Baclofen 10MG tablet and muscle spasms.

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Uprightnbreathin
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Date Joined Aug 2007
Total Posts : 19
   Posted 9/11/2007 2:47 AM (GMT -7)   
Has anyone noticed less spasms on this medication? I am Rx'd two tablets, three times a day. I am not sure if this has helped the spasms at all. I do know that I run into the wall more often(?) I was thinking of stopping this medication; however, in researching this med on the internet I found out that bad things can happen quitting this medication cold turkey. I do know my fine motor skills are still off and it seems like having to X out of a window on the computer is an ever increasing challenge.

Shawn

37 year old Dx'd M.S. Jan '07

Kimber
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   Posted 9/16/2007 10:32 AM (GMT -7)   
Hi Shawn,
 
    Baclophen is probably the most popular spasticity med and its one of those that you need to increase gradually and decrease gradually too to come off of it.  10 mg is a starter dose so if you're not seeing any improvement at all make sure you tell your doctor that and see what they want to do.  Good luck!
 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
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uppitycats
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Date Joined Jun 2005
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   Posted 9/16/2007 11:29 AM (GMT -7)   

Just a note of caution, too: Be careful to not take TOO much of this drug, as it can cause your muscles to be SO relaxed, they're not able to support you well.  And some spasticity can be a good thing: without it, I would not be able to stand at all.  I stopped taking the drug when I needed SO much to reduce the spasticity that my legs were like rubber bands, and I fell and broke my leg.  I've since learned that I just may have to put up with some muscle tightness if I want to keep any mobility at all.

You really need to talk with your doctor and see if you can find a point where you're taking enough to keep comfortable but not so much as to be risky. And yes, don't just stop taking it.  There are many meds that you need to taper off, not just stop "cold turkey", and baclofen is one of them.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Uprightnbreathin
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Date Joined Aug 2007
Total Posts : 19
   Posted 9/16/2007 8:32 PM (GMT -7)   
My number one complaint with my M.S. is my muscle cramps. My legs (below my knees) have been cramped (all except my calf muscle) and this was maybe fine for the first day; however, after the first time trying to sleep with this I learned sleep was impossible. This problem started a year and a half ago and I still have no relief from the cramps. Is the Baclofen for problems like the cramps? I do have other spasticity problems... noticible by Dr. when I walk. I was wishing that this med would help with the cramps as well. The cramps are 24/7 and driving me nuts. I almost feel violent at times due to this. Maybe violent isn't the word I was looking for, but if anyone else has this problem with no relief ever.... they would know what I meant.

Shawn

Uprightnbreathin
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Date Joined Aug 2007
Total Posts : 19
   Posted 9/20/2007 1:17 AM (GMT -7)   
Does this Rx work with muscle cramps as I have?

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 9/20/2007 4:46 AM (GMT -7)   
Yes, it should work with muscle spasms..or cramps..in your legs. If it does not appear to work for you then you need to talk with your doctor. There are other meds you might try.

Not all meds work well for all individuals, even if they seem to have similar symptoms.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Uprightnbreathin
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Date Joined Aug 2007
Total Posts : 19
   Posted 9/20/2007 12:45 PM (GMT -7)   
Nice to hear there is hope! I will be even more religiously taking these meds now! ..... crossing my fingers as well.

Uprightnbreathin
New Member


Date Joined Aug 2007
Total Posts : 19
   Posted 9/26/2007 2:50 AM (GMT -7)   
I don't mean to drag on a dead question..... but I am now scared about my muscle cramps and think I need an increase in my dose due to the research I have done. I hope these links help as to why I am now scared.

http://answers.yahoo.com/question/index;_ylt=AgNrDSO6CywvQsux3khkuF7sy6IX;_ylv=3?qid=20070924064727AAgBJS4

This is from Yahoo Questions and answers.

What answer is the best ?(would be great if anyone could answer me there as well)

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 9/26/2007 5:05 AM (GMT -7)   
The links don't work. Can you simply post a summary of the questions and answers, and we'll try to help?
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Uprightnbreathin
New Member


Date Joined Aug 2007
Total Posts : 19
   Posted 9/26/2007 6:22 PM (GMT 0)   
Hi Uppity,
I was asking if the muscles could simply continue for say the next 20 years being cramped. I was told that; "If you don't get it under control your muscles can become weak to do constant contractions and you may get to the point where you can't walk or stand." This came from a person with MS.
This is scary but does make sense. sorry about the link.
Shawn

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 9/26/2007 12:58 PM (GMT -7)   
Uprightnbreathin said...
Hi Uppity,
I was asking if the muscles could simply continue for say the next 20 years being cramped. I was told that; "If you don't get it under control your muscles can become weak to do constant contractions and you may get to the point where you can't walk or stand." This came from a person with MS.
This is scary but does make sense. sorry about the link.
Shawn
I don't use baclofen or any of the anti-spasmodic drugs available, because none of them seemed to work to reduce/relieve the spasms.  And when I was using baclofen, I fell, broke my leg in 3 places.  The doctor seemed to think that one cause of the break (other than my lousy balance) was that the muscles were too weak..the spasms too reduced, to support me.  Some spasticity is a good thing, apparently -- to keep standing upright.
 
I don't know about the message you got. As I understand what happen with MS is this: -- muscles that don't get nerve impulses from the brain -- because the nerve impulses are blocked because a lesion or lesions are in the way -- get weaker over time, because they're not being used.  And if those muscles happen to be in your legs, your legs will get weaker.  So with or without spasms, if the muscles aren't getting signals from the brain, they'll weaken over time.  It has little to do with whether you're taking anti-spasmodic drugs.
 
I stopped taking baclofen years and years ago.  I have muscle cramping/ spasms in my legs.  They are significantly weaker than they were 10 years ago, and I can no longer stand for more than a few seconds, enough to transfer to-from a seat, or to stand long enough to reach something off a shelf.  Their weak state has little to do with muscle spasms and everything to do with the fact that the signals from my brain to my legs just aren't there anymore, or are SO weak the muscles aren't reliable.
 
But again...
 
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


AlwaysDifferent
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/12/2009 4:25 PM (GMT -7)   
I do not have cramps, but serious jolts of pain in my legs. My doctor has me on Gabapentin (Neurontin) 1500mg/day. It has helped the pain, and my sleeping is better now that I do not have serious leg spasms at night. I take this in conjuction with the baclofen.

Is your doctor specialized in MS treatment?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3232
   Posted 10/12/2009 5:16 PM (GMT -7)   
AlwaysDifferent,
 
Welcome to the board.  I wanted to say hi and welcome you but I also wanted to point out that the thread you are responding to is very old.  You may not get a response.  I hope you will start your own thread and introduce yourself.  Thanks for posting.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 11/11/2009 8:54 AM (GMT -7)   
began on baclofen 10mg two 3xday and also hit the wall on occasion. doctor cut dose to one morning, one at noon and two at bedtime when my cramping is the worst. seems to be working except sometimes get cramps midday. at least at night my toes don't try to curl up to the top of my foot. discuss any change with your doctor, as there can be bad side effects if you go off it suddenly. maybe just a decrease in dose is needed, as it was for me. linda

newly diagnosed in Arkansas
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 11/30/2009 9:27 PM (GMT -7)   
I am new here and have been doing some reading on this thread. I find it very helpful and interesting. I have spasms everywhere and the worst part is my back and abdoman. I was given Robaxin a few years back while living in AK and then moved to AR . The new dr. here took me off of it and said that it was something I should have only taken temp. and that it was habit forming. The research that I did on Robaxin said that it is not habit forming and does work for the most part. Is there something else I should be looking out for(medication wise)? Or do you think that if the Robaxin is working then I should just remain on it? When I tell people about this medication, they freak out and ask me how I function on it. It does not make me sleepy at all.
 
I have since seen a new dr. and am now back on Robaxin.
 
A.H.

rastaron
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Date Joined Feb 2010
Total Posts : 3
   Posted 2/22/2010 6:16 PM (GMT -7)   
Hi - I am new to the forum but desperately looking for some help.  Has anyone experienced Pelvic Floor Dysfunction (Spasm/Tightness).  I am a male that has suffered with it off and on for over 15 years or so and seemed to have it under control for awhile up until about 18 months ago, but have been going down hill since then.  I live in Canada and actually went to Wisconsin 10 or so years ago to learn bio-feedback which really helped me for a good number of years when my pelvic floor muscles were truly in spasm (relaxed one day, super tight the next).  Over the last 18 months the skeletal muscles near the bladder neck have just gotten tighter and tighter and it ends up effecting my whole body as it seems all the muscles are linked to this one area.
 
I'm dealing with my GP to try to find some expertise in this area but it's taking time to locate specialists.  In the interim I'm trying my phsiotherapist but she has limited knowledge of the problem.  Also my GP has suggested the muscle relaxant Baclofen, which I suppose I will try to see what it does. 
 
Has anyone had experience with this problem or knowledge of any possible treatments?  As an after thought I have read on the internet that warm baths are a one part of a treatment but I am so tight all over I cannot really lie in a bathtub with out coming out worse than when I went in.   Any suggestions would be appreciated.  Thx.  Rastaron

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 2/26/2010 12:33 PM (GMT -7)   
..Dear Shawn:
 
I was DX'ed 22 years ago.  I take 1 & 1/2 10mg Baclophen 5 times per day.  It is very effective for me.
 
John Francis
DX'ed June 21st, 1987
 


rastaron
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/26/2010 7:44 PM (GMT -7)   
Dear John - first of all I am just checking to see if you are responding to me (Rastaron), not Shawn.  If you are responding to me - were you diagnosed with Pelvic Floor Spasm/Tightness?  If you were do you not find that the amount of Baclofen you are taking to be alot - are you able to function OK?  Not too drowsy or weak, etc.?
 
I am just starting to take the drug (yesterday) - obviously way to soon to see results but I was hoping that if it does loosen the muscles I will be able with my biofeedback techniques to get them back to semi-normal without the medication?  Hoping anyway.
 
Your response is appreciated.
 
Rastaron

leresch
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/28/2010 1:29 AM (GMT -7)   
 
     Hi Everybody,
 
        I just turned 38(f) & was dxd w/MS 12 years ago. I have been on Baclofen (75mg a day) for just over a year. I am SPECIFICALLY taking Baclofen because w/o it I am completely incontinent. I had a hard time w/it for the first 3-4 months. It definately took a while for me to get use to it. I was telling my drs.,  I was having a hard time with it for a while. I would fall back asleep @ like 10-11am & wake at 3-4pm in the EXACT same position I fell asleep in. This is how I knew I was having a hard time with it.  "To the girl that broke her leg when on Baclofen",..How long were you on it when that incident happened???? I would be very upset about that (understandably) if I were you, but based on what I just explained above, if you weren't on it that long, I can also understand how that may have happened. Also,....YOU NEVER WANT TO ABRUPTLY stop taking Baclofen because they clearly say you can have seizures/etc. if you do that. You have to build up the dosage slowly at first (as we did w/me & I still had a hard time w/it) & if deciding to go off of it,  you wanna do the same by gradually lowering the dose. The most important thing I have learned in my 12 years since diagnoses,  is that EVERYBODY can have a different experience w/different medications. If something is not working for you, "DISCUSS THE OPTIONS WITH YOUR DOCTOR". Just like they do with the MS medications. This is why when you have an exacerbation,  they usually want to stop that medication for you,  & start you on something else. I know it is frustrating but it seems to be what we must do. I started on Rebif & had an exacerbation 6 months later (I also experienced suicidal thoughts & was diagnosed with RLS/interestingly those are the 2 things the dr. from the manufacturer of Rebif asked me when they learned of my hospitalization,  so,  THEY KNOW,  what the reported side effects are from their drug. I was shocked when she asked me, yet,  gave me alot of unanswered answers). Next I was on Tysabri (my dr. stopped that as she was concerned I was reporting what she thought was early signs of PML & more interestingly/scary was that her nurse told me they had their 9th reported case of a PML death just days before). Then I went on Betaseron. This was stopped after I was hospitalized & they said my labs showed I was having a bad reaction to the Betaseron. Now I am on Copaxone. So far so good. But it has only been 4 months,  so we'll see. So with all of this I have experienced, it seems wise to me to stick w/a medication if it is working for you,  & if it's not,  then seriously talk to your dr. about your options. As far as the spastisity, I still have alot of that periodically throughout the day,  mainly in my stomach area & alot in my left leg. I think that's a difficult one to tackle because as I have told my doctors, "I am on Baclofen & also Lyrica,  (for my RLS) I say to them: "Isn't it suppose to help w/the spasticity?...They say: YES, IT IS. All they ever suggest is raising the doseage on those meds & I don't want that because I already take alot.  That part I feel like I just have to deal with because I have so many issues to tackle. MS definately sucks & is very difficult to deal with EVERYTHING. What's very frustrating for me is that my MS is the result of an adverse reaction to the Hepatitis B vaccination. We have proven my case through the Federal Vaccination Compensation Act & my lawyer told me last week that the Feds don't care about me as a person/victim. She said it's all about the money. What a sad world we live in. My Best Wishes to ALL OF YOU. I know what you are dealing with. It's enough to drive a once normal person Insane with frustration. 
 
 
 
 

rastaron
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/28/2010 5:43 PM (GMT -7)   
Dear Leresch
 
Thanks for your post.  So true on finding the right medication.  I have suffered from Pelvic Floor Spasms for years and I am going through a rough period now (and I could only imagine how much tougher getting through a day with MS is and how courageous you sound) but perhaps you can shed some light on the side effects of Baclofen as I am just starting out (3 days) and the dosage will increase over the coming weeks.  I know of the drowsyness as I feel some of that already - do you adjust to it as you spend time at the new higher dosages?  They say constipation can be a problem for some.  Anything else that you can shed a light on.
 
Thanks for your input and good luck.
 
Sincerely....Ron

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3232
   Posted 4/30/2011 10:15 PM (GMT -7)   
Thank you, Lanie!! I appreciate your editing.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

fish29
Regular Member


Date Joined Apr 2011
Total Posts : 70
   Posted 5/18/2011 2:32 PM (GMT -7)   
Hi, from my understanding this medication can be increased up to 60 MG, safely. It does work for me when I have spasms that originate in the spinal cord, not muscle spasms.

I take 20MG at night.
Tethered Cord Syndrome, Fibromyalgia and Myofascial Pain Syndrome (newly diagnosed)
Morphine (IR & ER), Baclofen, Neurontin, Savella, Voltaren Gel
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