Welcome! I am sorry the betaseron is giving you such a bad time. I can't help much either. I am on copaxone and that really doesn't have the side effects that betaseron has. You are not at all making too much of this. This is a really hard thing to adjust to. Hang in there, you will adjust and learn to live and enjoy life again. It does take time though. Feel free to ask lots of questions and vent all you want. This is a very supportive place.
love and prayers,
You have gotten some good advice. You sound like a wonderful and loving mom. My boys both know (10 and 13). We talk about it very matter a factly. They have seen me flare and have watched me get the solumedrol IV at home with a home health nurse. They see me do my injections every night. It has become a part of their lives too but they are fine. Sometimes things like this, which seem so hard for children, become tremedous opportunities for growth. My boys are developing wonderful empathy and sensitivity. They see others now that are disabled and understand that that person it not someone to fear or avoid. My ten year old knows that he has to do a disease report this year ( a well known 5th grade project at our school ) and he cannot wait to ask to do MS. He is looking forward to learning more and sharing what he knows. Good luck Heather. You are very thoughtful and conscientious and you are doing a great job with your kids.