Tysabri Educational Program

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Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 11/5/2007 7:52 AM (GMT -6)   
 I am currently on Tysabri and from reading other posts I feel that Tysabri is not accurately reresented. I have been on Tysabri for 4 months. Prior to, I had been relapsed for two years with a slow continuos progression, shown through MRIs.  Within three months of Tysabri my MRI came back negative my, first Remission.  Yeah!!!!!
 
THis is the educational program that was given to me by the Mellen Center at Cleveland Clinic.  Very informative
 
 
In the "join a show" box enter 303294 and follow further instructions
 
Hope that helps those of you considering Tysabri.
 
Buckeye
 
OH...IO
 
Let me know if you can't logon for some reason. You have to use internet Explorer   (IE)

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 11/7/2007 7:08 AM (GMT -6)   
Hey Buckeye

Thanks for this link! I"m sure many here will take a look and learn much. As u may be aware, there are other members who are actively considering Tysabri, so this is quite timely. Thanks again!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 11/7/2007 9:19 AM (GMT -6)   

Yes, I have read posts of others asking about Tysabri recently. I didn't want to post until I had seen results of using Tysabri myself and well, like you had said good timing!!!

I think its a lot less scary than people think and I hope that site helps to make an informed desicion regarding treatment options.

Dana

MS

mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 11/7/2007 8:24 PM (GMT -6)   
Buckeye, thanks for the link. I will look at it this weekend when I have time. Have you had any side effects that you have had to deal with? How long did it take for you to be approved? How long does the infusion normally take? I guess I have lots of ?'s. I am meeting with my neuro tomorrow to discuss ty. Oh, I am originally from Ohio.
Barb/mystery reader
Diagnosed April 2007


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 11/7/2007 10:04 PM (GMT -6)   
Barb, You very welcome. I had a hard time finding people who were on Ty. and found it frustrating so I wanted to help out without sending you to 100 different links that are outdated info or just BS between whomever non-docs.
Questions:
Side Affects: Feeling great. Feeling like I can think clearer. No headaches. I have not experienced nor have I heard of any negative side affects...they call this drug the "miracle drug" the first one will make you euphoric but it will level off so don't be disappointed when it does level out, don't expect it everytime. I get bursts of energy the week of infusion. and I kind of start feeling as if it "wears down" toward my next infusion, its common and its not every month either.

First you need to get in touch with the "TOUCH" program people who run everything, your doctor will help you with that. TOUCH takes it from there with insurance etc. pretty simple and fast process.

Infusion normally takes 2-2.5hrs. 1 to actually infuse the Ty and another hour for observation and some time spent getting the drug from the hospital's pharmacy up to where you are at, like an infusion room or whatever. I guess its under lock and key vaulted ;-) They just don't have it laying around. TOUCH rule

Sorry this is kind of thrown together...its late I'm exhausted. I was up last night with my son 17month old who decided that 2 am was party time in his room.

Where in Ohio did you live?
I grew up in Sheffield Lake...
Good luck tomorrow. Let me know how it went. I think its just us two? I am not sure but I didn't get any responses when I asked about Ty. Maybe they don't need to be on here?!
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