optic neuritis

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sunshine2165
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 9/4/2007 8:53 PM (GMT -6)   
sad  i i was wondering if any of you have had optic N and if so how long it took your vision to go back to normal and what helped the most. ive had it since may but just got the iv and oral steroids about a month ago well i finished the oral 2 wks ago. its in my right eye - my vision isnt gone its just a much dimmer color and at times depending on the light im in kinda bright or foggy looking. am i just being unrealistic thinking it should be perfect by now or does this mean its not going to get better? i think i keep haiving the so called ms hug. occasionally i will start to feel like i cant breath or im having to make myself breath. what helps with that? even though i had the steroids is it normal im still having ralapse symptoms? tired,tingling mainly when i look down, breathing, eye, and my left eye will ever so ofton start moving out of my control. help does this mean my ms is worse than the dr thought?
 
sunshine

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/5/2007 4:56 AM (GMT -6)   
sunshine2165 said...
sad  i i was wondering if any of you have had optic N and if so how long it took your vision to go back to normal and what helped the most. ive had it since may but just got the iv and oral steroids about a month ago well i finished the oral 2 wks ago. its in my right eye - my vision isnt gone its just a much dimmer color and at times depending on the light im in kinda bright or foggy looking. am i just being unrealistic thinking it should be perfect by now or does this mean its not going to get better? i think i keep haiving the so called ms hug. occasionally i will start to feel like i cant breath or im having to make myself breath. what helps with that? even though i had the steroids is it normal im still having ralapse symptoms? tired,tingling mainly when i look down, breathing, eye, and my left eye will ever so ofton start moving out of my control. help does this mean my ms is worse than the dr thought?
 
sunshine
I'm sorry you're continuing to have problems.  You'll find that sometimes steroids will help and most of the symptoms will disappear entirely. Other times they won't be of as much help, and some symptoms will stay -- that's called "residual symptoms".  And somethings will be with you always. For example, I've always had numbness and tingling in my feet, from the year or so before I even knew I had MS, 24 years ago.
 
The effects of optic neuritis generally clear up over several months, sometimes 6 months or more before vision can be completely back to normal.  And sometimes they don't disappear entirely.
 
The MS hug can come and go, sometimes depending on your level of fatigue, your level of energy, all that.  If it is particularly troublesome, sometimes some of the medicines used to help with spasticity will help with that, as it is caused by spastic muscles in your torso.
 
It doesn't mean your MS is "worse than the doctor thought". All that you describe are pretty typical long-term MS symptoms.  MS is, after all, a chronic disease, meaning it will be with you always, and these things are "reminders" that you have the disease.  Remember too that MS continues to create problems in your central nervous system..lesions can develop on the brain and/or spinal chord, for example, without you necessarily knowing it. If the destruction becomes severe enough, that's when you might have another serious exacerbation.
 
I know you're reluctant to start one of the CRABS..but that's their purpose: to try to slow the course of the disease, slow down the number of exacerbations, slow down the inevitable progression of the disease.  Until they can cure MS, that's the best we have going for us, for now.
 
 
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


sunshine_2165
New Member


Date Joined Aug 2007
Total Posts : 11
   Posted 9/5/2007 6:27 AM (GMT -6)   

thanks for your help. it makes me feel better to know it can take awhile on the o.n. all this is just enough to make your feel sad at times. what helps you the most. i hope u have a great day.

 

sunshine


Uprightnbreathin
New Member


Date Joined Aug 2007
Total Posts : 19
   Posted 9/6/2007 12:25 AM (GMT -6)   
My O.N. has not gone away and I am told that it will not get better. I guess we do have to be prepared for that. Normally with O.N. your vision will get better; however, it will never get back to 100%. My case is as if someone put a thick glob of vassoline on the middle if my glasses on my left eye. I can still see light and dark there, but is annoying that I can't see what I am looking at (out of that eye).

dixiecup
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/6/2007 6:55 AM (GMT -6)   
I was diagnosed with ms in 1995 and the first symptom that was recognized as a possible ms sign was optic neuritis in my right eye. Unfortunately my vision has not returned to normal. I have poor color absorption, depth perception and visual field problems in that eye. I will say that the vision did improve somewhat from the first sign of a problem. It was like a gray film was over my entire eye.

pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 9/6/2007 8:59 AM (GMT -6)   
I had a bout with on I just couldnt focus right..And it got better..every once in a while it flares up..Now i have nyasamis(spelling) where my right eye twitches and jumps. Its annoying but---like we all know it's apart of what we have.eyes jumping hands tremoring not a good mix..but i get by what else can i do? I or all here cant give in to it.Just we have to modify some things and go on.When your struggling through the frustration that is a hard thing to remember..........But the meds do help.30 yrs ago ms dx was the worst possible thing anybody could tell you but they have made strides-------------i always think ms will be cured in my life time..whether i fully benefit from it remains to be seen but there is hope!!!pokey79
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 9/10/2007 6:50 PM (GMT -6)   
My right eye is my main ms symptom. I had ON from June till around Nov or so last yr. I had steroids in oct but my sypmtoms have never completely gone away and the pain is starting to get worse again now. I'm seeing double and things are starting to get a little blurry again so it's either coming back or I'm just gonna have to live with it this way.

The only thing I can tell you about handling the sadness is just to get up every day and do what you have to do. I was in a car accicdent and have been in a wheelchair or using a walker for years. The only way to make it is just to do it. I hope things go well for you and that your eye gets better.

BYE!!!

Sheila
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