Post Edited (bunnypucker) : 9/10/2007 8:50:21 PM (GMT-6)
thanks marie claire :)
interesting that we both have crohns and symptoms of MS. sometimes i cant help but think that the two are related somehow being that both are from screwy immune systems. my symptoms arent getting worse either they are just there, even though i do go thru periods where things are worse. does that happen to you at all? does it frustrate you that you dont have a definite diagnosis?
anyhow thank you so much for your reply :)
Im glad I was reading all of this, I have thyroid/lupus diagnosis since 8 yrs ago but then started the past few months having lots of spasms, neck, back pains and finally after going into ER a month ago with all this they said I needed a Neurologist, well finally got into her 3 weeks ago she said possible MS, Myasthenia Gravis, or a pinched nerve ........and just by doing a physcial test which I failed 3 of her 5 tests said I have post traumatic neualgia (sp?) I could not even walk a straight line well I have done a MRI (which was not fun) tons and tons of bloodwork and see her this coming friday the 28th, Im PRAYING she comes up with something I know what I have already is hard enough but Im just sick and tired of being sick and tired! She did put me on Lyrica for pain and sleep becauseI was already on valium from the ER for spasms. The Lyrica is ok for pain but to me not solving the problem she said too the Lyrica will slowly help me off the valium hopefully, Im just so frustrated with all these new symptoms which are scary. I do see a phsyciatrist just started with her but she is cautious for depression meds since I just started the Lyrica which I appreciated, so anyways I can relate to all you guys without a Official diagnosis its so frustrating by the way do any neuros even tho you dont have a official diag. treat you anyways? Im asking if she would just take over my case for the lupus/thyroid as my doc now just said Im out of his "realm" . Tx Jonny (female)