I just picked up copies of my latest c and t spine MRIs, and according to the reports there is no evidence of demyelination. I know that the neuro will interpret them for himself in February (I am impatient, lol), but it doesn’t look like there is anything there from the reports. I am tremendously relieved, but at the same time pretty puzzled. I am not dxed, but was treated with Copaxone for 9 months until my previous neuro became unsure that I had ms.
The ms neuro I now see is an imaging expert/researcher. After the exam, he said he knew where the lesion in my brain was, simply based on my abnormal exam responses. He also said he believed I have at least one lesion on my spine, also based on exam and history. He actually said something like “these other symptoms are coming from your spine, not your brain.”
Despite the fact that I had just had a c-spine mri 2 months prior to my appointment, he ordered the new c and t spine mris. I am not sure all of the reasons why he ordered them. I continue to have problems with my left hand and arm, but that started with my first “attack,” and seems to be brain-related. However, in addition to a bunch of sensory issues, I know I do have hyperactive reflexes in my knees (neuro kept shouting out “brisk, brisk, brisk” lol), my gait was off, and I could not hop on my left foot. I previously had clonus in that left ankle, but it was no longer there at this last exam. I also had a period of time this summer where I had problems urinating, which he seemed to consider significant.
Anyway, I know I will just have to bide my time until February to find out more (this is the appt where we will discuss diagnosis and treatment), but any insight would be much appreciated.
So you broke the age-old rule 'don't read your test results before the doctor'. I can relate. I know you were wanting answers. Try to be patient and hold out hope that your February appointment will offer some help, treatment and relief. Hang in there buddy. We will be waiting with you.
Love and prayers,
Thanks so much for responding Gretchen and Uppity. Yeah, this waiting is getting to me a bit. Uppity, these latest mris were actually done at the local clinic, not the ms center. My new neuro said that the previous scans they had taken were of good quality, so he wanted me to have them done here locally. When I had my first attack (and the lesion showed up on my brain MRI) my leg and bladder function remained normal. Since there are “new” issues (leg problem began almost a year ago, and the bladder stuff happened this summer), I guess that’s why he wanted the new MRIs. I had not had a thoracic MRI since these issues began, so was expecting that. I was surprised he wanted the c-spine again, but your explanation makes sense.
Anyway, I am just so confused as to how I have not only symptoms, but also clinical signs and a neuro who thinks something is there…yet nothing shows up on the scans of my spine. Most of the issues I have from the brain lesion are apparently not that uncommon based on its location…I guess the rest of this is just not that clear cut, as we all know.
Thanks for the support, as always. Your understanding and compassion really mean a lot to me.
Post Edited (Kiera) : 1/3/2008 2:05:36 AM (GMT-7)