I am sorry you are having so many problems. Your symptoms sound miserable. I am not sure I can answer your questions but I am going to try. I am hoping others will help me out and maybe you will have a bit of information on MS. Multiple sclerosis means multiple "scars". All of the people I know that have MS have "lesions" that have shown up on an MRI. These lesions may develop on the brain and/or on the spinal cord. There may be people out there that have been diagnosed with MS without lesions showing but I have not heard of that. The usual tests ( not everyone gets or needs every test ) are MRI, extensive blood work to rule out other possible infections. lumbar puncture to look for oligoclonal banding. evoked potentials ( this is a nerve conduction type test ) and a physical exam that tests reflexes and other neurological responses.
You certainly share some of the symptoms of MS but the symptoms are varied and there are many diseases and conditions that cause these symptoms. Certainly share all of your symptoms with both of you doctors. Others here have said that if you write them down in order of severity and add dates to when they started, that can be helpful to doctors.
I think it is very hopeful that if you have had a clean MRI that you probably don't have MS but I am not a doctor. I very much hope that you do not have MS.
Please hang in there. The diagnostic process for MS can be a long one. I presented with obvious test results and symptoms - lesions on the brain and spine, a lumbar puncture with oligoclonal banding, failed the evoked potentials, did not have any other signs of infections in my blood work or cerebral spinal fluid. Once the neurologist examined me, I got the MS diagnosis quickly. Others go years before they get a diagnosis. This is tricky stuff so be persistant but patient too.
From personal experience, I will venture to say that most MS patients do not suffer with the severe pain like you have. There are a few that deal with severe and chronic pain but that seems not to be usual. Have you gone down the Fibromyalgia route? Well anyway, tell your doctors what is going on with you and I wish you the best of luck. Let us know how you are doing.
Love and Prayers,
Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.