Gretchen, thanks for the response.
I had the thoracic MRI this morning. When the technician came to take me out he asked if I ever had a lumbar MRI, I said yes, and told him it was normal. He just said, huh. Then he asked if I ever had an EMG, I said no, my neuro doesn't feel that it necessary. I am thinking that he didn't see anything wrong with my thoracic MRI, even though he's not the radiologist, they do this stuff everyday, and he should be able to tell if there was anything wrong. After all, it was him who told me last year that I had a bulging disk, but wouldn't say where in my cervical spine. He knew that I was worried about lesions, and it was on a Friday, and I knew the girl that worked at the desk. So he told me not to go bungee cord jumping until I talk to my doc. I don't know where to turn next, both brain MRIs were normal, c-spine, and lumbar, normal, and by his reaction, this one was normal also. After 7-8 years with these symptoms my neuro told me that if it was something serious that by now, I would be diabled or dead, nice , huh? Then she asked if I would like for her to refer me to a university hospital because she has done everything that she can, all she did was a brain and thoracic MRI and bloodwork, as far as a LP, she said they don't do them unless there were lesions on the MRI.
Thanks all, Jen
I can "hear" your frustration. I am sorry you still have no answers. This must be very tiresome. Sometimes doctors can be a bit insensitive to what is going on. You appear normal on many of your tests, yet clearly you are suffering with these symptoms. I would take your doctor's offer to go the the university. Also, question the lumbar puncture deal again. Lumbar punctures can rule out or rule in many many things (infections and such). They are not just a tool for diagnosing MS. Good luck and again, keep us posted.
love and prayers,
Just wanted to drop by and let you guys and gals know that the thoracic MRI was normal. I don't know what the next step will be, but I think I am going to push for the LP. A friend of mine was just diagnosed last week with MS, she is 39. She has no spinal lesions, but did have 3 brain lesions, neuro never did a LP, she is starting Avonex next week. Do you think she should have a LP done? Can it be diagnosed this fast. She only had symptoms for 3 days, went to the hospital and they told her to contact a neurologist, he did the MRIs and diagnosed her. Thanks
Thanks for the info. I think I am going to try to focus on more positive things in my life now. Its been an exhausting 8 years, surely something should have shown by now. Thanks for all your support.