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Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 9/24/2007 8:47 PM (GMT -6)   
Tomorrow I am scheduled to have an MRI of my thoracic region done.  I already had a c-spine last year around this time, only thing found was a bulging disk.  My brain MRIs have been normal.  I'm concerned though that the neuro didn't write on the script with contrast.  It is also in an open MRI, she has written on the diagnosis part== leg parasthesia.  I am finally after seeing her for almost a year now, this was my fourth visit, having blood drawn to check my B level.  Isn't that usually one of the first things that they test for when people have sensory symptoms?  Thanks for listening.
 
Jen eyes

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3125
   Posted 9/24/2007 11:20 PM (GMT -6)   
Hey Jenny,

From what I understand the only function of the contrast is that it crosses the blood/brain barrier during inflammation. This means that the lesions show up white if that lesion is active. The lesions still show up without the contrast it is just that they won't know if that lesion is active or not. Good luck with that. Keep us posted.

Love and prayers,
Gretchen
diagnosed: MS  July 2006
 
A person without a sense of humor is like a wagon without springs.  It's jolted by every pebble on the road.
Henry Beecher
 


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 9/25/2007 2:39 PM (GMT -6)   

Gretchen, thanks for the response.

I had the thoracic MRI this morning.  When the technician came to take me out he asked if I ever had a lumbar MRI, I said yes, and told him it was normal.  He just said, huh.  Then he asked if I ever had an EMG, I said no, my neuro doesn't feel that it necessary.  I am thinking that he didn't see anything wrong with my thoracic MRI, even though he's not the radiologist, they do this stuff everyday, and he should be able to tell if there was anything wrong.  After all, it was him who told me last year that I had a bulging disk, but wouldn't say where in my cervical spine.  He knew that I was worried about lesions, and it was on a Friday, and I knew the girl that worked at the desk.  So he told me not to go bungee cord jumping until I talk to my doc.  I don't know where to turn next, both brain MRIs were normal, c-spine, and lumbar, normal, and by his reaction, this one was normal also.  After 7-8 years with these symptoms my neuro told me that if it was something serious that by now, I would be diabled or dead, nice , huh?  Then she asked if I would like for her to refer me to a university hospital because she has done everything that she can, all she did was a brain and thoracic MRI and bloodwork, as far as a LP, she said they don't do them unless there were lesions on the MRI. 

Thanks all, Jen

 

 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/25/2007 4:07 PM (GMT -6)   
I guess where you go next is the referral to a university hospital, where you'll possibly be examined by more than just a neurologist, and collectively they might be able to get to the source of your problems. Your neuro is right, you know -- if it was something serious wrong neurologically, you WOULD likely be much more disabled than you are right now. So that's a good thing..but of course it doesn't explain your symptoms. They may not be neurological, so the referral might be a very good next step.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3125
   Posted 9/25/2007 9:32 PM (GMT -6)   

Hey Jen,

I can "hear" your frustration.  I am sorry you still have no answers.  This must be very tiresome.  Sometimes doctors can be a bit insensitive to what is going on.  You appear normal on many of your tests, yet clearly you are suffering with these symptoms.  I would take your doctor's offer to go the the university.  Also, question the lumbar puncture deal again.  Lumbar punctures can rule out or rule in many many things (infections and such).  They are not just a tool for diagnosing MS.  Good luck and again, keep us posted.

love and prayers,

 


Gretchen
diagnosed: MS  July 2006
 
A person without a sense of humor is like a wagon without springs.  It's jolted by every pebble on the road.
Henry Beecher
 


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 9/27/2007 7:30 PM (GMT -6)   

Just wanted to drop by and let you guys and gals know that the thoracic MRI was normal.  I don't know what the next step will be, but I think I am going to push for the LP.  A friend of mine was just diagnosed last week with MS, she is 39.  She has no spinal lesions, but did have 3 brain lesions, neuro never did a LP, she is starting Avonex next week.  Do you think she should have a LP done?  Can it be diagnosed this fast.  She only had symptoms for 3 days, went to the hospital and they told her to contact a neurologist, he did the MRIs and diagnosed her. Thanks

 

Jen 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/27/2007 9:00 PM (GMT -6)   
Hey Jen

No, i wouldn't think she needed an lp done. She apparantly has enuf clinical signs to go along with the brain lesions for the doc to dx her. The lp would be a bit redundant at this point. I"m sorry to hear of her dx, but yes, it CAN happen that quickly, tho it's not typical. Hang in there and keep on with u'r search for u'r health answers, but i'm not so sure i'd suggest an lp for u unless the doc felt it'd be revealing. Yes, it can give u closure to at least the ms hunt, but it would seem that's already done. Maybe talk to u'r doc and see what they suggest as u'r best next step. That best next step may well be waiting and watching again. I"m sorry ur going thru all this, but know we're here praying for u and hoping for the best. Take care and let us know how u decide to proceed.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 9/27/2007 9:26 PM (GMT -6)   

Rhondab,

Thanks for the info.  I think I am going to try to focus on more positive things in my life now.  Its been an exhausting 8 years, surely something should have shown by now.  Thanks for all your support. 

Jen

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