Dear Mystery Reader,
I am currently on Tysabri and that decision was made based upon my two years of relentless positive MRI scans. The last scan, prior to Tysabri, was horrible nothing was working, the "big guns" aka: Tysabri was my only hope to stop the inflamation and to get it under control.
I had an MRI this last Friday and it was absolutely clear, meaning NO WHITE DOTS meaning I am finally in remission after more than TWO years. I have noticed a great deal of improvement in physical and pych. It would take me forever to get my thoughts together to write this. Coordination is a bit troblesome due to the overuse of steroids used during the hard times of the relapse. If you are doing steroids every 3-4 months like I was, stop doing solumedral (I didn't know that was a problem), however I can rebuild those muscles weekend by steroids.
I have been on Tysabri for 4 months now and there are frontrunners in our fight who have been on it for a little over two years. I will continue on the Tysabri path forever, given that my frontrunners are safe. (why not?) Don't be scared about Tysabri, during the trials (when they pulled it) they were using it in conjuction with other MS Drugs and that is why it was not going so well. They don't do that now its a monothereapy and everything has come back possitive that it is indeed a miricle drug for MS (until there is a cure). IMO
Weight the pros and cons for yourself, gather information from reliable sites, most important talk to someone who knows more than anyone about this....your doctor.
I will start you off....
PRO: If its your last option to maintain what you have, and get some things that you lost back (proven to get some regrowth of nervous tissue, Not all but some) you will do it and be glad that you have this choice.
Talk to you doctor more and have your DR. give you information. He is working in your best interest. Dr. Don't mess around and use people as experiments they are helping you, you're scared and that is OK. Going on random sites aren't helpful becuase you may not be getting accerate information.
Bottom line: Its working for me, I hope it works for you.
Let me know if you want to talk more. I got to the Cleveland Clinic