After the normal MRI, is the doctor still suggesting that perhaps you have MS? I see you're getting new MRI's done. A good thing, as they might be useful to try to sort out what might be happening from your accident (which sounds horrific!) and something else going on, like MS.
What you had in 2004 (3 years ago) is not what I consider an "MS hug". The "MS hug" is really more like this: muscle spasms in muscles that go around (thus the "hug") your body, like around your arm, leg, abdomen, torso. A "squeezing in" feeling. I liken it to having your too-fat elderly auntie come and see you, and wrap her arms around you and give you a BIG squeeze. The sensations moves from the outside in, sometimes feeling like "waves" of squeezing. Some people will report that it "feels like" they can't breath, or take in enough air. Rather than severe abdominal pain like you describe, they think either their lungs are collapsed, or perhaps they're having a heart attack. For me, it's just an all-around-my-torso squeezing in pressure, sometimes more intense than other times, but not at all the severe sharp pain like you describe here (and I think on another board I frequent. :) )
Many people with MS do have bladder incontinence...but with your other medical complications, it's going to be hard to figure out if that is from previous injuries, or something else. If you go to a urologist, they can test you to see if your bladder is working properly, and whether it is a "mechanical malfunction" or a neurological problem. Of course injuries can lead to neurological problems, too.
Tripping a lot-- it could be something called "foot drop", where indeed your foot is dragging, not lifting up properly when you take a step, causing you to trip. Unfortunately, like a lot of problems, foot drop can be a result of injury, or a neurological problem like MS. Is your left leg in fact shorter..or do you just THINK it's shorter? If it really IS shorter, that can cause gait problems, not related at all to injury or MS, and could cause you to trip. And if the leg IS shorter -- that could also account for your "clicking" left hip.
Glaucoma is not a presenting symptom of MS. You said you saw an "optometrist". You might want to see an opthamologist -- a licensed medical doctor whose specialty is diseases and disorders of the eye, to get a thorough check up. He could confirm the glaucoma problem, if it exists, also offer treatment for your dry eyes, and check for optic neuritis: inflammation of the optic nerve, in one (or both) eye. Optic neuritis, or ON, is sometimes a precursor to MS.
You are 38? Have you been checked for early signs of menopause? Yes, I know what you're saying: "Hey!! I'm only 38!!!" In fact, early menopause can start causing all sorts of problems at your age, and continue on and off into your 40's, when "full blown" menopause can kick in.
Anyway...good luck with your repeat MRI's. I hope the doctor can sort out all of this for you.
OK so your post was amazing and interesting and tragic. It took me two different times to get through the whole thing. I would hate to see one of your long posts. Lol. Chat is fun even if Uppitycats doesn't come. Although she should, we would love to chat with her. I am really glad you found us here. Feel free to ask any questions you may have. There are many here just like you; undiagnosed and looking for answers.
Love and prayers,
Post Edited By Moderator (rhondab) : 12/4/2007 9:05:53 AM (GMT-7)