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freezinginAK
Veteran Member


Date Joined Nov 2006
Total Posts : 1052
   Posted 10/30/2007 5:40 PM (GMT -6)   
  It's kind of odd after going though so many sites on the net and I can trace many of my symptoms all the way back to 94 and I'm just now getting tested for MS and all along I have been complaining about extreme muscle pain, brain shocks, tremors and loss of my fine motor skills in my hands, loss of balance and daily fatigue and so on but I guess at the time my main problem was with my anxiety so most of the treatment went to that and blaming the fatigue on CFS as well as CNS damage for a lot of the other stuff, but it would really be nice just to put a name to it so I can move on as I see it life not going to change much at lease I hope lol
  I do get blood work done every 3 months for my diabetes but I only had it for 4 years now where the other stuff has been there for 13 teen years with new things popping up. Well I'm just going to stop rambling on
 
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  Happiness is sitting around a warm campfire with no worries or cares as day turns to night.
 
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  Anxiety/Panic, CFS, CNS damage, MCS and Diabetes type 2
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/30/2007 7:46 PM (GMT -6)   
Hey Cowboy

I feel u'r frustrations, but as much as i'd love to be able tell u how to find a quick answer, as i'm sure u've seen, there really usually aren't any. Diagnosing MS is process of elimination and that takes a lot of time...in addition to needing particuliar signs seen by u'r doc on testing. There is a plethora of testing that will be done...if not already in process...as well as just the typical 'wait and watch' time where u wait to see if there is a flare of any new or recurring symptoms that can also be seen and measured in a clinic by a doc. So, all in all...it's a long wait in general. Some people go for years...even as many as 24 from what i've seen so far...before getting a dx of ms. As of this time there is still a question mark over the ms dx for u...and as bad and hard as that is to take...at least u can still hold out hope that it's NOT ms. I'm with u. I don't have ms. I do have some pretty funky symptoms, but i still have hope. As frustrating as the not knowing is...the knowing can be much worse. Hang tough friend and vent anytime u want. U'r far from alone.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*


AlaskaMom
Regular Member


Date Joined Oct 2007
Total Posts : 27
   Posted 10/31/2007 2:07 PM (GMT -6)   
Just wanted to say "hello" to another Alaskan. MS is just "one" of the things they are currently testing me for. Have been tested for multiple areas for the last 1 1/2 years and in the process of putting together everything to go "outside" to Virginia Mason in Seattle per the recommendations of the general practicioner, internal med, and neuro docs up here. I'm a nurse currently on medical leave, neuro problems scare me too much to practice. I live in Kasilof right on the river. Husband and I own a lodge on the river. Anyway, just wanted to say HI...was wondering where you are located in AK?
Never give up; keep searching for the answers.  One day I will find them.

freezinginAK
Veteran Member


Date Joined Nov 2006
Total Posts : 1052
   Posted 10/31/2007 2:23 PM (GMT -6)   

   Hi AlaskaMom your definitely not far from me at all lol I'm down by the Kenai river outside of soldotna it's good to hear from you

  Cowboy up 


   Forum Moderator A/P
 
  Happiness is sitting around a warm campfire with no worries or cares as day turns to night.
 
  Help Healing Well grow as your donations are greatly appreciated @
          www.healingwell.com/donate
  Anxiety/Panic, CFS, CNS damage, MCS and Diabetes type 2
 
 


AlaskaMom
Regular Member


Date Joined Oct 2007
Total Posts : 27
   Posted 10/31/2007 3:01 PM (GMT -6)   
Well, it's a small world.  Have some good friends that have a B&B on the Kenai in Soldotna.  I prefer the Kasilof (quieter...drift boat only) ok, smaller kings, but still lots of them...and I can walk right outside my door and down to the dock (we actually have the only one on the Kasilof..a floating dock that we just got out of the river a couple of days ago for the winter) Sorry to know of your symptoms...I guess I can relate.  Do you see docs in Soldotna or Anchorage?  I have both and also go to AK spine institute.  Have you been tested for lyme?  I know that includes a multitude of symptoms.  I ordered testing supplies from igenex in California to be tested and results were basically borderline.  Some positive bands but not enough to be CDC  positive, so the docs around here won't recognise it.  But I was told by the lab that my steroid injections to my spine and feet would cause a lower immune system and most likely alter my antibody response to the testing causing false negative and indeterminate results.  Anyway, depending on your symptoms, you might look into that.  I know they say there are no ticks in AK, but I've only been here just over a year and lived in many other areas, don't know where you are originally from and lyme can be chronic for a very long time.  I'm going to wait long enough for the steroids to be out of my system and test again.  The positive bands I did have were specific for lyme disease, so that still may be the answer, but I can't convince docs to try a trial of treatment based on that.  Wishing you well....take care...

Never give up; keep searching for the answers.  One day I will find them.
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