I am sorry. I have never even hear of this. I looked it up and I see that it can be caused by both inflammation of the optic nerve or a cerebellar lesion. I have never had this. It sounds quite disturbing. Do you have this? What does your doctor say about it? I am sorry this is not a very helpful post but I wanted to offer my support.
love and prayers,
Um I just googled palinopsia and that is what I came up with. It is also associated with LSD abuse lol. I am just assuming that you are not doing that.
My first symptom was vertigo and it got progressively worse until about 3 weeks later I finally went to the hospital. At this point I was wall walking. I was admitted for a couple of days. They did a bunch of tests and found a brain lesion. They said "stroke" and sent me home. 4 Weeks later I had a severe recurrance of symptoms and went back to the hospital thinking another stroke. They did another MRI and found a new lesion. They said "ooooops not a stroke". I had a spinal tap with the classic O bands and was off to UCLA MS center. A few more tests and MS was the dx. It was really straight forward for me. I had three lesions, O bands and lots of symptoms. So I had two flares like 4 weeks apart and then another 10 months later.
This seems like a boring and often told story lol. If you want more info. you can always e-mail me. I hope you got what you were looking for. I am not sure how helpful it is to hear other's stories since this disease is so variable. Good luck.
I"m sure others will be along soon to give u their stories, but i wanted to jump in here and let u know that there are MANY who've gone two years and much longer before getting a dx of ms. Unfortunately a quick dx is not the norm for ms...rather a journey of time waiting and watching.
Post Edited By Moderator (Kimber) : 11/11/2007 11:29:48 AM (GMT-7)
Wow!! Sorry to dig this up if resurrecting an old topic is frowned upon, but I have this problem with looking at striped objects too! Or things with spots, or things with textures, it's pretty unpleasant. Sometimes it's so bad I can't even be in a room where I'm not next to the wall, all the objects in the room will look like they are moving since it's like my eyes can't understand that they are at different distances but are staying still.
Anyways, I thought it was fascinating that it could possibly be MS. Last January I suddenly got horrible vertigo and they rushed me off to have an MRI thinking that I had a brain tumor or MS. The MRI was normal and they didn't figure out what was wrong, and the vertigo isn't too bad most of the time now that it's been a year, but apparently the MRI looking ok doesn't necessarily mean I do not have MS.
I noticed the posts lamenting that sometimes even when you have MS it won't show up on an MRI, and noticed about a spinal tap being an MS test? How reliable is that? I know you can get all sorts of bad problems if they do the spinal tap wrong, but if it's pretty reliable for determining whether or not you have MS, I would be totally willing to go get one!
I am concerned that my vision and balance problems and so on might be from an old head injury if not from MS, so that complicates things. Anyways, any suggestions on what kind of doctor I could see or what tests I could do, that would be super :) I know it sounds weird to be excited about possibly having MS, I know it is not something to actually enjoy having, but I just want to know what's wrong with me!!! I already have a couple other fun permanent diseases to deal with so I'm kind of used to having things in me be broken :P
Noooooooo I wouldn't be too excited about MS!! If you still have concerns that you have MS, then you need to see a neurologist. There are many, many other diseases that mimic MS. MS is relatively rare. There is no one test that diagnosis MS. The lumbar puncture can be helpful but again you can have a clean lumbar puncture and still have MS. The lumbar puncture can identify many health problems. Evoked potentials is another test that many neurologists look at. Thorough blood work is also important to rule out other infectious or metabolic problems that mimic MS. A neurologist will also do an exam to see if you have reflexes or other reponses that may indicate MS. If you have or are still experiencing visual problems then you may want to have an opthalmologist examine your optic nerve.
It seems reasonable that an old head injury could cause these symptoms as well. Well, good luck on your quest for answers. I see that you are a regular member here. Welcome to the MS board. You are welcome here. Please ask any question you may have. We also chat Monday afternoon/evening.
Love and prayers,
Thank you! All of that information helped a lot, and I certainly will be off to see the neurologist.
I just have one more question about having my optic nerve checked - how do they do that? I have been to see the optho guy recently, I have been to opthos before for other normal eye exams and unfortunately the optho guy from my health group has stone-age technology for everything. Little piece of paper with lines on it to check and see if your vision is showing crooked lines...based on "do the lines look crooked?" and you answering yes or no, reading the eye chart, and using the eye drops to dialate the pupils and then looking in the eye with some sort of hand-held light gizmo on a stick. That's it!! Even Lenscrafters had more advanced screening equipment! LOL.
Anyways the optho said I have something wrong with my pupils where they're always dialated really large and gave me some eye drops. He said there is nothing else to do since my pupils react to having bright lights shined on them. Granted, no other optho had bothered to care about that, or mention it, perhaps they thought I was using illegal drugs, but I am not sure he did anything that can check for optic nerve problems and the eye drops he gave me only help with my extreme light sensitivity and dancing white spots I see from being in brightly lit areas. I sure would like to get my optic nerve checked but I don't know what to tell him to use, or even if he would possess equipment to do that.
I certainly didn't mean to make light of all the unfortunate effects of MS, but I seriously do get excited about figuring out what is causing a lot of the problems I have. Even if it means I have another incurable disease with bad side effects. I already have 3 other autoimmune disorders (Crohn's, asthma, eczema) so it's not entirely far-fetched to guess that I could possibly also have MS from my malfunctioning immune system. I just like knowing what's wrong with me so I can try to anticipate any problems that may develop, and especially so that I do not take any medicines or treatments for one condition that might make one of my other conditions worse.
Hey Map Lady,
Make sure you are seeing a opthalmalogist and not an optometrist. Lenscrafter is an optometrist. That is a company that just wants to fit you for corrective lenses. They may look like they have high tech equipment, but it is just to measure your visual acuity. That light on a stick allows a doctor to check the health and appearance of your retina and optic nerve and other stuff. I know that optic neuritis can be seen by a doctor. Do find an opthalmologist and a neurologist that you have faith in.
Also, as you mentioned, if you have one auto-immune disorder/disease you may be more at risk for other auto-immune issues. You certainly have many symptoms of MS. Good luck on your quest for answers.