New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 11/5/2007 5:15 AM (GMT -6)   
I was just wondering when everyone here is having a relapse, what is the length of their's and what is the best thing to do if you are not dx? I seem to lay down but it doesnt help...I have had this pain and numbness in my face and neck and arm and it is driving me crazy. I have the nausea, the dizziness...yikes...oh well don't mean to go on but just wondering if there is anything at home that I could do to make myself feel better. I need to work, have a family and just don't know what to do. Would a regular primary dr. give meds for this hug or numbness? Well thanks for listening.....appreciate it very much...I love this site....beannie confused

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/5/2007 11:07 AM (GMT -6)   
You are not diagnosed?  You should start with your primary care doctor, tell him your symptoms, start getting tests run.  There can be lots of causes of your symptoms besides MS, and a primary doctor is the place to start to either rule them out, or start treating them, and the symptoms you describe.  A primary doctor could also actually diagnose MS, by the way, if that is what is ailing you, in the end.  It would be likely he'd send you on to a neuro for confirmation, but if the tests came back pointing to MS, he could diagnose it.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/5/2007 11:43 AM (GMT -6)   

To specifically answer your questions:

For people with MS, relapses can last any time from 24 hours (anything less isn't "counted" as a relapse) to weeks, and longer. There is no set time (except the "not counted" if it is less than 24 hours).

You say you have "the nausea" as if "nausea" is a primary symptom of MS. It isn't. Some of us do experience nausea, if it is related to vertigo (or dizziness, which can be a symptom of MS...but can also be a symptom of a host of other disorders).

You say something about "this hug". Can you describe that more clearly?  I went back and re-read your earlier posts. Sounds like you're having some spasticity, or muscle spasms? An "MS hug" is a very specific kind of muscle spasm, and I don't see anything in your posts that describes that, exactly.

What many of us with MS do about symptoms like numbness, tingling, even pain, is simply live with it.  MS is, after all, a chronic and non-curable disease, and while some meds will relieve some symptoms, they won't make the symptoms go away ENTIRELY, however, and if we didn't ignore them sometimes, we'd spend all our day in a sick bed.  Which of course many of us don't do.  You don't know for certain that you have MS (did you get back with your doctor for the results of those blood tests?)  If your pain is severe enough your doctor can give you some meds that will help it. Most of the pain meds aren't specfic to MS..that is, they're used to treat all sorts of pain, not just MS-related pain.

The "best thing to do" whether you're diagnosed or NOT diagnosed is to get meds to treat symptoms that are particularly troublesome, then go about living your life, working around the pain or disability as best you can.  There really aren't any alternatives...well, there is, but that choice is unacceptable.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 11/5/2007 11:04 PM (GMT -6)   
Hey Beannie
 
I was diagnosed fairly recently.  I have had three flares.  They have lasted different amounts of time.  The first one lasted about 8 weeks.  The second one lasted about 3 weeks.  I recieved no treatment for those as I didn't know what was wrong with me.  My last flare was the worst and it lasted about 3 months.   I did receive IV solumedrol for five days and that helped.  I am left with lots of sensory stuff.  Both of my feet are pretty much completely numb on a skin level.  My left knee also has some deep numbness that causes some mobility problems.  There is pretty much nothing that is going to treat that.  Like Uppitcats said, I just deal with that and work around it.  It is not painful and so I don't seek treatment.  I only treat symptoms if they are very painful.  The rest I have just learned to ignore.  I work on treating progression with a progression therapy (copaxone), eat right, get as much excercise in any way I can and get enough sleep. 
 
Good luck with your search for answers.  You have gotten some really good advice from Uppitycats.
 
Love and prayers,
 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 11/6/2007 5:28 AM (GMT -6)   
Thanks soooo much...I am sorry for not really explaining myself I guess I'm not really great at that. I am not dx. I was told probable, and looked like a mild case. I do believe I have all the symptoms of MS. Thanks uppity for explaining things you are very good at it. When I said I have nausea...I mean it comes in waves. I do not have it everyday. I get a sense of vertigo or dizziness and then I will get the nausea. I guess that explains it a little bit better. I need to find a new neuro, someone who will listen to me,it is so frustrating. The muscle spasms that I am having now are very painful, so I guess I have to do something about it. It is affecting my arm shoulder and neck. My right side of my face is so numb and tingly, and also down into my arm and leg. Yesterday something weird happened when I woke up, my right eye did not want to open. I took my finger and pulled my lid up, it was weird. It actually felt like it was blinking slower allday. I do work, I clean houses for a living...so atleast I can work at my own pace. I do get very tired when I come home, so I usually lay down about an hour or so. I have had the MS hug, it was such a scary thing. I did land in the er once because I thought I was having a heartattack. Now I seem to have it up as high as my neck...that is very scary. I have had it around my waist, it felt like someone was behind me grabbing me, one time I actually turned around to see if someone was there.  I have had ON twice, it was dx by an opthamologist, not one of those regular eyeglass guys. So I guess what makes me sad is I just want someone to tell me whats up? Thanks uppity you are great and give great advice....I'm sorry this is so long but I was trying to explain a little bit better. Thanks for listening...and giving advice...beannie

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/6/2007 7:45 AM (GMT -6)   

If you go to another neuro, it's likely he'll want to repeat all of the tests your current neuro has run.  I'm a bit confused...if the neuro said you had "probable MS", and a "mild case"...have you gone back to him with new symptoms?  He may change that diagnosis to "definite", and offer more specific treatment for your symptoms. 

If indeed you have MS, as I've already said and Gretchen confirmed, there isn't a lot that can be done about many of the symptoms.  Meds will alleviate some of them...make them less troublesome...but it's not like, "..take these pills for the next 3 weeks and you'll be well".  You'll likely always experience spasticity, have some vision problems, experience vertigo from time to time, etc.

Sounds to me like you really need to go back to the neuro who diagnosed you, tell him you're still dealing with stuff and have new symptoms, and ask, "Where do we go from here?"


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 11/6/2007 3:17 PM (GMT -6)   
Hi Beannie,
 
    I do hope you feel better soon and this relapse ends quickly for you.  Especially being undx it is very important to contact the doctor and report anything that gets worse or new stuff happening.  If you don't then the doctor is under the impression that everything is good when in fact it isn't.  Even undx some doctors will prescribe meds for some symptoms, particularly if they are troublesome and interferring with daily life functioning.  Maybe give your neuro a call and tell him whats going on and see what they say.  I wish you the best. 
 
 
 
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 11/6/2007 4:17 PM (GMT -6)   
Thank you so much everyone....Uppity I just wanted to say about the probable part...now when I had my MRI done the neuro told me they found six lesions on my brain. She actually read the report over the phone to me when she got the results. Some things I didn't understand but she put it in layman's(sp) terms. She said it sounds like he is saying MS...then she said probable, but when I came in the next few times she said I do not believe you have MS. I would tell her my symptoms and she would stare at the ceiling.... I do not see her anymore I have found another neuro who I am going to see who I hear is a great person to talk to, who actually listens to you. So when I get that appt. I will let you know how things go. Until then thank you so much listening and caring, it is very comforting knowing I am not alone......Beannie

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 11/6/2007 11:04 PM (GMT -6)   

Beannie,

I am so glad you are going to another doctor.  I think a second opinion is definitely warranted.  I hope you get some answers and some relief real soon.  Keep us posted.

Love and prayers,

 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 11/7/2007 7:01 AM (GMT -6)   
Hey Beanie

I just wanted to jump in here late and give u a RAH RAH RAH!!! Good for u for getting to another doc and persuing some answers! I've been reading and following u'r post, but i'm sorry to say have not been up to posting too much. Just know that u are far from alone! U keep pushing for answers and we'll keep the cheering section going strong for u! Deal?
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


beannie
Regular Member


Date Joined Jun 2006
Total Posts : 50
   Posted 11/7/2007 7:58 PM (GMT -6)   
Thank you soooo much for your little cheer Rhonda...I appreciate  your enthusiasim..It so frustrating to go on like this, and having people look at you like you have 2 heads telling them your symptoms. I felt like that neuro I had when I was telling her my problems she was planning her dinner in her head.. mad Again thank you very much, I have said before this is the best website and most comforting I have ever seen. Thank you, it is so good to know there are people out there for ya when ya need them....love all you guys...beannie
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, October 21, 2017 3:37 PM (GMT -6)
There are a total of 2,885,273 posts in 316,582 threads.
View Active Threads


Who's Online
This forum has 157699 registered members. Please welcome our newest member, Jendino.
383 Guest(s), 7 Registered Member(s) are currently online.  Details
Georgia Hunter, ChZo9699*, Serenity Now, Wisco woman, Sheeks175, gabybee, gumby44


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer