new to MS but not to healingwell

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bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 8/28/2007 7:18 PM (GMT -6)   
I havent been on here in awhile but i find that i need some support again this time for something other than my Crohn's. Im 26 y/o this week and ive been "sick" for awhile now.
Next week i have my follow up with my newest neuro to find out if what i have is MS. From my initial appt with him he says he is pretty sure that i do but since then he has done some new MRI's and such.
I guess im looking for someone who knows how i feel, with all the crap ive been dealing with and i guess to see if others think its MS as well.
Bear with me ill list my symptoms and a little timeline. For almost 3 years now i have had varying degrees of the following. I am very clumsey, i just cant seem to contril my body very well. i walk with a cane becasue i trip and fall a lot from tripping over my left foot and from pitching over sideways like im drunk. i have tremors in both hands and sometimes my legs, the hands are bad enough that some days i cant eat anything on a spoon and i spill on myself all the time. i also have tremors in my face, my lips when i smile and my eyes when i squint. i also have this thing with my eyes where if im concentrating on something they move back and forth very rapidly. my index finger on my left hand tends to get stuck in an elevated position, like it is tensing and i cant control it. and this is embarassing but recently there have been some times where i wet the bed at night.  i also have horrible fatigue, it just feels like there are weights attached to me and moving is just such an effort. lastly i get this thing often where i am about to say something and i just cant find the word im looking for, i know it and i can think it but i just wont come out.
 
before i got sick (all these symptoms started soon after being dx'd with the CD about 3 years ago) i was super athletic, went all day and night with no problem, energetic and coordinated. now there is just so much i cant do. but anyway that is my whining for the day. i really, REALLY appreceiate being able to unload like this and i thank anyone who was willing to read through all of this. id like to know if anyone feels similar to me, and i guess the famous question, do you think i have MS?
 
again, thank you SO much
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Probable MS
 
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/29/2007 5:53 AM (GMT -6)   
unfortunately many of your symptoms are common to us with confirmed MS. Presumably you've told your doctor about all of this, including the bed wetting? There are meds that can help with that. You might also talk with him about the diagnosis of Crohn's Disease. It may be that your digestive problems are more MS-related and would be treated somewhat differently,

also it is also possible you have both disorders.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 8/29/2007 10:27 AM (GMT -6)   

thanks uppitycats, i kind of suspected as much from all the reading i have done here. thanks for answering me. we have talked about the crohns and i expect we will again at my next appt so il guess ill have to just wait and see.

thanks again :)

 


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/29/2007 3:10 PM (GMT -6)   
Hi Bunny,
 
    Please feel free to vent anytime you need, and keep us posted on your progress.  Good luck with your appointment and I hope you get some answers soon.  You may want to ask your neuro if anything can be done about your more troublesome symptoms while you're waiting and get some relief.  They might be willing to do that for you.  I hope you feel better soon.
 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 8/29/2007 5:27 PM (GMT -6)   

thanks kimber i appreceiate your reply. the waiting is killing me but i know its just a few more days until i see him. the stuff that bothers me the most is the bad balance, the fatigue, the feeling like dead weight and the tremors. do they have things that can help those symptoms? theres so much i need to find out but im trying not to get ahead of myself.

anyhow thank you :)

bunny


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 

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