Predinsone - Again?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

frustrated_in_NY
Regular Member


Date Joined Mar 2007
Total Posts : 44
   Posted 10/4/2007 8:29 AM (GMT -6)   

Good morning everyone!

 

I don't believe I have posted on the MS board yet since much of my time the past year has been spent on the Ulcerative Colitis board (two autoimmune diseases - double the fun!  tongue )!  The colitis appears to be under control for now; however, my MS appears to be rearing its ugly head. 

 

I think I am having a relapse and am debating whether or not to call the neuro.  For the past 4-5 days, I have had numbing and tingling sensations in my left foot (have had this in the past) - pretty consistently throughout each day.  However, when I woke up this morning my entire left leg is feeling "funny".  I am having spasticity in my left thigh and calf muscles, plus the tingling/numbing sensations continuing in my left foot, and have an overall feeling of weakness in my left leg.  I keep thinking that if I wait another day things will improve, but it isn't looking that way.

 

What do you think?  Time to call the dr.?

 

Thanks for your help!

Karen confused


MS - dx April 2005
Ulcerative Colitis - dx Sept. 2006
 
Meds 
Copaxone - 20mg injection 
6MP - 100mg - 2 50mg pills - 1x/day
Asacol - 400mg - 3 pills - 3xs/day
Iron - 1 pill - 2xs/day
Levid - as needed
Immodium - as needed
Cymbalta - 30mg - 1 pill/day
Lunesta - 3mg - 1 pill/day
**  Finally in remission!  Yahoo!  **
 

You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face.... You must do the thing you think you cannot do."     -- Eleanor Roosevelt

 

 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/4/2007 9:01 AM (GMT -6)   
Hey Karen!

Welcome to the ms board! I'm sorry to see u'r ms is flaring, but so happy for u that the uc is under control. Wow...double whammy for u! As far as whether or not to call the doc, i tend to feel like being proactive is the best bet. It can't hurt to call, but may hurt NOT to. So give u'r doc a call and at least let him document this occurrance. He/she may tell u to just be aware and let them know of anything more, or they may have more active instructions. Either way, it's always a good idea to let the doc know of anything new for u. Take care and let us know how this goes for u. I do hope it's not a flare.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/4/2007 9:38 AM (GMT -6)   

I think it is a good idea to call the doctor, and at least get it noted in your file that you're experiencing a flare.

But whether or not to go back on steroids ought to be a discussion between you and your doctor, and finally a decision you make.  I'm of the opinion that steroids (and prednisone is a steroid) ought to be a last resort, used only when the flare is causing you to have symptoms that dramatically reduce your ability to perform what doctors call "Activities of Daily Living", things like inability to dress yourself, feed yourself, bathe yourself; bladder and/or bowel get out of control; difficulty grooming yourself; writing; walking..

and not for primarily sensory issues (tingling, numbness, other strange sensations), or general weakness (unless for example it becomes clear that your leg will no longer support you!), general fatigue, that sort of thing.

Why? Because the long-term effects of steroids can be very problemmatic, and there have been many tests that have shown that their use may shorten a current exacerbation, but the side-effects may be more troublesome than simply waiting out the flare.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


frustrated_in_NY
Regular Member


Date Joined Mar 2007
Total Posts : 44
   Posted 10/5/2007 12:40 PM (GMT -6)   

Update - thanks for the quick responses.  I saw my Dr. this morning and I am having a relapse.  I received an infusion while I was at the office and will have one on Saturday and one on Sunday.

Have a good weekend!
Karen


Relapsing/Remitting MS - dx April 2005
Ulcerative Colitis - dx Sept. 2006
 
Meds 
Copaxone - 20mg injection 
6MP - 100mg - 2 50mg pills - 1x/day
Asacol - 400mg - 4 pills - 3xs/day
Iron - 1 pill - 2xs/day
Levid - as needed
Immodium - as needed
Cymbalta - 30mg - 1 pill/day
Lunesta - 3mg - 1 pill/day
 

You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face.... You must do the thing you think you cannot do."     -- Eleanor Roosevelt

 

 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, August 18, 2017 1:03 AM (GMT -6)
There are a total of 2,856,986 posts in 313,461 threads.
View Active Threads


Who's Online
This forum has 155092 registered members. Please welcome our newest member, SammiK.
301 Guest(s), 2 Registered Member(s) are currently online.  Details
SammiK, lesweet1971


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer