Thanks for responding to my unpopular thread lol. I have those same issues but I believe to a much lesser extent. My biggest problem is my chronic vertigo. It showed up late May in 2006 and has never gone away. It has been so bad that I could only wall walk and I was so very nauseous. My neuro claims that chronic, long term vertigo is not very common and she had hoped that it would eventually diminish but alas that has just not happened. It seems that it is here to stay. My way of dealing with it is to ignore it. If it is really bad and I am sick from it, then I might take some meclezine.
Thanks again for sharing.
Love and prayers,
We are happy and thankful to have you here too!! When you put it as "374 shots" that seems like a lot huh? Good for you for sticking with it, I know not everyone does. I'm sorry to hear about your vertigo, I know that gets really tiring after a while.
I've been thinking today about what to answer with as my worst symptom and was having trouble deciding. I think my vote is for fatigue. When I do get some energy it has to be very carefully delegated or I'll rob the next days energy, or many days for that matter. As far as how I manage it? Lots of rest and a very reduced work schedule. I have a bit more energy since coming off Betaseron, and hoping Tysabri will improve it even more
Take care and have fun with Sunny!
I think you know the answer to this one for me, but I’ll post it anyhow. While fatigue is a close second, I have to agree with you and say vertigo is my worst symptom. I count myself lucky that my daily issues with it are more a feeling of being off balance and slightly dizzy, rather than true spinning sensations. However, when it does become the spins, especially to the point where I can’t move because I can’t tell up from down and I get “stuck” places, I find it truly miserable and incapacitating. Thankfully, this hasn’t happened in a while.
How I deal with it..hmmm…I take meclizine sometimes which helps with the nausea but not the actual vertigo, and I try and go to bed and not move when I am really spinny. I also find that bracing myself in a corner sitting up with my eyes shut helps the spins, as the solid walls seem to help my brain realize things are not actually moving. I touch walls as I walk and often even when I stand for the same reason, and find that helps keep my everyday level of dizziness manageable.
John you have said it all!!
Now can you go explain that to my husband!!!!
Well i think we are at a place where we'll all need to just agree to disagree. This is a fantastic thread...asking for opinions... and those opinions are per our own personal experiences. I think none here could say they've ever dealt with every symptom nor are they trying to say that. We all have our own feelings as to what the worst symtom is...and that's directly related to what we are going thru or have gone thru. That said, each of us feels our own symptoms/circumstances are the worst...and they are for us. No ill intent was due here nor placed. As close as this community is and as much as we'd love it to be, we are all simply not always going to get along and agree. Please try not to take anything said here as a personal attack unless it clearly is. Please remember that in responding likewise u'r perpetuating the problem. I hope this issue can rest here and we can get on to the original topic again and enjoy just having each other to lean on. Thanks everyone!
I owe you an apology. I am very sorry. I have not experienced being in a wheelchair so I really don't know. I have offended you and I am sorry. I have experienced fatigue and when I had it I couldn't work, I couldn't drive and I didn't want to go anywhere. Certainly I do not know what it is to be in a wheelchair, and I spoke without thinking. Thank you for calling me on it. I can certainly read the frustration in your words. I seem to do that to you a lot. Again, I am sorry.
Hi, Gretchen...seems we were cross-posting.
First, no apology is necessary, really. Please read what I just posted above-- I'm not at all offended, just making my position clear. You don't really frustrate me, and haven't really frustrated me in earlier posts -- and certainly not as much as apparently I frustrate some others here. I realize that I am much more disabled than most of the folks that post here. Between my own 24 years of disability and 30 years of working with people with disabilities (which I did before I became disabled myself, and still do some work), I suppose I do sometimes come across as a "know-it-all"..because, frankly, I do know a bit more than some folks who are newly diagnosed, or not yet diagnosed at all. So for that I am very sorry.
continue, folks. What is your most troublesome symptom(s), right now? Today, I'd jump on the "fatigue" bandwagon...assuming I could jump. :) Just spent the day doing necessary shopping..only 3 stores...and I'm crashing in to bed after posting this. One store too many, I told my husband. If I'd stopped after #2, maybe I'd feel alive right now!