able to see my PCP since the bloodwork as she extended her vacation and can't see me until Oct 1st. I did speak to her office though and they assured me that she woud have been in touch before her vacation if something significant had shown up. For that I was quite relieved. It has been 4 weeks since I went in.

Tomorrow (or today actually)  I have an appt for an ultrasound. This is just one of the tests she has ordered in order to give me a complete check-up and on Oct 10th I have a CT scan scheduled. I am a little nervous because as I said, I've always been that way when it comes to medical stuff but I know I have to do it. I made it in for the bloodwork so I can do this too :-)

That's all from me. Thanks so much everyone for all of your support. I will be checking in much more.

Take care


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/24/2007 6:29 AM (GMT -6)   
calicorosie said...

Just a quick update

Fingers crossed I have been feeling a little bit better lately but still numb down my legs and in my feet as well as my right thumb and forefinger. Both of my big toes are very numb and feel like blocks of ice and I feel like I am wearing really tight socks on my feet. I still have the band around my waist most days as well but the nerve pain I was experiencing there is much, much better. Not sure if that is because of the Neurontin or if I am just slowly, slowly coming out of a flare. It was really strange because on my stomach where I had the soreness, I had a spotty rash which was so uncomfortable to touch as well as really itchy. It felt like my skin was burning there. It looked like chickenpox and I had to wonder if it was a shingles-type rash as it was definitely at my nerve endings but just on one small area of my stomach. Anyway, it has cleared up now , apart from a few tiny scabs.

I haven't been able to see my PCP since the bloodwork as she extended her vacation and can't see me until Oct 1st. I did speak to her office though and they assured me that she woud have been in touch before her vacation if something significant had shown up. For that I was quite relieved. It has been 4 weeks since I went in.

Tomorrow (or today actually)  I have an appt for an ultrasound. This is just one of the tests she has ordered in order to give me a complete check-up and on Oct 10th I have a CT scan scheduled. I am a little nervous because as I said, I've always been that way when it comes to medical stuff but I know I have to do it. I made it in for the bloodwork so I can do this too :-)

That's all from me. Thanks so much everyone for all of your support. I will be checking in much more.

Take care

Do be sure to tell your doctor about the rash, even if it has disappeared! That could be an important clue as to what is going on with you. Shingles certainly is a possibility, but there could also be some other systemic infection or virus!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Paris Girl
Regular Member


Date Joined Feb 2006
Total Posts : 33
   Posted 9/24/2007 11:45 AM (GMT -6)   
Thinking of you.................sending prayers your way on the wings of angels...................


Hugs,
Paris Girl


Still in LimboLand

calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 9/25/2007 12:06 AM (GMT -6)   
Thanks so much uppity and Paris Girl. I really appreciate your replies.

I went for the ultrasound and being the nervous Nelly that I am I spent the whole time reading into the questions that the technician was asking me as she was doing the scan. She asked if she could do a trans-vaginal ultrasound to check some sutff which completely got my mind spinning . She went ahead and did it and was asking all kinds of questions regarding when I was going for my CT scan and when I was going back to see the Doctor. She even said something that completely threw me. I told her it had been 4 weeks since I had my bloodwork done and I hadn't been called back in. I told her I have an appt for Oct 1st to discuss that and she said "does you doctors office have the results? You'd better make sure because things can get lost you know" I felt like saying, "you mean to tell me that I could have something significant wrong with me and 4 weeks later, nobody has told me because you are so inefficient in this town that you lost my results?" I didnt feel like getting into it with her so bit my tongue. I found her quite insensitive, almost like she could sense my anxiety over the whole thing and was enjoying watching me suffer. She was just quite odd.
Maybe she was one of those people with a strange sense of humour and was just trying to make the whole experience light for me. I don't know but I am quite nervous tonight wondering if she saw something there.

Well, I will have to take my mind off it for now I guess or I'll drive myself insane.
Take care and thanks for your thoughts :)

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/25/2007 7:42 AM (GMT -6)   
She was being honest -- test results can and often DO "get lost" in the doctor's office. They'll be put on a stack of stuff for the doctor to review and get farther and farther down the pile. Or the doctor will have tried to call you, or perhaps asked one of his staff to call and they forgot. Or they tried, got a busy signal, intended to try later, and forgot.

You should NEVER take a "no response" as a positive response. It simply is what it is...the doctor didn't call back. It's always a good idea to call the office about 10 days or so after any tests, and ask for information about the results. If nothing else, it triggers them to find them and get back to you.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


HighlandWolf
Regular Member


Date Joined Jul 2007
Total Posts : 27
   Posted 9/25/2007 10:00 PM (GMT -6)   
Remember I have said my neuro doesn't listen. He was treating me for food allergies and depression!! I am not depressed,nor have I ever been. When I would try to tell him what was going on..he would say just follow your medicines and take them on time. I said I do,and it does not work! So he would keep upping it..then I found out it was sulfa..no wonder I had huge rashes and bad indegestion..The stupid jerk when I called the office the receptionist told him what was going on..he says go to er go to er. I told her I stopped taking it Friday night,this was Monday. I said he knew I was allergic..or whether he forgot or ignored it..thats how it is. She found my chart and there, big as life..Sulfa allergy. She took a red marker and marked the file. Needless to say, I was not going back. My symptoms are getting worse instead of better.

My Pain Management doc..the one taking care of my discs,spondylosis and stenosis, said this..Get away from him..he then referred me to a female neuro down by Carbondale,IL..I live in IL..Where the dodo on the first visit and all visits,would never be in with me over 15 mins, Dr.K was in with me almost 2 hours. She was doing all sorts of things. And what do you know? The dork ex-neuro lied..they never sent the records..as promised.

That dude never even read any of my reports from my EEG and CT Scan..he said he barely glanced at the pictures from the CT and says..I never seen anything.

Dr.K told me she doesn't place any trust or confidence in anything dodo says, I am the six patient she has taken over in less than 8 weeks.

She did all sorts of things to my legs,feet,reflexes,she would touch places and they would jump wildly. I told her my symptoms that have either started or gotten worse since the former PA-C dropped the ball on my health..(Anyone know any good lawyers Southern Illinois or St.Louis area..seems no one wants to fool with this case..and my SS caseworker told me to sue her til shes broke. I have had other caseworkers and such say this.)

I have pain and tingling in my legs and feet.
Hot burning cactus needles and the more numb my hands get the worse the pain and burning gets..
My right hand shakes a lot at times..she noticed this
I have severe vertigo,have to take meds..
severe migraines..
hearing has gone south,now have a hearing aid
memory really has gone south..short term is basically lost. I have to write a schedule for each day,and if I get off it,Lord help me,I get confused and aggravated. I never did this before.
Some long-term memory is gone
Eyesight is bad..very myopic It's blurry at times..
Eyes are dry a lot..have to use artificial tears
I have sometimes nauseating pain in and behind my eyes.
I have no peripheral vision.Have a while.
I cannot feel my hands and feet 75% of the time..but I can feel the hot cactus needles..
my balance is way off at times..today was a bad day..legs were heavy...cramping..which they do a lot..
and they were tingling from hip to toes.
I have severe issues with heat
I never used a cane before the viral infection,nor all these issues.

I told all this to Dr.K
that Friday I had 6 large vials of blood taken by the vampires..
the next week,
I had an MRI in an open MRI..thank goodness it's open..I hate MRIs
the next day..I had one with contrast.

I seen the films,I have to take them to her the 4th.

I told my friend..at least I see something..at least I have a brain...

I know one thing,I am tired of this..

But I don't give up,will be volunteering with a family friend who is director of palliative care at the local hospital. I said I would when I could get there..and now I live close enough to take the bus. She told me this. If I ever have to use a scooter..everything is wheelchair accessible..And to not let it bother me. I won't..
the wolf


Even a man who is pure of heart and says his prayers by night will become a wolf when the wolfsbane blooms and the autumn moon is bright.
 
 
 
Confirmed Diagnosises:
Rheumatoid Arthritis (27 years) Neuropathy (from RA 11 years) Genetic Nerve Deafness (10+ years) OsteoArthritis (12+ years) GERD (17+ years)Myalgia(15+ years) Mild HBP (one year) Complicated Migraines ( 15+ years) Vertigo( 3 years) Allergies and Chronic Bronchitis, (all my life)Chronic Diarrhea (16 years)Cervical Spondylosis..just diagnosed. Osteophyte Disc complex..just diagnosed..Cervical Stenosis..just diagnosed..4 bulging discs..just diagnosed.
 
Medications: Zantac,Vicodin,Lisinopril, 
Relpax,Arava,Nasorel, Singular,Meclizine,Lomotil,Ultram. 
 
 
Non-Prescription:
 
Chromium (to regulate hypoglycemia)
Biotin (also to regulate hypoglycemia)
B Vitamins
Vitamin C
Green Tea
Papaya ( for replacement of enzymes lost from gall bladder removal.)

Post Edited (HighlandWolf) : 9/25/2007 10:03:28 PM (GMT-6)


pertunia
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/3/2007 3:36 AM (GMT -6)   

Hi as you can see I am new here, but I am currently in the research mode of what is happening to me and your original post struck some chords with me.  I am 43 by the way tho at times lately I have felt closer to 84.

Early April of this year I noticed that my vision would blur over, lasting sometimes a few minutes sometimes half an hour then come right, this would happen numerous times in a day.  I was also getting pins and needles and numbness in my legs and feet which i would think...odd I'm not sitting funny and a feeling of total exhaustion would suddenly hit me, it was either lay down and sleep now or you will fall asleep where you stand.  I was also tripping over my own feet, it got to be a bit of a joke with my friends......but there is NOTHING THERE!!!!

This all went away after a few weeks and I thought no more about it, until July of this year when I was suddenly struck with dizziness and a feeling of vertigo, my face would go numb in a manner I described as like someone had painted triangle clowns eyes down my face.  My right eye twitched non stop for 6 weeks one time spasming so hard I couldnt open it for ten minutes.  At this point I was sent to a specialist who told me as my symptoms came and went (other than that darned twitch) it was not MS.  She did send me for an MRI tho which came back 'mostly normal' (uhuh and what does that mean????)  She suggested I went home and breathed into a paper bag as I was probably just hyperventilating.

Since then I have got worse (I think I must be hyperventaliting pretty bad by this point)  my arms ache particularly my right arm and I cannot squeeze  the conditioner/shampoo and body wash out of the bottle. My hand go numb or just odd feeling.  My right eye is sore and feels sometimes like it has grit in it, sometimes a wet moist lump and sometimes like someone is drilling into it.  I cannot form sentences at times, I know in my head what i want to say but different words come out.   I zone out when people talk to me....my daughter is sick to death of hearing....did you answer me and what was the answer?  I cant remember which toothbrush is mine until I am half way thru brushing my teeth and realise buggar I have my husbands toothbrush AGAIN!  thats the days I lose the argument with myself as to whether i have already brushed my teeth or not.  i have someone poking pins in my body in all sorts of interesting places, lots of body parts go numb some for hours some for minutes, the band round my throat fortunately only lasted for half an hour because i really didnt like that AT ALL.  I am so tired from about 11am on...fortunately I work for a family business so when my lunch time lay down turns into a three hour 'nap' its not too much of a problem.

As I am getting no joy from the medical profession I am currently in the elimination process, I recently had my eyes tested the optometrist said when I described my symptoms...are you sure its not MS....my reply ....apparently  I am just hyperventilating.  She could find no causes in my vision to be causing my eye problems tho I did have a small blind spot in my right eye and she is asking my dr to refer me to an optomologist..we shall see.  Next week I am going to an Oestopath to see if they can find anything causing these probs.  From there I am stumped other than doing my own research....which is how I ended up here ....from all i have read my symptoms seem to fit here more than anywhere else...and with the lack of alternative diagnosis I am running short of options and patience.

sorry to bleat so long but as you can tell I am frustrated, confused and pretty much feed up and just needed to get all that off my chest and I figure you can stop reading anytime your sick of me lol.

 

 

 

 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/3/2007 5:33 AM (GMT -6)   
Pertunia, what kind of "specialist" did you see? A neurologist?  Have you seen a rheumatologist?  And at age 43, have you gone through...or are you starting through..menopause, yet? (This can happen in women as early as our late 30's). Pre-menopause, early menopause, and menopause itself can cause lots of symptoms you describe, including fatigue, tingling, other things.
 
In other words, there can be lots reasons for your symptoms, and rather than you trying to guess and treat each individually, you need to start with one doctor -- it can be your family physician, to begin to find out what is causing your problems.
 
But before you go back to any doctor, you need to sit down and list your symptoms, beginning with the most troubling. Try to remember around when it started, whether it has gotten worse or better, or seems to come in cycles (sometimes you'll find a monthly cycle, sometimes seasonal).
 
And if the specialist you are seeing IS a neuro, then you need to be calling her back and saying something like, "OK, I was treated by you, my symptoms are worse, and/or here are new symptoms, now what?"
 
As for your vision, an opthamologist indeed is the one you need to be seeing -- a physician whose specialty is organic eye problems.  An optometrist surely can figure out what might be wrong with your vision and offer corrective lenses -- glasses -- but an opthamologist will be able to determine whether there is anything medically wrong with your vision, causing problems.  Optic neuritis is a relatively common problem with people with MS, and while an optometrist can sometimes see it if the optic nerve is pale enough, an opthamologist really is your better choice.
 
But again, rather than you going from doctor to doctor, guessing which specialist might best serve you, you really need to get back to your family physician, and start from scratch, telling him/her what is going on, how long it's been going on, and asking where you need to go next.
 
Good luck.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


pertunia
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/3/2007 6:15 AM (GMT -6)   
Hi thanks for your reply.
I have had a full hyster about ten years ago and have hormone implants every six months so yes I was putting down some of my symptoms to perhaps my hormones being low, however when I had my implants done and nothing improved or more significantly changed and after speaking to my ob/gyn i have pretty much discounted that.
the specialist i was sent to was a specialist physician, i live in a small town in a small country and options are limited as to who you get to see. I had a raft of blood tests at the time I saw her and assume they have discounted anything that would have shown up there.
I know I will have to go back to my doctor but am really putting it off at this stage as I hate being made to feel like I am slightly insane. Which the comment about breathing into a paper bag did. In part I dont have the energy to be the squeaky wheel, which I know its going to come down to. I dont have a huge amount of faith as it took them nearly 3 years many different types of specialists and a lot of me hammering at them to actually diagnose the problem that required the hysterectomy.
This is why I am ruling out all I can by seeing people like the optometrist ie, its not my vision thats causing my eye to hurt etc.
I am currently keeping a daily diary of all my symptoms hopefully when i finally get back to the dr this will help. Its so easy to forget what was driving you mad for a week two days ago when something else is making its presence known and your memory seems to nearly always having a day off.
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