Wow, those eye symptoms sound really rough, and I’m sorry you are having such a hard time finding answers. I am not sure what kind of doctor you saw, but have you tried seeing an ophthalmologist for your eyes? If you have already done this, are you able to go for a second opinion? Have the doctors (neurologists?) you’ve seen given you anything to try on your headaches? Do you think your eye problems are connected to your headaches?
Headaches can be complex to diagnose and treat, but there are medications out there that can be effective. I am not sure where you live, but there are also “headache clinics” which specialize in this area of medicine. One thing I know many on this board have found helpful, is to create a list of both your top questions and most bothersome symptoms. Hand a copy of the list to the doctor at your next appointment, and make sure the doc answers these questions/concerns to your satisfaction. If you don’t understand the answer to a question, ask for clarification, or even see if the doc will write a brief explanation or give you some literature on the condition…i.e. the light bending thing you described above.
I hope you find some answers and relief soon! Hang in there, okay?